Occupational Therapy & Lower Limb Amputee
Occupational Therapy & Lower Limb Amputee
Occupational Therapy & Lower Limb Amputee
Evidence-based guidelines
This publication is an evidence-based resource to support
occupational therapists working with adults with acquired unilateral
or bilateral lower limb amputation. It provides best practice guidance
for those occupational therapists currently working in this specialism,
as well as offering a useful reference document for students and
newly qualified occupational therapists. It can also be used to inform
service users, carers and other professionals working with people
with lower limb amputation about the roles and responsibilities of the
occupational therapist in this clinical area.
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Contents
Acknowledgments
Foreword by Professor Rajiv S. Hanspal, FRCP, FRCS
Foreword by Sam Gallop CBE
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v
vi
1
1.1
1.2
1.3
1.4
1.5
Rationale
The national population
Background
The development process
Aims of the evidence-based guidelines
Overview of the evidence-based guidelines document
1
1
1
1
2
3
2
2.1
2.2
2.3
2.4
2.5
2.6
Methodology
Evidence-based guidelines question
Literature search
Literature search findings
Critical appraisal of articles
Research priorities
Peer reviewers and stakeholders
4
4
4
5
5
7
7
4
4.1
4.2
4.3
4.4
4.5
4.6
4.7
4.8
11
11
13
14
16
17
22
23
24
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31
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34
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Acknowledgments
With thanks to:
Brunel University, for funding this project under the Knowledge Transfer Scheme
(www.brunel.ac.uk/research/rsdo/collaborative/ktp) and for the time and expert
academic support provided by Dr Anita Atwal and Dr Georgia Spiliotopoulou. It is
recognised that this expertise and financial support have been essential to the
publication of these guidelines.
The College of Occupational Therapists, particularly Julia Roberts, Anna Pettican and
Mandy Sainty for their support, guidance and enthusiasm.
The College of Occupational Therapists Practice Publications Group for reviewing the
document and providing valuable feedback.
The peer reviewers Dr Shelley Crawford and Dr Avril Drummond and the stakeholders
(see Appendix 6).
The preliminary readers for contributing to initially screening identified articles and to
decide their relevance to the guidelines question.
Anne Ewing for her inspiration and motivation to begin the project.
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Foreword
I am delighted to see the publication of these evidence-based guidelines for
occupational therapists in the rehabilitation of people with lower limb loss. The role of
occupational therapists in upper limb rehabilitation and prosthetics is well recognised,
but I feel that their important role in rehabilitation for lower limb loss has often been
underestimated. People too often perceive rehabilitation as simply the provision of a
prosthesis and gait re-education. The patient or client who has lost a lower limb has his
or her whole world changed, physically and emotionally, at home, work and leisure.
Holistic rehabilitation must include addressing all of these aspects. Occupational
therapists often find themselves addressing important needs that are essential to return
the individual to as optimal a participant in the new environment as may be practical.
This document should correct the misconceptions and, I hope, further improve the
standards and support appropriate allocation of resources where necessary.
The fact that the recommendations are evidence-based should give greater validity to
the document, especially to the scientifically oriented. However, in the field of
rehabilitation, lack of evidence should not limit the practice when trying to provide the
most appropriate service to the service user. For them, personal need to fulfil their goals
remains paramount.
Standard methodology for development of guidelines has been used and the process
followed has been described. The report completed a literature search and identified
publications specifically relevant to occupational therapists. It presents its findings and
analysis in a useful structure, including a critique of the articles reviewed, and is thus a
useful summary for the professional. The evidence-based review and recommendations
are presented in eight sections, analysed and supported by relevant references.
Scientific evidence helps guide the decision-making process between the different
possible options in clinical management, but it does not replace common sense, which
may override the decisions in provision of basic care and needs. Occupational therapists
provide an essential component of rehabilitation for people with lower limb loss to
complete a holistic package. This report will help and guide them to continue striving to
provide the best for all their clients. I wish them all success.
Professor Rajiv S. Hanspal, FRCP, FRCS
Consultant in Rehabilitation Medicine, Royal National Orthopaedic Hospital
Past Chair, International Society of Prosthetics and Orthotics (ISPO), UK,
and currently serving on the ISPO Protocol Committee
Past President, British Society of Rehabilitation Medicine
and of the Amputee Medical Rehabilitation Society
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Foreword
Why do I feel privileged to be invited to write this foreword? Because as a double
amputee, with third-degree burns, crush spinal fracture and other injuries, I and my
family have good reasons to be grateful over many years for the caring skills of
occupational therapists in helping to keep me mobile and independent.
There are many adults in the UK with lower limb amputations. Implementation of these
evidence-based guidelines will significantly help all of them, through the work of
occupational therapists as members of multidisciplinary teams, concerned with the
physical, psychological, social, spiritual and environmental needs of each individual.
There is rightly an emphasis on quality of life in which people with lower limb
amputations, family members and carers are enabled to play key roles in identifying the
most important activities of their lives in a spirit of real consultation. Concern with the
prevention of falls will have a practical impact on health, and on keeping people safe in
the community, in their homes and out of hospital. There is also a welcome
understanding of the full importance of body image to the mind and the soul.
Occupational therapists work in many settings, and these are all embraced.
Warm congratulations are due to the team of occupational therapists with their
colleagues in Brunel University for the rigorous and high academic quality of their
research and the clarity of their presentation. They have filled a significant gap in the
literature.
Occupational therapy has a real effect on the rehabilitation and quality of life for
persons with lower limb amputations. These evidence-based guidelines are a further
assurance of that pledge.
I conclude by wishing occupational therapists everywhere continued success and the
resources they need.
