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Decolonizing Disability Through Activist Art 1
Carla Rice
University of Guelph
Email: carlar@uoguelph.ca
Susan D. Dion
York University
Email: sdion@edu.yorku.ca
Eliza Chandler
Ryerson University
Email: eliza.chandler@ryerson.ca
Keywords:
disability arts; decolonizing; disability ontologies; research creation
Abstract
This paper mobilizes activist art at the intersections of disability, nonnormativity, and Indigeneity to think through ways of decolonizing and
indigenizing understandings of disability. We present and analyze artwork
produced by Vanessa Dion Fletcher, the first Indigenous disability-identified
Artist-in-Residence for Bodies in Translation (BIT), a research project that
uses a decolonized, cripped lens to cultivate disabled, D/deaf, fat, Mad, and
aging arts on the lands currently known as Canada. We begin by setting the
context, outlining why disentangling the disability, non-normativity, and
Indigeneity knot is a necessary and urgent project for disability studies and
activisms. Drawing on Indigenous ontologies of relationality, we present a
methodological guide for our reading of Dion Fletcher's work. We take this
approach from her installation piece Relationship or Transaction?, which, we
argue, foregrounds the need for white settlers to turn a critical gaze on
transactional concepts of relationship as integral to a decolonized and an
indigenized analysis of disability and non-normative arts. We then centre
three original pieces created by Dion Fletcher to surface some of the
intricacies of the Indigeneity/disability/non-normativity nexus that complicate
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recent discussions about recuperating Indigenous concepts of bodymind
differences across white supremist settler colonial regimes on Turtle Island
(North America) that seek to debilitate Indigenous bodies and lives. We
intervene in these debates with reflections on what might be created—and
what we might learn—when the categories of Indigeneity and (Western
conceptions of) disability and non-normativity are understood as contiguous,
particularly focusing on meaning-making within Dion Fletcher's developing
oeuvre.
Introduction
Anishinaabe artist-scholar Leanne Betasamosake Simpson, in her book Dancing
on Our Turtle's Back, describes the convergence of art, activism, and everyday life.
As she stories a public procession of her Nishnaabeg community of dancers,
artists, drummers, community leaders, Elders, and children walking down the main
street in the city currently known as Peterborough, Ontario, art is not only part of
everyday life; art is everyday life. For Simpson, the celebration of Indigenous
culture by First Nations Peoples is a way of taking up space and taking back space
on stolen land in acts of resistance. Simpson describes, "Settler-Canadians poking
their heads out of their houses, restaurants, and offices, staring at them from the
sidelines, their looks saying, 'what do they want this time?'" (9). Simpson writes,
"But that day we didn't have any want—we were not trying to fit into Canada. We
were celebrating our nation and our lands in the spirit of joy, exuberance, and
individual expression" (9). Simpson's story teaches us, if we attend closely,
something important about Anishinaabe artistic expression and ontologies of
difference. In her accounting, neither the very young nor the old are excluded due
to perceived and/or experienced vulnerabilities, needs or in/capacities. Instead,
they play a vital part in Indigenous cultural expression as it weaves into the fabric
of daily life, and they take up space on colonized land that is violently inhospitable
to Original Peoples.
In this essay, we offer one account of how we are working to decolonize disability
through activist art by exploring selected works produced by our project's 2018-19
Artist-in-Residence of Bodies in Translation: Activist Art, Technology and Access to
Life (hereafter Bodies in Translation or BIT), Indigenous disability-identified artist
Vanessa Dion Fletcher (Potawatomi- Lenape). Briefly, BIT is a multifaceted arts
research project that cultivates disabled, D/deaf, fat, Mad, and aging arts using a
decolonizing and cripped lens in order to engage with multiple communityinstitutional partners. BIT started with a compelling idea: that creating both access
to art for non-normatively embodied people and opportunities for the public to
engage with such art would expand understanding of non-normative vitality and
advance social and political justice in Canada. Our project is led by Indigenous and
non-Indigenous e/Elders, 2 scholars, artists, and activists in our governance
structure, research and artistic activities, and decolonizing disability, non-normative
and activist art is central to our work. We interrogate what activist arts can teach
about disabled lives at the intersections of Indigeneity, disability and nonhttps://dsq-sds.org/article/view/7130/5944
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normativity. We do this by experimenting with ways of decolonizing disability and
non-normative arts in a variety of genres (performance, visual art, film, installation,
digital media) and by creating opportunities for various publics to engage with such
work.
Our commitment to 'decolonizing disability through activist art' began when we
wondered about the multiple ways in which the experience of disability informs and
complicates the project of decolonizing, as we examine in this essay. While we
recognize that we need to decolonize disability studies, activisms and arts, we also
appreciate how knowledge and creative production from bodies and minds of
difference can advance the project of decolonizing. In what follows, we begin
unpacking this syllogism by giving background on the complexities of thinking
Indigeneity, disability, and non-normativity together. Here we explore why it is vitally
important to examine art at this nexus through an indigenizing lens that seeks to
recover and recuperate Indigenous concepts of bodymind difference as well as a
decolonizing one that surfaces and challenges some of the egregious effects of
settler colonial systems that aim to debilitate Indigenous bodies and nations.
Drawing from Indigenous ontologies of relationality, we introduce our
methodological guide taken from reading Dion Fletcher's installation piece,
Relationship or Transaction?. We then move to offer a relational reading of three
more of Dion Fletcher's works, Offensive/Defensive, Own Your Cervix, and Finding
Language. In our reading of these works which surface some of the intricacies of
the Indigeneity/disability/non-normativity nexus, we consider how knowledge and
creative production from an Indigenous perspective on "what Western discourses
call disability" (Kuppers 175) might support decolonization. We end by suggesting
that a relational reading of Dion Fletcher's developing oeuvre reveals the work
required to make old/new sense of disability in a colonized world that debilitates
Indigenous peoples.
