Papers by Sadie P. Hutson, PhD, RN, WHNP, BC
Kathryn L. Duvall, East Tennessee State University Duvall@etsu.edu Kelly A. Dorgan, East Tennesse... more Kathryn L. Duvall, East Tennessee State University Duvall@etsu.edu Kelly A. Dorgan, East Tennessee State University Dorgan@etsu.edu Sadie P. Hutson, University of Tennessee-Knoxville SHutson@utk.edu In a multiphasic study, the stories of 29 female Appalachian cancer survivors were collected through either a day-long modified story circle event (n=26) or an in-depth interview (n=3). Qualitative content analysis was used to identify emergent themes in the data. The analysis revealed 5 types of family cancer communication including both pre-diagnosis and postdiagnosis cancer communication strategies.
Kathryn L. Duvall, East Tennessee State University Duvall@etsu.edu Kelly A. Dorgan, East Tennesse... more Kathryn L. Duvall, East Tennessee State University Duvall@etsu.edu Kelly A. Dorgan, East Tennessee State University. Dorgan@etsu.edu Sadie P. Hutson, University of Tennessee-Knoxville SHutson@utk.edu Navigating personal identity changes through the cancer journey can be challenging, especially for women in a culture that places emphasis on traditional gender roles and values dose-knit families. Drawing on a story circle approach, this study examined the intersecting identities of female cancer survivors in southern Appalachia. Stories of 29 female Appalachian cancer survivors from Northeast Tennessee and Southwest Virginia were collected via a mixed methods approach in either a day-long story circle (N=26) or an in-depth interview (N=3). Transcripts from both phases were audio-recorded and transcribed verbatim; NVivo 8.0 facilitated qualitative content analysis of the data. Inductive analysis revealed l.hat women in this study appeared to struggle with 1) maintaining place in the fa...
Background Access to healthcare services, from diagnosis through end of life (EOL), is important ... more Background Access to healthcare services, from diagnosis through end of life (EOL), is important among persons living with Human Immunodeficiency Syndrome (HIV) and Acquired Immunodeficiency Syndrome (AIDS) (PLWHA). However, little is known about the availability of hospice services in Appalachian areas. Therefore, the objective of this study is to describe the geographic distribution of hospice, homecare and nursing home facilities in order to demonstrate current existence of and access to resources for EOL care among PLWHA in the Appalachian regions of Tennessee and Alabama. Methods This paper reports on the second aim of a larger sequential, mixed methods qualitative-quantitative (qual→quan) study. Data from advance care planning (ACP) surveys were collected by both electronic (n = 28) and paper copies (n = 201) and, among other things, obtained information on zip codes of residence of PLWHA. This enabled assessment of the geographic distribution of residences of PLWHA in relatio...
Kelly A. Dorgan, East Tennessee State University Dorgan@etsu.edu Kathryn L. Duvall, East Tennesse... more Kelly A. Dorgan, East Tennessee State University Dorgan@etsu.edu Kathryn L. Duvall, East Tennessee State University Duvall@etsu.edu Sadie P. Hutson, University of Tennessee-Knoxville SHutson@utk.edu This study examines the illness narratives of female cancer survivors living in Southern Central Appalachia. Stories of 29 female Appalachian cancer survivors from northeastern Tennessee and southwcstmn Virginia were collected via a mixed methods approach in either a day-long story circle (n=26) or an in-depth interview (n=3), Qualitative content analysis was used to guide an inductive analysis of the tTanscript<;, What emerged was that as participants survived cancer, they also survived other health conditions, their intorsccting stories yielding an omnibus survivorship narrative.
Californian Journal of Health Promotion, 2007
The Appalachian region of the United States has long been recognized for its poor economic and so... more The Appalachian region of the United States has long been recognized for its poor economic and social indicators. Only during the past decade have multi-state data become more accessible to describe the regions’ poor health status and resulting outcomes. A recent community-based participatory study engaged rural Appalachians to describe “what makes Appalachia different?” from other geographic areas and cultural groups in the United States and identify those characteristics that influence the region’s health. This article summarizes the community interpretation of these findings.
Journal of Obstetric, Gynecologic & Neonatal Nursing, 2019
SAGE Open, 2019
Cancer genetic testing (CGT) is a powerful diagnostic test that improves cancer prevention and ea... more Cancer genetic testing (CGT) is a powerful diagnostic test that improves cancer prevention and early detection among individuals at high genetic risk of cancer. Since the completion of the mapping of the Human Genome Project, CGT has become increasingly available in the clinical setting. However, as gene discovery and sequencing technology improve, the impact of these advancements on patients is less understood. The use of multigene cancer gene panel tests has become increasingly prevalent; as such, the likelihood of incidental or inconclusive findings has increased. The author conducted a literature review to outline the science on CGT methods, the psychosocial responses to testing among patients, and the unique role of nurses in this process. A significant gap in the literature exists regarding multigene cancer genetic panel tests and the associated experiences and decision-making processes among individuals who have had testing. Future research will specifically explore the exper...
The American journal of hospice & palliative care, 2018
As part of a mixed methods study determining end-of-life and advanced care planning needs in sout... more As part of a mixed methods study determining end-of-life and advanced care planning needs in southern Appalachia, a narrative analysis was done of stories told in interviews of 8 selected participants using transcript data. Narratives were fraught with contradiction and paradox. Tensions were evident about living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The primary finding was that stigma, from several sources, and shrinking circles of social support for people living with HIV/AIDS, all of whom were in treatment, combined to create a sense of solitariness. Narratives were fraught with tensions, contradictions, and paradoxes. Living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The rejection-based religiously based stigma was often predicated on stereotypes about sexual behavior and illicit drug use. Diagnosis was a...