Sam Gallop CBE
Advocate Associate, Parliamentary Limb Loss Group
Chair, McIndoes RAF Medical Guinea Pig Club
Chair, emPOWER Charities Consortium
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Rationale
1.2 Background
Occupational therapists have a role to play at all stages of rehabilitation of people with
lower limb amputations. They will be working as part of a multidisciplinary team and
within various settings throughout the persons life pre-amputation, post-amputation,
pre-prosthetic and post-prosthetic phases. The therapists aim is to maintain or restore
the persons functional status with or without the use of a prosthesis or other
equipment. Thus, there is a need to produce guidance to clearly indicate how, why and
when occupational therapy can improve rehabilitation and quality of life for people
with lower limb amputations. Likewise, there is a need to provide an up-to-date,
evidence-based, profession-specific document that details stages of the occupational
therapy rehabilitation process.
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Rationale
Practice Research. As part of this collaboration a 3-day critical appraisal skills workshop
was provided by Dr Anita Atwal and Dr Georgia Spiliotopoulou of Brunel University. Dr
Atwal and Dr Spiliotopoulou continued to provide academic support and guidance
throughout the project under the Knowledge Transfer Scheme. Brunel University is an
active supporter of knowledge transfer and 15,000 was secured to fund the groups
work. Knowledge transfer is a process that facilitates collaboration and active working
between academics and practitioners.
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Rationale
prosthetic use;
assessment tools and outcome measures;
cognition;
work; and
leisure and recreation.
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Methodology
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Methodology
Once the literature search was completed, the evidence had to be linked directly or
indirectly to occupational therapy practice within the UK. The group of experts in the
field embarked on determining the relevance and importance of the research evidence
to their own practice.
The expert group was asked to consider the following questions:
Is there a direct reference to occupational therapy?
Is there reference to interventions/outcomes or assessments that are of relevance to
occupational therapy?
Is this paper of relevance/importance to occupational therapy practice?
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Methodology
Evidence-based recommendations
At a further stage, the group and academic advisors met to look at the appraised
research evidence. This stage involved the whole group discussing the evidence and
reaching agreement in order to produce relevant evidence-based recommendations for
occupational therapy practice. The group worked together to identify pertinent points
from the literature and easily agreed on the statements generated. The evidence-based
recommendations were categorised into the following sections: functional rehabilitation,
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Methodology
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3
Section
Evidence
level/quality
score
Functional
rehabilitation
V/3
V/4
III-2/5
V/7
Environment
V/2
Psychology
V/6, V/4
IV/4, V/4,
V/6
V/5
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Summary of evidence-based
recommendations
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Section
Prosthetic use
Assessment
tools and
outcome
measures
Evidence
level/quality
score
V/5
V/3
V/3
V/6
V/6
V/7
V/7
V/6
V/8
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Section
Evidence
level/quality
score
V/6
V/6, V/4
V/4
V/6, V/4
V/4
Work
V/5
Leisure and
recreation
V/4
Cognition
(same as
Assessment
tools and
outcome
measures 8
and 9)
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(Houghton et al 1992). One study found that older adults with lower limb amputation
used assistive devices with greater frequency than those with either a stroke or
orthopaedic deficit (Gitlin et al 1996). Indeed, Jones et al (1993) suggest that home
modifications and quality of rehabilitation may be an important factor in people
maintaining their independence at home, although no data to support this were
offered.
Evidence
There are currently no primary research studies that have supported the efficacy of
occupational therapy rehabilitation with people with lower limb amputations.
Although there is a lack of evidence, the occupational therapy role in this area is valued
and well recognised. It is important that occupational therapists promote rehabilitation
to ensure people with an amputation achieve their greatest level of independence.
Greive and Lankhorst (1996) concluded that in most service users, functional abilities
decrease after lower limb amputation, and age seems to be a significant factor related
to functional outcome. One study examined the time taken to achieve specific
functional milestones (Ham et al 1994). This study indicated that service users achieved
bed mobility 12 weeks post-amputation; independence in upper body dressing within
4 weeks; and independence in lower body dressing within 5 weeks. It is important that
occupational therapists enable people who have had a new amputation to achieve their
greatest level of independence. The data from this study could be used to formulate an
integrated care pathway that records rehabilitation milestones. The milestones could be
useful for predicting the length of stay necessary in order to achieve functional
independence.
A Serbian study of older people with vascular disease and unilateral amputations
examined pain characteristics, functional status, social function and living conditions
(urovic et al 2007). Most participants in this study achieved significant functional
improvement and reduction of pain, in spite of their social dysfunction, the absence of
sociomedical support and inadequacy of the conditions of habitation. However, it is not
clear whether even greater improvement could have resulted if occupational therapy
had been included in rehabilitation.
Treatment approaches and outcomes will differ between prosthetic and non-prosthetic
users, with age and functional ability before amputation being instrumental (Collin et al
1992). White (1992) found that service users reported positive benefits using stump
boards; both therapists and users perceived stump boards as important for comfort and
protecting the stump. Therapists prescribed stump boards to prevent contractures and
control oedema. A study by Lachman (1993) found that people with rheumatoid
arthritis and a lower limb amputation were more likely to use an electric wheelchair
compared with those who had a lower limb amputation but did not have rheumatoid
arthritis. Beekman and Axtell (1987) found that more than half of people who wore
prostheses used their wheelchairs most of the time. These findings are discussed further
in Section 4.4.
It is essential that the reasons for not wearing prostheses are determined and each
individuals preference is taken into account during this process. Bilodeau et al (2000)
studied factors such as physical and mental health, rehabilitation, physical
independence and satisfaction with the prosthesis to understand why people who had
an amputation used or did not use their prosthesis. The study found that prosthetic use
was significantly related to the service users physical independence, better cognition,
younger age and satisfaction with the prosthesis. The frequency of occupational
therapy sessions was also statistically significant in relation to prosthetic use.