Thinking through the Disability/Indigeneity/Non-normativity
Nexus: New/Old Meanings of Disability and Worldly
Arrangements
Our Bodies in Translation work is situated in Ontario, with many of our activities
occurring on the traditional territories of the Anishinaabe and Haudenosaunee
nations. When we started this project, we knew that we had a responsibility both to
work in relationship with Indigenous peoples and to respond to the call by
Indigenous scholars and activists to decolonize our research (Truth and
Reconciliation Commission/TRC, 1-22). Along with taking up our responsibilities to
work for and in solidarity with Indigenous self-determination efforts, we wanted to
explore how cultivating activist arts at the intersections of disability and Indigeneity
might contribute to decolonize disability in ways that are consonant/resonant with
Indigenous worldviews and perspectives. Thus, we briefly outline decolonizing
research that evidences some of the debilitating effects of white settler colonial
structures on Indigenous peoples before turning to outline Indigenous scholarship
that aims to recuperate Indigenous concepts of bodymind difference. Through
focusing attention on white settlers' responsibilities in redressing colonial
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conditions, we surface some of the complexities that complicate any simplistic call
for disability pride or for recuperating pre-contact ways of knowing non-normativity.
In the testimonies of disabled and of Indigenous peoples, we can identify how
similarities and overlaps in the state's egregious treatment of both groups has
served the geopolitics of settler-colonial nation building. These overlaps include
settler imposition of political and economic regimes that have produced high
degrees of debility (Puar X; 17; 20) and disability among Indigenous peoples. The
imposition of ableist settler knowledge systems have sought to render Indigenous
and disabled populations as defective and inferior; settler transinstitutional
responses to Indigenous and disabled bodies, centering mainly on policies of
containment and elimination have had violent and deadly effects for Indigenous
and non-normative lives. Yet these resonances are complicated by a formidable
rub: notions of 'defectiveness' that have been imposed on Indigenous people
through colonial knowledge regimes have meant that the ascription of disability,
madness, fatness, or other forms of non-normativity doubly or multiply threatens
Indigenous peoples' access to the category of the human. This makes the claiming
of disability or non-normativity itself a privilege.
Colonization processes including genocide, war, and land theft along with the
imposition of Western laws and logics have been, and continue to be, powerful
determinants of debility and disability among Indigenous peoples globally (Puar 133; Grech and Soldatic 2-4). Profound inequities in all areas of social, political and
economic life have devastated Indigenous populations for generations across
formerly colonized and settler colonial nations, resulting in disproportionate rates of
impairment and early death (Allan and Smylie 4-12; Lovern 307). Impairments
range from psychic distresses caused by colonial trauma to physical impairments
related to body and land dispossession, war, unfettered capitalism, unsafe living
environments, and inadequate health care (Kelsey 197-203; Senier 215-219). In
Canada, Australia, the US, and other settler colonial nations, the dispossession of
Indigenous peoples from traditional territories and resources combined with
intentional exposure to communicable disease and environmental toxins due to
nuclear weapon testing, strip mining, chemical processing, and insecticide spraying
near Indigenous reserves/communities have led to high rates of cancers and
impairments; and colonizing processes such as the containment of Indigenous
peoples on reserves with poor living environments that are moreover cut off from
traditional food sources have resulted in a high prevalence of diabetes, heart
disease, and other chronic conditions in populations (Gilroy et al 1026-1027). As a
result, the rate of disabilities experienced by Indigenous people in Canada is twice
that of non-Indigenous people (British Columbia Aboriginal Network on Disability
2).
Indigenous people grapple with the same Western logics for understanding
disability as non-Indigenous people do. Yet the impacts of these have been
magnified for Indigenous peoples due to how notions of 'defectiveness' have been
imposed on Indigenous communities through colonization, especially via scientific
knowledge. For example, in settler nations such as Canada, administrators,
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physicians, and scientists, in the process of claiming the land and its peoples, have
and continue to frame Indigenous peoples as impaired and defective as a way to
justify colonial violence (Gilroy 1027). Since the invasion of Indigenous lands,
settler-elites have categorized Indigenous bodies and cultural practices in the same
ways they have cast disabled ones: as deficient relative to a Euro-white nondisabled mythical norm. Governments have mobilized these arguments to
rationalize continued violence against both groups including through forced
confinement (residential schools, asylums) and elimination (starvation, forced
assimilation, normalizing treatments, eugenics), practices that have had
devastating effects for Indigenous and non-normative lives, and for the
intergenerational transfer of culture (Kelly et al 12-33). To offer some examples, at
the height of the asylum era in the 1970s, Canada had 41 institutions for people
labelled with developmental disabilities (not including psychiatric institutions) with
many more institution-like programs for people with diverse disabilities run by
charities and municipalities (Brown and Radford 16); at the peak of the residential
school system in 1931, 80 Indian Residential Schools operated, with the last one
closing in 1996 (TRC 3). With respect to the custodial power and carceral control of
institutions in their work to eliminate 'problem' populations over the last 150 years
of nation-building, settler scholar Jay Dolmage examines how anti-immigration
eugenics rhetoric and policies have cast immigrants, especially racialized ones, as
"disabled upon arrival" (1). Along the same line of research, settler scholar Karen
Stote has tracked the sterilization of Indigenous peoples, demonstrating how they
were classified as mentally unfit as a precursor to sterilization (138-142).
