Papers by heather wilkinson
Qualitative health research, 2018
The involvement of "people with experience" in research has developed considerably in t... more The involvement of "people with experience" in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention-in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (a) analyzed data through two theoretical lenses: Douglas's cultural theory of risk and Tronto's Ethic of Care, and (b) analyzed data in workshops with people living with dementia. The design involved cycles of presenting, interpreting, representing and reinterpreting the data, and findings between multiple stakeholders. We explore ways of involving people with experience as co-analysts and explore the role of reflexivity, multiple voicing, literary styling, and performance in participatory data analysis.
In September 2002, new legal rights in the form of the Community Care and Health (Scotland) Act 2... more In September 2002, new legal rights in the form of the Community Care and Health (Scotland) Act 2002 recognised the contribution of many thousands of unpaid carers in Scotland. Carers Scotland supported carers in being closely involved in the process of developing this legislation. Carers were involved in drafting guidance, strategic planning, lobbying, consultation, giving evidence and working with Members of the Scottish Parliament. Carers Scotland sought to facilitate as much direct involvement of carers with Ministers and MSPs as possible. This briefing reports on a study of how Carers Scotland helped to ensure carers views were included in new community care legislation by the Scottish Parliament. Key Points centre for research on families and relationships research briefing 15 april 2004 crfr Participation for Change: Carer Involvement in the Community Care and Health (Scotland) Act 2002
Journal of Integrated Care, 2002
... Developing diagnostic practice: taking account of the user perspective To date, the influence... more ... Developing diagnostic practice: taking account of the user perspective To date, the influence of user ... diagnostic practice among GPs is improving, the knowledge gained from research exploring the user ... Department of Health (2001) National Service Framework for Older People. ...
Http Dx Doi Org 10 1080 13607860120080260, Jun 17, 2010
Dementia is associated with a decline in the ability to reason and make judgements thereby affect... more Dementia is associated with a decline in the ability to reason and make judgements thereby affecting a person's ability to make sound decisions. Others are not legally entitled to make these decisions until they have been assigned legal jurisdiction to do so. It is not clear, however, the extent to which people with dementia rely on available legal interventions. The growing emphasis on early diagnosis for people with dementia provides an opportunity for people to plan and control decisions about financial management and welfare and may well lead to an increase in the uptake of these interventions. This paper coincides with a move to reform outdated Scottish Law with the Adults with Incapacity (Scotland) Act 2000. This legislation proposes a more integrated and flexible approach to the legal management of the affairs of people with reduced decision-making capability. The paper reviews of the recent literature on the use of legal interventions for people with dementia and their families, and discusses the empowering or disempowering nature of the interventions.
Despite the recognized longevity of people with Down's syndrome, the age-related long-term c... more Despite the recognized longevity of people with Down's syndrome, the age-related long-term care needs of this population have yet to be fully understood and addressed. Owing to an increase in medical and social interventions, people with Down's syndrome are living ...
Disabil Soc, 1995
ABSTRACT This article describes a case study of the integration into mainstream schooling in two ... more ABSTRACT This article describes a case study of the integration into mainstream schooling in two LEAs of children of primary school age with physical disabilities. Levels of disability are compared with the location of the children in the school system and any special provision made for ...
J Educ Policy, 1997
... given by Nick Stuart, the DfEE's Director General of Employment and Lifelong Learning, w... more ... given by Nick Stuart, the DfEE's Director General of Employment and Lifelong Learning, who conceded ... there is a degree of uncertainty with regard to the links between invest-ment in ... Indeed, Stronach (1988) argued that there was no relationship between training and levels of ...
... Clarke, C and Luce, A and Gibb, C and Williams, L and Keady, J and Cook, Ailsa and Wilkinson,... more ... Clarke, C and Luce, A and Gibb, C and Williams, L and Keady, J and Cook, Ailsa and Wilkinson, H (2004) Contemporary Risk Management in Dementia: An organisational survey of practices and inclusion of people with dementia. Signpost, 9 (1). pp. 27-31. ...
Risk management is a complex aspect of practice which can lead to an emphasis on maintaining phys... more Risk management is a complex aspect of practice which can lead to an emphasis on maintaining physical safety, which impacts on the well-being of people with dementia. Education for practitioners in risk management is particularly challenging because of its conceptual nature and diverse perceptions of risk between and within professional groups. The practice development research reported here formed one part of a multisite study and contributed to developing a risk assessment and management framework for use by practitioners in partnership with people with dementia and their families. Practice development research uses learning theories in the process of the research, and in so doing its intent is to not only create new knowledge but to view the research process as also a process of learning for those involved. Twenty practitioners from varying professions participated in five Collaborative Learning Groups, each of at least 2 hours duration, which were held over a 7-month period. Data analysis highlighted contradictions in the care system and in the professional's intention to practice in a person-centred way. These were expressed through the themes of: Seeking Certainty; Making Judgements; Team Working; Managing Complexity; Gathering and Using Information.
... We now suggest that the utilitarian discourse is effectively silent (not only for this group)... more ... We now suggest that the utilitarian discourse is effectively silent (not only for this group) on other components of the ... people makes life better for all people, we suggest, ensuring that the ordinary lire ot those with learning difficulties realises human rights might function ...
EXECUTIVE SUMMARY .................................................................................. more EXECUTIVE SUMMARY ............................................................................................................4 1. BACKGROUND AND LITERATURE REVIEW........................................................................5 2. AIMS....... ... ... Objective: To explore and identify the impact of Learning Disability Liaison Nursing ...
ABSTRACT User involvement means different things to different people • users can be involved both... more ABSTRACT User involvement means different things to different people • users can be involved both in the planning of health services and in the conduct of health services research • not all user groups have the same opportunities for involvement • little is yet known as to the impact that user involvement has, both on services and on the individual • until clearer evidence is available, it remains uncertain whether users are being involved because it fits the rhetoric or because it will make a difference
... people in their own homes REPORT MAY 2009 Authors: Melanie Lewin, Heather Wilkinson andCaroli... more ... people in their own homes REPORT MAY 2009 Authors: Melanie Lewin, Heather Wilkinson andCaroline Donaldson Page 2. Page 2 of 26 GOOD IDEAS Authors: Melanie Lewin, Heather Wilkinson and Caroline Donaldson MAY 2009 ACKNOWLEDGEMENTS ...
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Papers by heather wilkinson