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A growing body of literature highlights the importance of falls management for people
with lower limb amputations. One study found that 20 per cent of service users are
likely to have a fall following amputation. Eighteen per cent of these resulted in injury,
and most occurred between the times of 07:00 and 15:00 (Pauley et al 2006). Another
study found that falls among service users with lower limb amputations are prevalent
(58 per cent of service users with unilateral amputations and 27 per cent with bilateral
amputations) (Kulkarni et al 1996). The largest proportion of falls (48 per cent) were
reported as intrinsically related, 22 per cent were thought to be related to
environmental reasons, 12 per cent to the prosthesis and 18 per cent to more than one
factor. Gooday and Hunter (2004) found that 32 per cent had falls; these service users
were significantly older than those who did not fall. Miller and Deathe (2004)
considered the effect of fear of falling in the prosthetic user population; they found
that asking service users about fear of falling would provide a clinician with a quick
indicator of whether or not the service user is experiencing reduced balance confidence.
Effective falls programmes are those that are multidisciplinary and are created to
customise falls intervention for each service user deemed to be at risk of falling (Dyer et
al 2008). Moreover, it is evident that people with lower limb amputation may value
being taught how to get up from a fall. Kulkarni et al (1996) found that 25 per cent of
those falling remembered being given instructions on how to get up from a fall.
Evidence-based recommendations
1.
2.
It is recommended that stump boards are provided for people with transtibial
amputations (White 1992).
3.
4.
Occupational therapists need to identify falls risk factors and provide appropriate
individual interventions in collaboration with the multidisciplinary team (Kulkarni
et al 1996, Miller et al 2001, Gooday and Hunter 2004, Miller and Deathe 2004,
Pauley et al 2006, Dyer et al 2008).
5.
Frequency of occupational therapy sessions along with the service users physical
independence, better cognition, younger age and satisfaction with the prosthesis
are significantly related to prosthetic use (Bilodeau et al 2000).
4.2 Environment
Introduction
The environmental needs of the individual following lower limb amputation can change
throughout their rehabilitation. This can vary from initial wheelchair use to
independent prosthetic use. Campbell and Ridler (1996) stated that occupational
therapists provide valuable insight into a service users home situation and
circumstances and may predict potential problems after discharge. A study by Greive
and Lankhorst (1996) found that with increasing age, functional outcomes decreased
following lower limb amputation.
Diabetes neuropathy and peripheral vascular disease of the lower limbs can lead to
amputation. Diabetes as a cause of amputation currently accounts for almost a third of
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all referrals to prosthetics centres. Dysvascularity is the cause for 70 per cent of
amputations. Over half of all people who have had an amputation referred to
prosthetics centres are aged over 65 years, and more than a quarter are aged 75 years
and over (Information Services Division NHS Scotland 2009). These older service users
may have co-morbidities that indicate long-term use of a wheelchair.
For the individual with a lower limb amputation, providing an accessible environment is
key to promoting independence at home and at work (Bruins et al 2003, Campbell and
Ridler 1996, Schoppen 2001b, 2002, Van de Ven 1981). When rehabilitating people with
lower limb amputations, occupational therapy may involve assessing, adapting and
modifying the home or other external environments in order to facilitate participation
in occupation. Pernot et al (1997) suggest that independence in activities of daily living
was a key factor in predicting successful return home.
Evidence
No primary research has been conducted by occupational therapists in this area,
although Jones et al (1993) suggest that home modifications and quality of
rehabilitation may be an important factor in people maintaining their independence at
home. However, this study did not offer data to support this suggestion. Collin et al
(1992) found that partial walkers had lower kitchen and domestic activity scores, which
were due to a lack of environmental modifications for wheelchair use.
The occupational therapist needs to consider a range of factors when assessing for any
environmental adaptation. Collin et al (1992) advise that for older adults following
lower limb amputation, the occupational therapist should consider wheelchair use, with
environmental modification aimed at enhancing function.
Evidence-based recommendations
1.
Occupational therapy with older adults who have had an amputation due to
peripheral vascular disease or diabetes mellitus should enhance function through
environmental modification appropriate for wheelchair use (Collin et al 1992).
4.3 Psychology
Introduction
Psychology is the study of the mind and soul and can involve self-concept. Self-concept
can be subdivided into identity, body image, self-esteem and self-awareness. Lower limb
amputation confronts the individual with numerous physical and psychosocial threats
and challenges, including alterations in self-concept, physical dysfunction and pain,
changes in employment/occupation status and lifestyle, and disruptions to valued
activities (Rybarczyk et al 2000, Horgan and MacLachlan 2004).
Occupational therapists use psychological theories to underpin their interventions when
promoting adaptation or integration for the individual. Interventions must address both
the physical aspects of amputation and the psychosocial adjustment needed by the
individual (Asano et al 2008). Key to understanding adjustment following lower limb
amputation is the individuals experience and the inclusion of personal preference and
perspectives, for example values, needs, emotional interests and motivations. Physical,
environmental, social and cultural factors are also paramount (Gallagher et al 2008).
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Depression and anxiety are prevalent following lower limb amputation. The need for
occupational therapy management and use of occupation in addressing issues
pertaining to depression and anxiety has been highlighted (Price and Fisher 2002,
Hawamdeh et al 2008, Singh et al 2007).
When treating people with lower limb amputation, consideration must be given to
pain, phantom pain and phantom sensation. A study by Bosmans et al (2007)
demonstrates the relationship that phantom pain and sensation has upon subjective
wellbeing, particularly when coupled with other factors such as medical history, social
support and daily activities. However, no literature identifies the occupational
therapists role within the management of phantom pain. For this reason, the group
was unable to explore the efficacy of occupational therapy with people who experience
phantom pain.
Evidence
A psychological factor specific to the individual following lower limb amputation is
body image. Studies demonstrate how satisfaction with body image relates to an
individuals anxiety, self-esteem and satisfaction with life. The therapist needs to have
an understanding of this relationship throughout the rehabilitation process (Breakley
1997, Beekman and Axtell 1987, Atherton and Robertson 2006). Interventions that
target appearance-related beliefs and self-consciousness are of particular relevance
(Atherton and Robertson 2006). Atherton and Robertson (2006) also suggest that
distress and anxiety should be monitored over a longer period of time, and not only in
the initial postoperative phase following amputation.