In contrast to these logics, through our arts-based research, we are learning that
Indigenous peoples have had radically different ways of understanding nonnormativities. For instance, Dolleen Tisawii'ashii Manning (Anishinaabe), a lead
researcher on Bodies in Translation, argues that the deficiency-based concept of
disability was not part of an Anishinaabe worldview nor did it exist within
Anishinaabe communities prior to the imposition of Eurocentric colonizing
knowledges. This is also echoed in our conversations with Bodies in Translation
Wisdom Keeper, Anishinaabe Elder Mona Stonefish. Indigenous scholars such as
Penelope Kelsey (Seneca) (195-196), Lavonna Lovern (Cherokee) (309-315), and
Hollie Mackey (Cheyenne) (6-9) concur, arguing that for Indigenous peoples
dismantling ableism principally involves recuperating Indigenous ontologies that
may not perceive abnormality to exist, and creating systems that embrace
decolonized perspectives and enact inclusion/ reincorporation of bodies of
difference into the Indigenous body politic. For Kelsey, decolonizing disability
entails both resistance to colonial logics and reclamation/ revivification of
Indigenous modes, which reflect the "continuity of embodied kinship in the past,
present, and future" (195). This view of decolonization does not pivot on
individuals' overcoming disability (which values disability only to the extent that it
can be transcended) but instead focuses on the fight for "corporeal and cultural
survival" (196), a turn which foregrounds healing from colonial trauma and
genocide while affirming Indigenous disabled lives as integral to the social body.
Lovern argues that neo/colonial processes principally produce(d) disability and its
oppression globally. It follows that achieving disability justice for Indigenous
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peoples requires the decolonization of bodymind difference and the reclamation of
Indigenous thought systems, which assert that all "beings are created correctly and
that differences are a means of gathering knowledge both for the individual and for
the community" (314). Thus, as these scholars contend, revitalizing Indigenous
paradigms may be critical to dismantling colonial ableism within the Canadian
context and globally.
Given these fraught histories and their reverberating legacies, we approach the
Indigeneity, disability, and non-normativity nexus through a reciprocal exchange of
ideas, pedagogies, frameworks, and worldviews. Attending to activist art, we ask:
how do Indigenous ways of knowing bodymind difference disrupt settler-colonial
logics which inform the binary division between the categories of 'disability' and
'nondisability'—categories that seek to 'know' us, separate us, oppress us? And
how does disability studies' theorizing of ableism and of the ways both that ableism
is distributed and intersectionally is felt help us to understand, and resist, the
specific modes of oppression that Indigenous people who identify or are coded as
disabled confront? Dion Fletcher's artwork sits in this nexus. And since her art
practice is an embodied and embedded one, her thoughtful, nuanced exploration
brings new meaning to this coming-together—meaning that we think can only arise
through artistic practice and product. The meanings we generate from Dion
Fletcher's work may be related to how disability art generally and her work
specifically speaks in more than one dialect; written and spoken words feature
prominently in her work but Dion Fletcher also enunciates in other visceral and
vividly symbolic tongues. Body fluids and medical exams figure in her projects, as
do scavenger hunts, porcupine quills, and five-dollar bills. As we have witnessed
during exhibitions and performances, the multiple sensory registers along which
her work communicates enhances its aesthetics of accessibility and the objects
and actions with which she works carry yet-to-be and not-languagable metaphoric
and metonymic associations that evoke strong affective responses in audiences.
The (im)possibilities of communication and by extension, of relationship across
multiple differences emerge as a recurring theme in her work.
Relationship or Transaction? Methodological Notes on
Decolonizing Disability Arts
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Figure 1: Relationship or Transaction?, Vanessa Dion Fletcher, 2014 3
We begin with Dion Fletcher's Relationship or Transaction? 4 (2014) because it
teaches us something important about the primacy of relationality in Indigenous
ontologies and hence the kind of relationships we need to enter into, ethically,
politically and affectively, in order to engage with and learn from her work. She
(2014) describes her installation as follows: "This belt depicts two figures holding
hands in the center flanked by pentagons and the date 1764. [The] reproduction is
made using $5 bills as the quwahog (purple) beads and replica $5 bills as the
whelk (white) beads". She created an eight-foot-long by four-foot-wide replica of
the 1764 Western Great Lakes Covenant Chain Wampum Belt, known by
colonizers as the Treaty of Niagara between the British and 24 Indigenous Nations
(Borrows 155), using close to 2000 five-dollar Canadian bills (Figure 1). Dion
Fletcher rolled the 2000 blue Canadian five-dollar bills and white replica bills to look
like wampum beads, the cylindrical beads that the Lenape and other Indigenous
nations whose territories spanned the eastern seaboard of Turtle Island carved
from the dark purple and whitish parts of clam shells using stone drills and water.
She chose to remake this Wampum because the Treaty of Niagara was a formative
treaty in what would become Canada (Borrows 155) (Figure 3).
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Figure 2: Relationship or Transaction? Vanessa Dion Fletcher, 2014 5
Figure 3: Relationship or Transaction? Vanessa Dion Fletcher, 2014 6
When settler colonizers entered into agreements such as those encoded in the
Covenant Chain Wampum, they mistook the wampum beads as currency (Haas
80; Morcom 130-131). Dion Fletcher thus uses money in crafting the belt to jolt
people into thinking anew about the nature of the treaty relationship—not as a finite
transaction that begins and ends when people exchange money, lands, and
resources but rather as an open-ended agreement, in which people enter into living
relationships and commit to upholding certain values, rights, and responsibilities as
an integral part of maintaining those relationships. This resonates with Leanne
Simpson's description of her Nishnaabeg nation in relationally monistic terms, as
"the web of connections to each other, to the plant nations, the animal nations, the
rivers and lakes, the cosmos, and our neighboring Indigenous nations… an
ecology of intimacy… based on deep reciprocity, respect, noninterference, selfdetermination, and freedom" (8). In drawing attention to white settlers'
instrumentalist orientation to the world, Relationship or Transaction? gestures
toward settlers' consuming and extractive tendencies rooted in a white supremist
neoliberal, consumerist mindset that has, since contact, operated as a powerfully
destructive force in Indigenous-settler relations (Fowlie and Rice 1-33; Rice and
Mündel 2018 119-121). The work thus offers important commentary on a profound
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rub between settler and Indigenous worldviews: between those premised on
atomism, utilitarianism, and capitalism, which instrumentalize activities and things
according to their perceived usefulness and reduce almost all exchanges of the
resulting "goods and services'' to commodified transactions; and those premised on
relational holism or monism, which recognize the inherent interconnectedness and
value of all people and things and emphasize a shared responsibility for sustaining
good relations, with both the human and non-human worlds.