Open Journal of Nursing, 2016
Digital Storytelling (DST) has been recognized as a holistic and innovative storytelling avenue. ... more Digital Storytelling (DST) has been recognized as a holistic and innovative storytelling avenue. Survival rates for pediatric oncology patients are improved, making it necessary to investigate the psychosocial perspectives of these children. This research began following a comprehensive review of the scientific literature and identification of a gap as it pertains to using DST as an avenue for acquiring data about this aggregate of patients. The purpose of this project was to explore the use of DST among pediatric cancer patients and their perspectives regarding diagnosis. We employed a qualitative case study design with two oncology patients between the ages of 11-17 years. The narrative, digital story, and field notes comprise the qualitative data. DST narratives and field notes were analyzed using qualitative content analysis to extract themes. Findings will provide the foundation for future research to explore the use of DST as both an intervention and data collection method in this population.
Preventing chronic disease, 2009
We seek to start a dialogue about the challenges cancer control researchers and specialists may f... more We seek to start a dialogue about the challenges cancer control researchers and specialists may face in attempting to understand the Appalachians' experience with cancer. Through examples drawn from our own research among Appalachian communities, we discuss the hazards of defining a culture in order to develop culturally tailored cancer control interventions and programs. We also acknowledge that cancer control work in Appalachia requires "cultural mapping," highlighting cultural beliefs, norms, and realities that may be linked to cancer mortality and morbidity. Although cancer control specialists and researchers have to rely on cultural maps, they must also remain critical of such maps. Subsequently, we describe a mapping approach around the metaphor of "signposts," directional indicators that point to broad cultural attributes but do not reduce the culture to a narrow set of traits. The interplay of these signposts ultimately helps cancer educators, communi...
Preventing chronic disease, 2009
Underserved communities with high cancer rates often are not involved in implementing state cance... more Underserved communities with high cancer rates often are not involved in implementing state cancer control activities locally. An East Tennessee State University research team formed 2 Appalachian Community Cancer Research Review Work Groups, 1 in northeast Tennessee and 1 in southwest Virginia. During 4 sessions, the research team presented regional cancer data to the work groups. Work group participants explored research from a lay perspective and identified possible reasons for cancer disparities in central Appalachia. The fifth session was a community dissemination activity in which work group participants engaged in cancer education and action by presenting the research to their local communities in unique ways. During a sixth session, both work groups discussed these interventions and further attempted to answer the question, "What makes the experience of cancer unique in Appalachia?" This article describes the key steps of this community-based participatory research...
SAGE Open, 2015
Story is a powerful tool in holistic nursing care. Narrative therapy, story circles, narrative-ps... more Story is a powerful tool in holistic nursing care. Narrative therapy, story circles, narrative-psychotherapy, and family therapy methodology have incorporated storytelling in a research setting. Childhood cancers isolate children from traditional childhood experiences. In recent years, survival rates for pediatric oncology patients have improved, opening up opportunities for research. The increase in life expectancy makes it necessary to investigate the psychosocial perspectives of children as they progress. This review focuses on the use of digital storytelling among pediatric cancer patients as a form of reflection. Furthermore, it addresses the possible therapeutic effects that may be realized by children who produce a digital story. Sixty-four references were identified via Pubmed and CINAHL databases using the following keywords: “digital storytelling,” “narrative therapy,” “pediatric oncology,” “childhood development,” and “interactive narrative.” Future research will focus on...
Women's Studies in Communication, 2014
Drawing on critical feminist narrative inquiry, we explore illness narratives of women cancer sur... more Drawing on critical feminist narrative inquiry, we explore illness narratives of women cancer survivors living in Southern Central Appalachia via a daylong story circle (n = 26) and individual interviews (n = 3). In our article, we argue that participants functioned as illness genealogists as a consequence of their central location in families, as well as their location in a place (Southern Central Appalachia) characterized by what we call “cohabitating morbidities.” We coined this term to represent the experiences of women survivors living with multiple, sometimes simultaneously occurring illness experiences in their family systems. Finally, we reveal and explore rules that guide their survivorship experiences and storytelling, contending that study participants preserve their central location within family systems by decentering their own survivorship experiences and stories.
Advances in Nursing Science, 2015
ABSTRACT
Women & Health, 2011
Human papillomavirus is the most frequently occurring sexually transmitted infection and has been... more Human papillomavirus is the most frequently occurring sexually transmitted infection and has been recognized as the necessary cause of cervical cancer. Understanding the shift in public awareness caused by recent changes to cervical prevention is critical to addressing cervical cancer disparities in Appalachia. Since the human papillomavirus vaccine was approved for prevention, little data have been collected regarding human papillomavirus risk assessment and vaccine perceptions among Appalachian women. The purpose of the authors in this study was to investigate communication and cultural issues via a social scripting framework that could influence human papillomavirus vaccine uptake among southern Appalachian women; and explore participants&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39; perceptions of human papillomavirus, cervical cancer, and the vaccine. A qualitative, descriptive design was employed to examine these issues in eight counties in northeast Tennessee and southwest Virginia. Thirty-nine women aged 18-49 years participated in a single individual interview or focus group session from October 2007 through August 2008. Interview and focus group data were audio-taped and transcribed verbatim. Two major themes emerged from the data: the human papillomavirus vaccine protection dilemma and spheres of silence surrounding the human papillomavirus vaccine protection dilemma. Study findings suggested areas for future research and may assist healthcare professionals in approaching southern Appalachian women as they make decisions regarding cervical cancer prevention.
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Papers by Sadie P. Hutson, PhD, RN, WHNP, BC