Depression was found to be prevalent following lower limb amputation in a study by
Price and Fisher (2002). They identified the need for the occupational therapist to work
collaboratively with the multidisciplinary team, particularly counsellors, to manage and
address depression and issues surrounding body image. Along with studies by
Hawamdeh et al (2008), Price and Fisher highlight the importance of occupation in
decreasing anxiety and depression for the individual, both through activities of daily
living and in return to work. Singh et al (2007) found that during the rehabilitation
phase, where the individual was learning new skills and regaining independence, signs
of anxiety and depression reduced significantly. Although there are tenuous links from
these studies about the value of occupational therapy, no existing research has directly
studied the occupational therapists psychological management of a person following
lower limb amputation; further research is needed in this area.
Evidence-based recommendations
1.
Occupational therapists need to monitor distress for longer than the initial
postoperative phase (Atherton and Robertson 2006, Hawamdeh et al 2008).
2.
Occupational therapists need to assess for anxiety throughout all episodes of care:
preoperatively (Singh et al 2007, Hawamdeh et al 2008) and in the prosthetic phase
(Atherton and Robertson 2006, Singh et al 2007).
3.
Where appropriate, referrals should be made for psychological support for adults
with lower limb amputations (Price and Fisher 2002).
4.
Occupational therapists should consider the importance of body image during the
rehabilitation process (Beekman and Axtell 1987, Breakey 1997, Price and Fisher
2002).
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Evidence
Baars et al (2008) found 70 per cent of service users with impaired hand function
experienced liner-related skin problems, compared with 32 per cent of service users with
normal hand function.
Beekman and Axtell (1987) found that 44 per cent of 23 service users with prostheses
wore their prosthesis all day every day and used wheelchairs minimally or not at all.
Over half of the service users evaluated used their wheelchairs most of the time, and 9
per cent had stopped wearing their prostheses. Over 60 per cent of the service users
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reported cosmetic problems or discomfort at follow-up, and many cited this as a reason
for not wearing their prosthesis.
Meulembelt et al (2006) completed a systematic review of literature of skin disorders of
people who had a lower limb amputation. One article highlighted the prevalence of
skin disorders in the residual limb in people with lower limb amputations. Of the 45
people in the study, 16 per cent reported skin problems. The authors suggest that skin
problems can impact on prosthetic use and could impact on activities of daily living.
Evidence-based recommendations
1.
2.
Occupational therapists need to ascertain reasons for non-prosthetic use and refer
to the multidisciplinary team as appropriate (Beekman and Axtell 1987).
3.
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outcome measure should produce consistent results across raters, and over time for
therapists to measure improvement or deterioration in activities of daily living. This
ensures that change detected by the outcome measurement is not due to random error.
Evidence
The literature search highlighted the following studies assessing assessment tools and
outcome measures appropriate for occupational therapists working in rehabilitation of
the person who has had a lower limb amputation. Other commonly used assessment
tools and outcome measures are available, such as the Canadian Occupational
Performance Measure (COPM), but research evidence centred around the following
tools:
Amputee Activity Score (AAS)
Some of the evidence focused on activity levels of prosthetic users. A study by Panesar
et al (2001) compared three measures of progress in early rehabilitation of people with
lower limb amputation. The Amputee Activity Score (AAS) was directly relevant to
occupational therapy. This study used a modified version of the AAS; it assessed the
service users:
ability to don or doff the prosthesis;
hours per day wearing the prosthesis;
use of walking aids;
amount of walking;
type of house;
ability to climb stairs;
social support at home;
caring responsibilities for someone with a disability;
participation in domestic activities of daily living; and
access to their own wheelchair and frequency of wheelchair use.
The AAS does not include a section for assessing abilities with personal activities of daily
living. The study used a modified AAS version as the authors deemed it necessary to
include a score for service users who used their wheelchair indoors but preferred to
walk outdoors. There is also a section for assessing the individuals employment status
and work activities.
The AAS is a self-report tool by face-to-face interview, and the time taken to complete it
is unclear. Validity and reliability of the AAS also need to be determined. A study
describing the original AAS by Day (1981) stated that the validity and repeatability of
the AAS were reviewed, but it is unclear from the article how these where measured.
The AAS was found to be a useful tool at discharge but more difficult to use at
admission for rehabilitation (due to its layout) and in need of modification. This study
was also completed with a small sample size, and bias may have been introduced, as
scores of 23 service users were based on measurements from a previous research group.
Another measure described by Panesar et al (2001) was the Office of Population
Censuses and Surveys Scale (OPCS). They suggested that occupational therapists could
use this with lower limb prosthetic users to assess functional capacity in the community
at inpatient stage.
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The PGI was found to be moderately reliable in terms of repeatability during successive
follow-up interviews. Its construct validity supported a stronger relationship between
mental health and quality of life than between physical health and quality of life.
Therefore, this measure could be used to assess quality-of-life outcomes in this client
group. The measure demonstrated practical limitations related to its format, which
makes it more appropriate to be used in a face-to-face interview. It should be noted that
this study used a small sample group, and validity and reliability require further testing.
Trinity Amputation and Prosthesis Experience Amputation Scales (TAPES)
Gallagher and MacLachlan (2000) found that the Trinity Amputation and Prosthesis
Experience Amputation Scales (TAPES) provide an initial assessment of adjustment
problems. Gallagher and Desmond (2007) expanded on the TAPES, stating that it
includes 9 subscales and contains 38 items. It assesses the following:
Psychological adjustment: general and social adjustment, adjustment to limitation
Activity restriction: functional, social and high activity levels
Prosthesis satisfaction: weight, function and cosmesis
Pain and other medical issues
The TAPES could identify service users who are experiencing adjustment difficulties and
assist in the development and evaluation of treatment approaches. Gallagher and
MacLachlan (2004) evaluated whether TAPES subscales are associated with quality of
life. The authors suggested that there is potential for clinicians to use this tool in
practice to evaluate changes in an individuals quality of life throughout the
rehabilitation process.