Encountering Dion Fletcher's work, white settlers cannot escape their failure to
uphold this and many other treaties, and their ensuing consumption of Indigenous
lands, people, ideas, and spiritualities. Ample historical evidence shows that
settlers verbally agreed to certain terms in treaties with Indigenous peoples while
writing documents with different key terms that advanced only settlers' interests,
thus betraying the trust of their Indigenous co-signers (Obomsawin). Within the
Canadian context, settler colonial governments continue to evade their treaty
obligations and while many settlers have become aware of the state's egregious
treatment of Indigenous peoples, few are willing to work through the complex
problematics of land repatriation that decolonization requires (Rice, Dion, Fowlie, &
Breen 3-5). Dion Fletcher's work teaches us that we have to decolonize disability
as a concept, and this necessarily means white settlers seeing themselves in and
working toward transforming relationships with Indigenous peoples, and disabled/
and non-disabled people from both groups, working, thinking and feeling across
difference in our engagements with each other and with art-making at the
intersections. Relationship or Transaction? reminds us of our embeddedness in a
broader historical, social, and material context, and white settlers especially of the
enduring fact that if we live on colonized land, here and elsewhere, we are in
relationship with Indigenous peoples, whether or not we know or acknowledge this
reality.
For us, following Wampum teachings means enacting accountable relationships in
our scholarly work, which means acknowledging our relationalities with Indigeneity,
disability, and non-normativity and of assuming responsibility for the well-being of
these relationships as living entities. To that end, I, Susan Dion, am a PotawatomiLenape scholar who has been working in the field of Indigenous education for more
than thirty years. My research focuses on decolonizing and realizing Indigenous
education, urban Indigenous education, and methods of developing respectful
relationships between Indigenous and non-Indigenous peoples. I work closely with
school boards and community organizations to address Indigenous issues. I, Carla
Rice, am a white settler living with mental difference who has an extended family of
Indigenous kin. Through disability arts research, I have come to know my nonnormativity experientially and relationally, and to experience the power of art to
interrupt ableist colonial ontologies and enact, if fleetingly, other possible worlds. I,
Eliza Chandler, come into disability arts and culture as a proud disabled woman
invested in giving new ontological meaning to disability. I believe that disability
artists can enact new worldly arrangements in which disability means and matters
differently. As I pursue this project, however, I think with Indigenous art and other
worldmaking projects and consider how my desire uncomfortably aligns with the
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colonial desire for a new world—a desire implicit in Indigenous genocide and its
effects. In this colonial context, I must ask myself, is my place to work towards a
'new world'? Or must I instead work in solidarity with Indigenous Elders, scholars,
and artists in service of re-establishing Indigenous sovereignty and of returning to
the past as we look forward to the meanings we might want disability and nonnormativity to hold?
In addition to these positionalities, two of us, Susan and Carla, are family, one
being mother and the other step-mother, and the third, Eliza, being a colleaguefriend to Dion Fletcher. We ask readers to consider how love, care, and
commitment in our varied relationships inform the analysis that follows and
consider how these bonds might strengthen our capacity to see and learn from her
work. To illustrate, when she was three years old, Vanessa articulated her
experiential understanding of disability, stating, "Mommy there are some boxes in
my brain that don't open." She was only three years old, yet her experience of
living in her body informed her understanding. While some might consider close
relationships between researcher-scholars and 'subject' to be detrimental, we work
from the position that strong relationships can have positive impacts on knowledge
production. Consider how our subjectivities and positionalities allow us to make
meaning of Dion Fletcher's work.
Undoing the Colonial Ordering of Things
Using a relational lens, we explore three of Dion Fletcher's more recent works:
Own Your Cervix (2017) mounted at the Tangled Art + Disability Gallery in Toronto,
a performance piece titled Offensive|Defensive (2017) at the Centre for
Contemporary Arts in Santa Fe, New Mexico, and a third performance, Finding
Language: A Words Scavenger Hunt (2019) developed during her time as the BIT
Artist-in-Residence. It is helpful to think with settler art historian Carla Taunton's
words, specifically "storytelling and embodied practices are essential components
of Indigenous ways of knowing and being" (34), as we think through what Dion
Fletcher's work might surface about the Indigeneity-disability nexus. Rather than
analyzing how these (and other) differences intersect (which assumes differences
are discrete, separable categories), we explore how they intrasect or, in keeping
with Indigenous and other processual ontologies, materialize in more emergent,
entangled, and embodied terms in Dion Fletcher's practice (Rice 537; Rice,
Jiménez, et al 185-187; Rice and Mündel 2019 216; Rice, Harrison and Friedman
416-417), and consider how they clarify one another and co-mingle in
indeterminate ways. Because Dion Fletcher's embodiment, and thus her embodied
practices, cannot be siphoned off into separate parts, we take up all her work, even
work that doesn't specifically address disability, as animating this nexus.
Own Your Cervix
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Figure 4: Colonial Comfort and Beading Works, works part of Vanessa Dion
Fletcher's Own Your Cervix exhibition, 2017 7
Own Your Cervix (2017) is a solo, multi-media exhibition that Dion Fletcher has
held in different venues. On her website, Dion Fletcher describes Own Your Cervix
as a project that
[U]ses porcupine quills, glass beads, damask patterns and menstrual
blood to consider how our bodies are defined physically and culturally.
A Western progress narrative often assumes an irrelevance of a
feminist practice, but we will never be done making meaning of our
gendered and cultured bodies. Furthermore, a feminist body practice is
far from irrelevant in current social and political contexts (para 1). 8
Dion Fletcher shared with us that putting this exhibition into a disability arts space,
namely Tangled Art + Disability Gallery in Toronto, Canada, helped it to find its
audience. In other spaces, audience members had read the work as derivative of
second-wave feminist preoccupations and focused mainly on its Indigenous
elements as a new, intriguing intervention into feminist art's exploration of body
politics. They especially commented on an arresting artifact that grounded the
show: a blood-stained cream-colored damask Victorian-style settee with real
porcupine quills stuck in and around a few bloody stains at one end of the piece
(Figure 2). Why a Victorian style sofa? What did its bloody stains and quills mean?
We might relate to the pleasing/menacing piece as a material object reminiscent of
the comforts of the Victorian home, focusing on what it might signify about colonialIndigenous gender relations—how it might stand in as a bloody reminder of the
ways that such 'comforts' were/are premised on the violent regulation, control, and
destruction of Indigenous women's bodies and of Indigenous families and nations.
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At Tangled, in contrast to other spaces, audiences became conscious of how
nuanced ideas about accessibility—about accessibility as political, as a practice, as
an aesthetic—were central to the show. For example, Dion Fletcher constructed an
examination 'room' in the gallery by suspending white curtains from ceiling to floor
so that she could invite visitors to sign up for artist facilitated self-examinations in
the privacy of a curtained-off space. Featured in the exam room was a low
examination table designed for ease of transfer for those using mobility devices
and for anyone who has difficulty hoisting themselves onto pelvic examination
tables (which typically are designed for the ease of physician, not of patient, use); a
low hung mirror that could be positioned so that sighted patrons might visually
access their orifices and non-visual patrons have these audio described if they
wanted; and variously sized speculums were available so that those with vaginas,
cervixes, and associated body parts could touch, handle, and use the technologies
to investigate and come to know their unique crevasses/openings. These elements
prompted visitors to consider how accessibility might be better understood as a
multifaceted concept—as always political, entangled with everyday practices,
implicated in design and aesthetics, and as such, as perhaps better conceived in
the plural, as accessibilities.
Following the tradition of disability justice activist Mia Mingus (2011), 9 Dion
Fletcher's orientation to accessibility elevates it from being strictly a logistic concern
into a political consideration of how entanglements of normative, medicalized, and
colonial spaces and practices invite some bodies in and exclude other bodies. With
Own Your Cervix, Dion Fletcher creates a world in which we can all get to know our
bodies, reclaim, even own our bodies, in a cripped space in which we are called
upon to think about the impacts of colonialism on Indigenous women's and trans
and Two-Spirit bodies. Dion Fletcher's work prompts us to wonder: What is the
relationship between accessibility, desire, and bodies? Why aren't women, trans,
and gender-fluid people able to easily access their cervixes, vulvas, and other sexcoded organs as sites which foster the coming together of sexual health,
autonomy, and pleasure? How might this lack of access adversely affect differentlylocated, and especially Indigenous disabled people? How might the meanings
given to body parts coded as female, disabled, or trans debilitate persons so coded
in a world that doesn't give us permission to access or know these
parts/processes? By locating Own Your Cervix in the space of a disability art
gallery, and therefore contextualizing it through the lens of disability art, a space
and politic familiar with questioning how we come to know our own and others'
bodies in particular ways, Dion Fletcher's installation was able to breathe new life
into old debates; here, bodies are "stolen and reclaimed" (Clare 359-360 ) not just
by medical authority, but in particular by how westernized medical authority is a
colonial tool, one that participates in patriarchal colonial theft.
In our conversations with visitors, those familiar with Indigenous histories and
cultures told us that they saw the row of seven embroidery rings hung on a crimson
wall, Beading Works, each featuring a beaded blood stain, as a celebration of
Indigenous womanhood. Some disabled and Indigenous visitors interpreted the
porcupine quills that pierced the Victorian sofa as signifying the imagined threat
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posed by Indigenous and disabled women's wombs to white ableist settler nationbuilding. In an article Dion Fletcher wrote about her show, she speaks of how her
entangled identities mark and surface in the settee piece:
I read this phrase that talked about the Victorian Era as being one of
'colonial comfort.' It just really resonated with me because those two
words don't at all go together for me, as an Indigenous person. There is
nothing comfortable about colonialism. So, I thought about whose
comfort we are speaking to and then I also thought about the ways that
Indigenous peoples and disabled people continue to persist against
these kinds of 'comfortable' norms. And I see the menstrual blood as a
kind of representation of the possibility of fertility, and the possibility of
future generations of Indigenous children, as bleeding onto the couch,
in a sense 'staining' it. That was the first alteration that I made to the
sattee 10 after I had it upholstered in the white fabric. (168)
In Own Your Cervix, the idea of coming to 'know your cervix' takes on multiple
meanings. We might interpret the invitation to know your cervix as an invitation to
know yourself, to know your gender, to know your Indigeneity, to know your
disability. We might consider Dion Fletcher's re-invigoration of second-wave
feminist body politics that inspired self-examination and activist art focused on
gendered/sexed embodiment as capturing what is critical at this intersectional, that
is, cripped and decolonial Indigenous feminist moment: as a means of giving
herself (and us) permission to access and come to know her (and our) differences,
to affirm and honor difference in its many symbolic and material forms.
Offensive|Defensive
Figure 5: Offensive|Defensive , Vanessa Dion Fletcher, 2017 11
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We begin our discussion of Offensive|Defensive (2017) with Dion Fletcher's artist
statement about the performance piece that was part of the 'Cry'in Out Loud' group
exhibition in Santa Fe:
Porcupine quills were used before the introduction of glass beads, dyed
and embroidered onto clothing, moccasins, etc. To be used, the quills
needed to be soaked and flattened; in the old days women would soak
them in their mouths and pull them out through their teeth to flatten
them. I wanted to feel the same thing my people did years ago. I can't
speak my language, but I can fill my mouth with quills, like words I'll
never know. I hold them on my tongue, wanting to choke a little out of
sadness, but not letting myself. Placing the quills in my mouth, I inhibit
my ability to speak. Approaching people one by one maintaining eye
contact I slowly remove the quill from my mouth and offer it to them.