Gallagher and MacLachlan (2000) suggested that face and content validity of the tool
was established, but they do not clarify how it was assessed. From both studies, it is
clear that future research is required to identify the stability of the TAPES over time
(test-retest reliability), responsiveness to change, and floor to ceiling effects to look at
predictive validity. It is also acknowledged that the self-report nature of the measure
could introduce bias. At present, due to the small sample sizes of both studies, the
results cannot be generalised.
Amputations Body Image Scale (ABIS)
Gallagher et al (2007) suggested that the Amputations Body Image Scale (ABIS) could be
used in the rehabilitation of people who had an amputation to identify body image
problems. The ABIS consists of a 20-item questionnaire and is scored using a 5-level
ordinal scale. It assesses an individuals:
anxiety about their physical appearance in social situations or when alone;
physical appearance when wearing a prosthesis;
phantom limb pain experience;
concerns on how their limb loss affects them in daily living;
avoidance of certain situations;
viewing of their appearance, with and without the prosthesis.
Following Rasch analysis of the ABIS, the authors determined that a shortened version,
the ABIS-R, would be a more valid and reliable tool. The ABIS-R was developed with 14
items and a 3-level ordinal scoring scale. This version was found to have satisfactory
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Evidence-based recommendations
1.
Occupational therapists should use the Amputee Activity Score (AAS) with lower
limb prosthetic users to assess the level of activity a person achieves at discharge
from prosthetic rehabilitation to review (Panesar et al 2001).
2.
Occupational therapists should use the Frenchay Activities Index to determine the
level of participation in extended activities of daily living following the
rehabilitation and the prosthetic phase (Miller et al 2004).
3.
Occupational therapists should use the Patient Generated Index (PGI) measure to
assess quality-of-life outcomes in face-to-face assessment (Gallaghan and Condie
2003).
4.
5.
6.
Occupational therapists should use the Amputee Body Image Scale (ABIS) to
determine the level of body image disturbance and consider how this may affect
rehabilitation (Gallagher et al 2007).
7.
Occupational therapists should use the Office of Population Censuses and Surveys
Scale (OPCS) with lower limb prosthetic users to assess functional capacity in the
community at the inpatient stage (Panesar et al 2001).
8.
Occupational therapists should use the Clifton Assessment Procedures for the
Elderly (CAPE) to predict mobility using a prosthesis (Hanspal and Fisher 1991,
1997).
9.
Occupational therapists should use the Kendrick Object Learning Test (KOLT) to
facilitate decision-making in prosthetic use (Larner et al 2003).
The studies by Hanspal and Fisher (1991, 1997) and Larner et al (2003) (points 8 and 9)
also form the evidence-based recommendations for Section 4.6.
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4.6 Cognition
Introduction
For successful rehabilitation with or without a prosthesis, individuals with lower limb
amputation require an ability to process information, learn and apply new knowledge
as they progress through the rehabilitation stages. Cognitive problems should be
identified at the beginning so that the team can set realistic goals and plans for
discharge. Cognition has been identified as a factor associated with deterioration in
physical ability, an inability to complete prosthetic rehabilitation, and the ability to
remain living independently (Pernot 1997, Taylor 2005, Gallagher et al 2008). Likewise,
Sansam et al (2009) found that cognitive impairment is a predictor of poor prosthetic
use following lower limb amputation. If cognitive dysfunction exists, such as impaired
reasoning, perception, comprehension, planning, attention and memory, there will be a
significant impact on the persons ability to carry out functional tasks. It will also impact
on all performance areas and affect successful prosthetic rehabilitation and long-term
use. Gallagher et al (2008) provided an example of an activity: an individual with a
transtibial amputation donning their prosthesis and then standing from a wheelchair.
The individual would have to remember the following sequence: positioning the
wheelchair, applying the brakes, removing wheelchair accessories, donning stump socks/
liner, and applying the socket and suspension sleeve. Following this, the individual
would have to check that the prosthesis was donned correctly and was comfortable
before carrying out the correct transfer technique, which involves another complex
sequence. There are many opportunities for an individual with cognitive impairment to
experience difficulties with the task.
Evidence
Clinicians working in rehabilitation with people who have had an amputation
acknowledge that a cognitive impairment can determine whether the individual will be
able to use a prosthesis safely. A study by Chun-Chieh et al (2000) found that there was
a statistically significant relationship between impaired cognitive status and the ability
to mobilise with a prosthesis. None of the service users in this study with impaired
cognition was successful in mobilising with a prosthesis; however, the sample size was
small, and so the results should be applied to the general population with caution.
Bilodeau et al (2000) found that successful prosthetic use was found to be significantly
related to cognition in people with transtibial amputation. Transtibial amputation was
almost significantly associated with increased prosthetic use. However, as this is a
correlational study (a study that describes a relationship between variables but does not
identify cause and effect), further prospective studies are required to determine which
variables influence others in this study. The relationship in this study could be due to
coincidence or there could be other factors or multiple factors influencing the variables;
this requires clarification. Taylor (2005) commented that having a transfemoral
amputation was a significant factor in the individual who is unsuccessful in prosthetic
rehabilitation.
The evidence highlighted two cognitive assessments that could be used by occupational
therapists to determine level and area of deficit. The assessments are the Kendrick
Object Learning Test (KOLT) and the Clifton Assessment Procedure for the Elderly
(CAPE). These assessments are also discussed in Section 4.5.
A study conducted by Larner et al (2003) found that the KOLT correctly predicted
whether people with lower limb amputation will use a prosthesis during the inpatient
rehabilitation programme in 70 per cent of the cases. The KOLT is a tool for assessing
older peoples cognitive abilities through immediate recall of visual and auditory
information, assessing speed of processing and recording information. However, there
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are concerns regarding the reliability and validity of the KOLT. The KOLT is also now
part of the Kendrick Scales of Cognitive Ageing (Kasca). The Kasca was based on the
Kendrick battery for the detection of dementia in older service users. The Kasca test
measures object recall, digit copying, reasoning and visuospatial ability, and tests
cognition in individuals with neuropsychological disorder; it can also be used to screen
for onset for dementia.