This intimate gesture builds a temporary connection between us. I
repeat this gesture cycling through the audience, replacing the quills in
my mouth as I go. 'Cry'in Out Loud' in English is inherently colonial; with
little access to my Indigenous languages, I sometimes find power in
silence. (para. 2)
Looking at the images from this performance we are struck by two moments: first is
the moment of exchange and second is the moment of holding. The moment of
exchange occurs when Dion Fletcher takes a quill from her mouth and hands it to
an audience member. The quill holds remnants of her saliva, her DNA; it is sharp
and possibly hazardous. Dion Fletcher describes this experience as an "intimate
gesture [that] builds a temporary connection" (para. 2). She offers the quill and
people accept it. This moment of exchange requires trust as it is imbued with her
relationship with the quill. For Dion Fletcher, each quill is precious, signifying both
the solace it provides "choking on the words I'll never know" and connection
"feeling what my ancestors felt" (para. 1). For us, this is a moment of compelling
implication. Having accepted the offer, audience members are now in a relationship
with the quill, with Dion Fletcher, and with the relationship that exists between the
two. Although it may only last for a moment, for that moment, audience members
experience implication.
The second moment of particular interest is the moment of holding. As a witness to
this performance, I, Susan, see the discomfort and confusion audience members
experience when they realize they are left holding the quill, and they do not know
what to do with it. They know something about the quill: it has been in Dion
Fletcher's mouth. It seems precious, somehow important, yet people are left feeling
confusion and discomfort. I think that because Dion Fletcher has challenges with
written communication, she creates these encounters where she's communicating
without language. By not using language—by operating outside of a recognizable
narrative—she creates the possibility for audience members to step outside of their
dominant narratives. Possibility exists in that rupture because she structures the
moment of communication so they can't rely on the taken-for-granted because their
taken-for-granted isn't her taken for granted.
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In my, Susan's, most hopeful reading of this performance, I like to think that
audience members leave with an understanding of themselves in relationship with
a gendered, colonized, ablest society. In my less-hopeful moments, I think at the
very least they leave somewhat confused, disrupted, with remnants of my child's
DNA on a porcupine quill in the bottom of their pocket. One day when they least
expect it, they will reach into the pocket and the spirit of the porcupine, the spirit of
our ancestors will poke their fingertip and a tiny pain felt on the tip of the finger will
make them think again about the woman who finds comfort in silence and what it
means to be implicated in relationship.
Finding Language: A Word Scavenger Hunt
Figure 6: Finding Language: A Word Scavenger Hunt, Vanessa Dion Fletcher,
2019 12
The final piece we engage is Dion Fletcher's performance Finding Language: A
Word Scavenger Hunt (2019), which she developed as part of her BIT Artist-inResidence and performed at the Cripping the Arts symposium 13. Finding
Language animates Dion Fletcher's multi-layered relationship with spoken and
written languages as a Potawatomi-Lenape artist who is seeking out her traditional
and sleeping Lenape language (called 'Delaware' by colonizers), and as someone
who identifies as learning disabled. This performance begins with audio of her
grandmother's voice filling the room. The voice begins by telling family stories, in a
mix of Lenape (?) and English, from the past and then goes on to describe the
process of getting older, becoming disabled, becoming dependent. Overlaid is
audio of a little girl who is softly singing in what might be a traditional Indigenous
language, perhaps in Lenape. As the audio ends, Dion Fletcher turns her focus on
the Delaware-English/English-Delaware dictionary she is holding in her hand. As
she begins to read aloud from this dictionary, it becomes clear that it offers
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distinctly colonial translations of the Lenape language; this tool does not allow her
access to her Lenape language directly.
Figure 7: Finding Language: A Word Scavenger Hunt, Vanessa Dion Fletcher,
2019 14
With dictionary in hand, she sets out on a 'words scavenger hunt' around the room.
She roams through the audience in the large room in which we are gathered in
search of written words. As Dion Fletcher finds English words, which are plentiful,
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she translates them into the Lenape language using her dictionary. And the
translations she finds are surprising, contentious, revealing. Take, for example, her
discovery of a tote bag with multiple spellings of the English word 'women' 'wimmin', 'womin', 'wimmyn.' Dion Fletcher slowly reads out these different
spellings of the word phonetically and then turns to her dictionary. As she is
thumbing her way through the English side of the dictionary in order to find the
Delaware translation, she reads aloud other surrounding words: "White, white
snow, be white, witch, hm." Tension rises as the weight of colonialism's
disappearance of Indigenous language fills the room. She finds the word 'women'
and reads aloud its related forms: "Indian woman, Delaware woman—that's me!—
white woman, schoolteacher, bad woman, good-for-nothing woman, woman with
poor character […] Old woman, fat woman, be a bad woman, be a good-for-nothing
woman, older single woman, hm." Tension rises again.
At this point in the performance, unless you know Dion Fletcher and/or her work,
you might (rightly) read this work as making public a young, urban, Indigenous
person's quest for her Indigenous language on stolen land, a language that has
been violently disappeared by colonialism through the residential school system
and other forms of cultural genocide, a language that is now fragmentally
accessible through a colonial lexicon. But as Dion Fletcher performs her scavenger
hunt, she invites the audience into part of her experience of this performance,
telling us: "I like to listen. I don't actually like reading, I'm not sure why I chose a
performance where I'm reading the dictionary but—I guess we all do things we
don't like to do sometimes", adding another layer of complexity. Reading Dion
Fletcher's artist statement 15 for this work reveals another layer of how an
intermingling of identities and experiences informs her work. She writes, "I've lost
my words. Some of them are stuck in little boxes in my brain—drawers that won't
open. Some of them are in the mouths of my Indigenous ancestors" (para. 1).