The CAPE is designed for use with hospital inpatients. It measures the degree of
cognitive and behavioural impairment through orientation, mental abilities,
psychomotor performance tests and behaviour rating scale. A study by Hanspal and
Fisher (1991) suggested that the CAPE could facilitate the decision on whether the
prosthesis should be prescribed. In Hanspal and Fishers 1997 study, there was a highly
significant positive correlation between the cognitive state of older service users and
mobility achieved with prosthesis. This allows professionals to carry out assessments to
ensure they make more informed decisions around prosthetic intervention and future
management needs. For both studies, it should be acknowledged that a small sample
size was used and regression analysis should have been used to strengthen their claims.
Evidence-based recommendations
1. Occupational therapists should use the Clifton Assessment Procedures for the Elderly
(CAPE) to predict mobility using a prosthesis (Hanspal and Fisher 1991, 1997).
2. Occupational therapists should use the Kendrick Object Learning Test (KOLT) to
facilitate decision-making in prosthetic use (Larner et al 2003).
4.7 Work
Introduction
Current government initiatives in the UK are aimed at supporting people with and
without disabilities to find paid or unpaid work (Black 2008). Some studies have
highlighted the perceived benefits of work, which include financial reasons as well as
social contacts with colleagues (Bruins et al 2003). Indeed, Schoppen et al (2001b) found
that people who had to stop work as a result of their amputation showed a worse
health experience than those people with an amputation who continued working.
There is evidence that people with lower limb amputations can have difficulties
returning to work (Schoppen et al 2001a, Burger and Marincek 2007). The proportion
returning to work varied from 43.5 per cent to 100 per cent, depending on age, country
and cause of amputation. Moreover, the percentage of people who returned to the
same work as pre-amputation differs in various studies and depends on the type of
work and the level of amputation. Factors that can delay or prevent return to work
include:
problems related to the stump (Bruins et al 2003);
wearing comfort of the prosthesis (Schoppen et al 2001a);
educational level (Schoppen et al 2001a);
age at the time of amputation (Schoppen et al 2001a);
co-morbidity (Schoppen et al 2002);
workplace modifications (Schoppen et al 2001b, Bruins et al 2003).
College of Occupational Therapists
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Evidence
There are no current studies to provide evidence that occupational therapy intervention
assists people with lower limb amputations to return to work, although it is clear from
the studies by Schoppen et al (2001a, b, 2002) and Bruins et al (2003) that occupational
therapists could assist in modifying the work environment. A study by Pezzin et al
(2000) suggests that following traumatic lower limb amputation, inpatient
rehabilitation was positively associated with return to work and a lower likelihood of
reduced hours of work.
Evidence-based recommendations
1.
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protect against and enable individuals to manage stress (Iwasaki 2001, Kleiber et al
2002);
increase self-esteem and confidence (Baxter et al 1995, Passmore and French 2000);
and
enhance physical health (Cassidy 1996).
Evidence
No studies were found that were related directly to occupational therapy. Further
research needs to be conducted to ascertain how leisure activities are incorporated into
occupational therapy programmes. Occupational therapists need to ensure that they
take into account the service users individual needs and that people of a certain age
may prefer more solitary leisure occupations and hence may not want to be referred for
group activities. Legro et al (2001) found that people aged 60 years and over were more
involved in moderate and sedentary activities than those aged 2049 years. Similar
findings are reported by Jones et al (1993), who found that watching television and
listening to the radio are the most common activities for people with lower limb
amputations (mean age 67 years, 12 years after amputation).
Evidence-based recommendations
1.
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OTDBASE
OT
Seeker
Medline
CINAHL
Lower limb
amputation
Lower limb
amputation
Multidisciplinary
Lower limb
amputation
Activities of daily
living
Miller et al (2001),
Gallaghan and Condie
(2003), Miller and
Deathe (2004), Miller
et al (2004), Baars et
al (2008)
Collin et al (1992),
Ham et al (1994),
Breakey (1997),
Gallagher and
MacLachlan (2000),
Panesar et al (2001)
Lower limb
amputation
Bathing
Lower limb
amputation
Self care
Lower limb
amputation
Domestic
Atherton and
Robertson (2006)
Lower limb
amputation
Quality of life
Gallagher and
MacLachlan (2000)
Gallagher and
MacLachlan (2004)
Lower limb
amputation
Rehabilitation
Legro et al (2001),
Panesar et al
(2001), Larner et al
(2003), Pauley et al
(2006), Dyer et al
(2008), Hawamdeh
et al (2008)
Lower limb
amputation
Driving
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Search terms
OTDBASE
Medline
CINAHL
Lower limb
amputation
Housing
Lower limb
amputation
Leisure
Lower limb
amputation
Transfers
Lower limb
amputation
Prosthesis
Beekman and
Axtell (1987),
Kulkarni et al
(1996), Bilodeau et
al (2000), Gallagher
et al (2007), Baars
et al (2008)
Lower limb
amputation
Outcome
Panesar et al
(2001), Atherton
and Richards (2006)
Lower limb
amputation
Cognition
Lower limb
amputation
Falls
Kulkarni et al
(1996), Gooday and
Hunter (2004)
Lower limb
amputation
Elderly/older people
Lower limb
amputation
Home visits
Lower limb
amputation
Work
Bruins et al (2003)
Lower limb
amputation
Phantom pain
Lower limb
amputation
Wheelchair
White (1992)
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OT
Seeker
29
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Search terms
Medline
CINAHL
Lower limb
amputation
Occupation
Lower limb
amputation
Social
Gallagher et al (2007)
Gallagher et al
(2007)
Lower limb
amputation
Skin
Baars et al (2008)
30
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OT
Seeker
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Study design
II
III-1
III-2
III-3
IV
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Score
P2
P3
S2
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above knee
below knee
lower limb
lower limb amputee
multidisciplinary team
through knee
United Kingdom
United States of America
Author/year
Study location
UK
Study objectives
Design
P1 cross-sectional survey
Participants
N=67
Inclusion criteria: LLAs aged 18 years, amputation within past 5
years, wearing prosthesis on a daily basis
Exclusion criteria: current diagnosis of life-threatening condition
Recruitment
Data collection
Outcome measures
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Author/year
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Baars et al (2008)
Study location
The Netherlands
Study objectives
Design
P1 retrospective survey
Participants
Recruitment
1 rehabilitation setting
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Author/year
Baars et al (2008)
Data collection
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Baars ECT, Dijkstra PU, Geertzen JHB (2008) Skin problems of the
stump and hand function in lower limb amputees. Prosthetics and
Orthotics International, 32(2), 179185
Author/year
Study location
USA
Study objectives
Design
P3 retrospective survey
Participants
Recruitment
Data collection
The charts of all participants were reviewed for sex, age, diagnosis,
level of amputation and medical complications. For participants
with a prosthesis, information around the prosthesis, range of
motion, velocity, distance, equipment and transfers was also
gathered through charts. Patients with a prosthesis were evaluated
and interviewed at least 6 months after receipt of their prosthesis.
The interview included questions regarding use of prosthesis and
wheelchair, prosthetic comfort, need for prosthetic repair, status
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Author/year
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
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Author/year
Reference
Author/year
Bilodeau et al (2000)
Study location
Canada
Study objectives
Design
Participants
Recruitment
Data collection
Outcome measures
Results
38
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Author/year
Bilodeau et al (2000)
Results (cont.)
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Breakey (1997)
Study location
USA
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Author/year
Breakey (1997)
Study objectives
Design
Participants
Recruitment
Data collection
Outcome measures
Results
Study limitations
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Author/year
Breakey (1997)
Study limitations
(cont.)
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Bruins et al (2003)
Study location
The Netherlands
Study objectives
Design
P3 descriptive survey
Participants
N=24 men and 8 women (mean age 42.6 years), no more than 8
years after amputation
Recruitment
Data collection
Results
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Author/year
Bruins et al (2003)
Results (cont.)
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Collin et al (1992)
Study location
UK
Study objectives
Design
Participants
37 patients (27 males, mean age 66.9 years; 10 females, mean age
73 years) with an amputation due to peripheral vascular disease or
diabetes mellitus and accepted for prosthetic training questioned,
of which 34 were examined
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Author/year
Collin et al (1992)
Recruitment
Data collection
Outcome measures
Results
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Author/year
Collin et al (1992)
Results (cont.)
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
44
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Author/year
Dyer et al (2008)
Study location
Canada
Study objectives
Design
Participants
Recruitment
Data collection/
intervention
Results
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Author/year
Dyer et al (2008)
Results (cont.)
Initially only 25% of the nursing staff had agreed that the Falls
Assessment Tool was being used effectively; this increased to
65% after implementation of the intervention
Initially 50% had agreed that the Nursing Assessment Tool
was useful for differentiating patients at risk of falling; this
increased to 60%
The efficacy of identifying patients at risk of falling was 40%;
this increased to 65%
Post-intervention, the nursing staff indicated a 43% increase in
investigation into falls and information dissemination regarding
falls
The majority of staff reported a substantial improvement
regarding the effective reporting and discussion of NetSAFE
data (pre-intervention 8%, post-intervention 90%)
Study limitations
Relevance for
occupational therapy
Level of evidence
IV
Quality score
Reference
Author/year
Study location
Glasgow, UK
Study objectives
Design
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Author/year
Participants
Recruitment
7 participating hospitals
Data collection
Outcome measures
Results
Study limitations
Relevance for
occupational therapy
The PGI was adapted and this study suggests that it was found to
be moderately reliable in terms of repeatability during successive
follow-up interviews. Its construct validity supported a stronger
relationship between mental health and QOL than between
physical health and QOL.
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Author/year
Relevance for
occupational therapy
(cont.)
Level of evidence
Quality score
Reference
Author/year
Study location
Ireland
Study objectives
Design
Participants
Recruitment
Data collection
Outcome measures
Results
48
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Author/year
Results (cont.)
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
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Author/year
Study location
Ireland
Study objectives
Design
P1 survey study
Participants
Recruitment
Data collection
Outcome measures
Results
50
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Author/year
Results (cont.)
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
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Author/Year
Gallagher et al (2007)
Study location
Ireland
Study objectives
Design
Participants
Recruitment
Data collection
Outcome measures
Results
52
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Author/Year
Gallagher et al (2007)
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Study location
Edinburgh, UK
Study objectives
Design
Participants
Recruitment
Data collection/
Intervention
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Author/year
Outcome measures
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
III-3
Quality score
Reference
54
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Author/year
Ham et al (1994)
Study location
UK
Study objectives
Design
P1 survey study
Participants
N=459
Data collection
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Study location
UK
Study objectives
Design
P1 correlation study
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Author/year
Participants
Recruitment
1 clinic
Data collection
Outcome measures
Results
Study limitations
Relevance for
occupational therapy
56
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Author/year
Level of evidence
Quality score
Reference
Author/Year
Study location
UK
Study objectives
Design
P1 correlation study
Participants
Recruitment
Data collection
Outcome measures
Results
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Author/Year
Study limitations
The authors suggest that the CAS scores achieved on the first
and second assessments were compared by Pearson correlation,
whereas these were correlated
The authors suggest that since the correlation between
mobility and CAS (total scores) was r=0.45, then the intellectual
status accounts for about 20% of the explained variance in
mobility even when co-existing medical conditions affected it.