Throughout this performance, Dion Fletcher tries to find her Lenape language. She
easily, though perhaps uncomfortably, has unfettered access to English, the
language of colonization, and the written word, the medium through which her
learning disability surfaces, as this performance demonstrates. She can hardly take
a step before encountering another written word, another English word. But to
access the language and oral tradition of her people requires her, at least in part, to
use a colonial tool, the English-Delaware dictionary. And within it, she can hardly
take a step before encountering colonial racism, misogyny, fatphobia, and ableism
within its translation—or perhaps interpretation. Dion Fletcher positions this work
as streaming from many of her experiences, including her experiences of disability.
As she writes in her artist statement, "This work stems from my experience of
language, colonization, and disability, however, these reflections or investigations
are relevant to many people" (para. 1). However, she does not use medicalized
terms or settler-colonial logic when describing her disability and the way that it
impacts how she accesses language. Instead, she describes her experience with
words and written languages as "loosing words" through multiple and perhaps
inter-related processes of words stuck in shut boxes in her head and words stuck in
the mouths of her Indigenous ancestors. Her work prompts us to consider, in a way
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that only art can do, that the stuck-ness of words in her head and words on her
ancestor's tongues as being part of the same process. Colonialism has
disappeared Lenape, an oral language, Dion Fletcher's Indigenous language, and
in the wake of this disappearance, and in line with colonial rule, English, a written
language, rose as the dominant language. Finding Language addresses the ways
that she has lost her language through the imposition of settler-colonialism and
struggles to orient to the language of settler-colonialism, a written language,
because of the ways she delivers and receives language.
Finding Language presents audiences with compelling questions and insights
about the meanings of disability in Indigenous and non-Indigenous contexts. Dion
Fletcher provokes us to consider how the meaning of her learning disability, which
emerges as she encounters the written word, is impacted by the context of her
original oral culture having been disappeared through colonial genocide. If we
consider how disability is experienced by and through colonialism, as it does in
Dion Fletcher's case, how does this change our understanding of ontologies of
bodymind differences? Moreover, Dion Fletcher is producing her work in relation to
disability art. In so doing, how does Dion Fletcher invite us to think through
recuperating her Lenape culture with and through her experience with her disability,
which is more than the experience of ableism and inaccessibility but, instead, vital
to her experience of the world. This reminds us of Kelsey's framing of decolonizing
as the "continuity of embodied kinship in the past, present, and future" (195), as
mentioned above. In bringing together these threads, Dion Fletcher is identifying
the implicatedness of colonization and colonial ways of knowing in producing nonnormativity while maintaining the value of disability within, and Kelsey writes, the
fight for "corporeal and cultural survival" (196). In doing so, Dion Fletcher's art
disrupts colonial understandings of bodymind difference and leads to decolonizing
understandings of disability and its phenomenological meaning in and of the world.
To thicken our analysis, we return to Simpson who writes about the Nishnaabeg
creation story and specifically about her and her children's experience of hearing
that story.
Elders teach us that this most beautiful, perfect lovely being was not
just any 'First Person,' but that it was me, or you. We are taught to
insert ourselves into the story. Gzhwe Mnidoo created the most
beautiful, perfect person possible and that most beautiful, perfect
person was me, Betasamosake. … Every time I tell my children this
story, or they hear this part of it in ceremony, their faces light up. It reaffirms that they are good and beautiful and perfect the way they are.
(41)
The story teaches us that within Nishnaabeg thought we are accepted without
judgement; further, by inserting ourselves into the story we accept responsibilities
to our human and nonhuman relations "according to our own gifts, abilities and
affiliations" (41). Unconditional acceptance of each of us is balanced, in turn, by our
unconditional acceptance of our responsibilities to others and all of creation. Dion
Fletcher can only dream of this place as she, and we, live in a colonized world
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where the need to categorize, judge, and create hierarchies of value are ever
present. None of us can know how she or any of us would experience what we
currently call disability in a decolonized world because that world does not exist.
Dion Fletcher willingly puts her life/self under a microscope—or speculum—inviting
viewers to look/learn from her experience as Lenape-xkwe (woman) living with
disability in an ableist colonized world. Her art invites us to see the constructed
barriers—in language, knowledge systems, values, environments, and beyond—
that diminish her human-ness and her capacities to participate fully, to fulfill her
responsibilities. Her art is thus an encounter with the hard work required of
Indigenous (and non-Indigenous) peoples to make old/new sense of disability in a
colonized world that debilitates Indigenous bodies; in so doing her work creates the
potential for us to learn anew with her. We must pay attention to the ways in which
the world we have inherited/constructed impedes our embrace of difference as it
impedes our access to expanded possibilities to fulfill our responsibilities.
Conclusion
In Bodies in Translation, we are led by and think with art that brings together
Indigeneity, disability, and non-normativity in a way that breathes new meaning into
this nexus. In many ways, ours is an impossible project; it confounds in how we
seek to understand an intersection—disability and Indigeneity—that we cannot
rightly or ethically know. Given the number of nations across Turtle Island with their
own thought systems, languages, and cultural practices, it is likely that Indigenous
peoples, even amongst themselves, carried diverse understandings of complexly
embodied people and of what constituted illness, impairment, and wellbeing. This
fact overlaid with five centuries of colonial cultural, social, and physical genocide
means that accessing the worldviews of Indigenous peoples in all their complexity
and diversity remains an ongoing, challenging project.
As we inhabit the seemingly impossible space of desiring to know the unknowable,
we are once again presented with an opportunity to be led by activist art as we are
developing new understandings, a practice that is unwaveringly at the centre of
Bodies in Translation. In this paper, we explore and learn from the work of Dion
Fletcher in our pursuit of bringing Indigenous and disability frameworks together.
We do this in order to think about what might be created when these categories are
understood and approached as contiguous. When we attend to the three works
discussed in this paper—Own Your Cervix, Offensive/Defensive, and Finding
Language—both as individual works and a body of works, we arrive at a few
thoughts. First, Dion Fletcher's work helps us move beyond the binary division
between body and theory through the embodied practice of her work (Taunton 34),
revealing the body as a primary site for knowing embodied difference. Second, this
work brings an Indigenous ontological framing of bodymind difference, moving
away from the deficit model of disability. Third, Dion Fletcher's work exemplifies
how our bodily knowledges are stolen from us by colonial (including medical)
regimes in broader projects of subjugation and how reclaiming knowledge of our
bodies through our own embodied sense contributes to the broader project of
resistance and Indigenous resurgence. Furthermore, the work is demonstrative of
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how Indigenous artists, such as Dion Fletcher, who address disability and nonnormativity in their work productively teach us to question our terms as ontological
facts, open to old/new concepts of disability that help us to recuperate Indigenous
pasts, redress debilitating todays in order to enact decolonized futures for
bodymind differences, and strive to practice relationality as a way of doing justice.
All of this makes her practice a striking example of activist art that contributes to
decolonizing understandings of disability and non-normativity.
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Endnotes
1. We wish to thank the anonymous reviewers whose feedback helped us to
attune and strengthen our argument presented in this paper. We
acknowledge Bodies in Translation: Activist Art, Technology, and Access to
Life, a research project funded by the Social Sciences and Humanities
Research Council of Canada (#895-2016-1024), the research project that
supports our collective work. We are also indebted to Vanessa Dion Fletcher
for her art that inspires our thinking and engages us in the work of
decolonizing disability art and the ontology of disability itself.
Return to Text
2. We use the term "E/elder" to include both Indigenous Elders and NonIndigenous elders, recognizing that in Anglo-Western cultures the term
senior, for some communities, has pejorative connotations and that in
Indigenous cultures, "Elder" is a respected title bestowed not as a result of
age but rather as a result of one's knowledge and actions. Indigenous Elders
are recognized knowledge keepers who have earned the respect of their
communities and nations through demonstrating wisdom, harmony and
balance in their actions and their teachings.
Return to Text
3. Image Description: A close up of Vanessa Dion Fletcher's piece Relationship
or Translation?. The image features five rows of blue and white Canadian
five-dollar bills that are rolled and packed closely together in a style
reminiscent of a Wampum Belt.
Return to Text
4. https://www.dionfletcher.com/relationship-or-transcation
Return to Text
5. Image Description: An image of Vanessa Dion Fletcher's artwork,
Relationship or Transaction? Dion Fletcher kneels in a gallery in front of a
small crowd of people. The is lifting up a gold-colored blanket on top of which
is the large wampum belt, in a blue and white pattern, which she wove using
rolled Canadian five-dollar bills.
Return to Text
6. Image Description: An image of Vanessa Dion Fletcher's artwork,
Relationship or Transaction? A large wampum belt woven with white
patterning on a blue background. Rather than being made of wampum beads,
the blue parts of the belt are comprised of rolled Canadian five-dollar bills.
Return to Text
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7. Image description: An image of Vanessa Dion Fletcher's artwork, Own Your
Cervix. In this image, a couch stands in front of a red wall in a gallery space.
The couch is ornate, covered in white damask with brown wood detailing.
Clusters of porcupine quills stick out of the couch, arranged mostly on the
sides and back of the couch. On the wall behind the couch, seven fabric
circles of varying sizes of the same white damask fabric are arranged in a
line; each circle has a streak of blood on it.
Michelle Peek Photography courtesy of Bodies in Translation: Activist Art,
Technology & Access to Life, Re•Vision: The Centre for Art & Social Justice
at the University of Guelph.
Return to Text
8. https://www.dionfletcher.com/project-07
Return to Text
9. See: https://leavingevidence.wordpress.com/2011/02/12/changing-theframework-disability-justice/
Return to Text
10. The ways that Dion Fletcher spells is part of her art. We honour her modes of
expression and believe that to do otherwise would entail an act of epistemic
violence. As she has written: "As an Indigenous woman, I learned the ways
that language was used to alienate and oppress my family, my ancestors,
and the ways it continues to oppress me, both as a cultural experience and a
disabled experience." (2018, p iii)
Return to Text
11. Dion Fletcher, an Indigenous woman, holds open her mouth full of porcupine
quills. She is adding another quill to the pile.
Return to Text
12. Image description: An image of Vanessa Dion Fletcher's performance,
Finding Language: A Word Scavenger Hunt. In this image, Dion Fletcher, an
Indigenous woman, is beginning her performance by lying on her back on a
low stage. She is wearing black shoes, gold-colored leggings, a black jacket,
and glasses. Her hands are placed on her abdomen. Michelle Peek
Photography courtesy of Bodies in Translation: Activist Art, Technology &
Access to Life, Re•Vision: The Centre for Art & Social Justice at the
University of Guelph.
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13. Co-sponsored by BIT, Cripping the Arts was a symposium and performing
arts festival which explored contemporary issues related to the cultivation of
disability, Deaf, and mad arts. The relationship between Indigenous and
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disability arts—a relationship skillfully explored in Dion Fletcher's work—was
one of the central themes of this symposium and festival.
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14. Image description: An image of Vanessa Dion Fletcher's performance,
Finding Language: A Word Scavenger Hunt. In this image, Dion Fletcher,
wearing black shoes, gold-colored leggings, a black jacket, and glasses,
crotches down in front of an audience member who is holding out a tote bag.
There are multiple spellings of the word women on this bag. With one hand,
Dion Fletcher is pointing to the spelling of the English word that is in focus in
this photograph: wommin. In her other arm, Vanessa is holding her EnglishDelaware dictionary. Her cellphone, which she is using to capture the words
she finds and projects them onto a large screen in front of the audience, is
strapped around her neck. Vanessa is looking at the words on the tote bag
through her cellphone.
Michelle Peek Photography courtesy of Bodies in Translation: Activist Art,
Technology & Access to Life, Re•Vision: The Centre for Art & Social Justice
at the University of Guelph.
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15. See www.dionfletcher.com
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Copyright (c) 2021 Carla Rice, Susan D. Dion, Eliza Chandler
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ISSN: 2159-8371 (Online); 1041-5718 (Print)
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