Such claims cannot be supported by correlation analysis, but
regression analysis would be needed
The same applies to the claims about the 12 patients who had
no medical conditions, for whom the authors suggest that
intellectual ability accounts for the 85% of mobility
Regression analysis would be more appropriate in identifying
predictors rather than doing simple correlation analysis
The authors do not explain why they conducted Pearson
correlations instead of Spearmans, since the mobility grades are
of an ordinal level
No ethical issues or consent are discussed
The authors do not explain the recruitment process
The assessments were done by the authors. If these were the
specialists in the clinic who were regularly treating the patients,
then the data collected might be biased
The psychometrics of the CAS, which is the main outcome
measure, are not presented
Small sample size
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/Year
Hawamdeh et al (2008)
Study location
Jordan
Study objectives
Design
P1 survey
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Author/Year
Hawamdeh et al (2008)
Participants
Recruitment
3 settings in Jordan
Data collection
Outcome measures
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
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Author/Year
Hawamdeh et al (2008)
Quality score
Reference
Author/year
Kulkarni et al (1996)
Study location
UK
Study objectives
Design
P1 prospective survey
Participants
N=164 LLAs of all ages seen by the consultant (all of them agreed
to participate)
Recruitment
Data collection
Results
Study limitations
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Author/year
Kulkarni et al (1996)
Study limitations
(cont.)
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/Year
Lachmann (1993)
Study location
UK
Study objectives
Design
Participants
Data collection
Results
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Author/Year
Lachmann (1993)
Study limitations
Relevance for
occupational therapy
Level of evidence
III-2
Quality score
Reference
Author/Year
Larner et al (2003)
Study location
UK
Study objectives
Design
P1 correlation study
Participants
Recruitment
Data collection
Outcome measures
Results
Study limitations
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Author/Year
Larner et al (2003)
Study limitations
(cont.)
The sample size is small and it is unclear why the KOLT was
considered to be appropriate, especially in view of concerns
about the reliability and validity of this test
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Legro et al (2001)
Study location
USA
Study objectives
Design
P3 survey
Participants
Recruitment
Data collection
Results
Study limitations
Relevance for
occupational therapy
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Author/year
Legro et al (2001)
Relevance for
occupational therapy
(cont.)
Level of evidence
Quality score
Reference
Author/year
Study location
Canada
Study objectives
Design
Participants
Recruitment
Data collection
Outcome measures
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Author/year
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Miller et al (2004)
Study location
Canada
Study objectives
Design
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Author/year
Miller et al (2004)
Participants
Recruitment
Data collection
Outcome measures
Results
Study limitations
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Author/year
Miller et al (2004)
Study limitations
(cont.)
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/Year
Miller et al (2001)
Study location
Canada
Study objectives
Design
Participants
Recruitment
Data collection
Outcome measures
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Author/Year
Miller et al (2001)
Outcome measures
(cont.)
Results
Study limitations
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Author/Year
Miller et al (2001)
Study limitations
(cont.)
Relevance for
occupational therapy
This study suggests that balance confidence was the only factor
associated with mobility capability and performance and social
activity in the final adjusted models. Clinicians and researchers
could consider this variable in the rehabilitation of amputee
patients.
Level of evidence
Quality score
Reference
Author/year
Panesar et al (2001)
Study location
UK
Study objectives
Design
Participants
Recruitment
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Author/year
Panesar et al (2001)
Data collection
Outcome measures
Results
Study limitations
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Panesar et al (2001)
Study limitations
(cont.)
Relevance for
occupational therapy
This study suggests that the FIM and the OPCS are suitable for
the inpatient stage and are fairly straightforward to use. The AAS
would appear to be the best measure at time of discharge and
thereafter, but its layout makes it more awkward to use at time of
admission.
Level of evidence
Quality score
Reference
Author/year
Pauley et al (2006)
Study location
Canada
Study objectives
Design
Participants
Recruitment
Through 1 centre
Data collection
Patients were categorised into 3 groups: (1) those who did not
sustain a fall during their rehabilitation stay (non-fallers), (2)
those who fell once (single fallers) and (3) those who fell 2
times (multiple fallers)
Review of patient clinical records and electronic databases
to gather data on demographics, length of stay, nature of
amputation, daily and as-needed medication use, time/location
of falls, types of injuries sustained, co-morbidities, scores on the
Houghton scale of prosthetic use, scores on FIM
Outcome measures
Results
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Author/year
Pauley et al (2006)
Results (cont.)
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
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Author/year
Study location
UK
Study objectives
Design
Participants
Recruitment
Through 1 centre
Data collection
Results
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Author/year
Study limitations
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
Author/year
Singh et al (2007)
Study location
UK
Study objectives
Design
Participants
Recruitment
Intervention
Outcome measures
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Author/year
Singh et al (2007)
Results
Study limitations
Relevance for
occupational therapy
Level of evidence
IV
Quality score
Reference
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Author/year
White (1992)
Study location
UK
Study objectives
Design
P3 3-part survey
Participants
Data collection
Results
Study limitations
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Author/year
White (1992)
Relevance for
occupational therapy
Level of evidence
Quality score
Reference
White E (1992) Wheelchair stump boards and their use with lower
limb amputees. British Journal of Occupational Therapy, 55(5),
174178
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Appendix 6: Stakeholders
Associate Parliamentary Limb Loss Group
British Association of Chartered Physiotherapists in Amputee Rehabilitation
British Association of Prosthetists and Orthotists
British Association of Rehabilitation Medicine
College of Occupational Therapists
Diabetes Association
Douglas Bader Foundation
emPower The Charities Consortium of Users of Prostheses, Orthoses, Wheelchairs,
Electronic Assistive Technology and Rehabilitation Services
International Society of Orthotics and Prosthetics, UK
Limbless Association
Meningitis Trust
National Amputee Nurses
National Association for Amputee Rehabilitation Counsellors
Peggy & Friends
Peer reviewers
Dr Shelley Crawford, Lead Occupational Therapist, Belfast Health and Social Services
Trust
Dr Avril Drummond, Associate Professor and Reader in Rehabilitation Research; and
Research Occupational Therapist, University of Nottingham
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2. Would a new practitioner be able to pick up the document and know what it was for?
5. Is the text inclusive of all people who may use it, e.g. students, practitioners, educators,
researchers?
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9. Are there any other words that you think should be defined in the glossary?
10. Where possible we have cross-referenced other potentially useful documents. Is this
helpful?
11. If you have any other comments or suggestions, please take the opportunity to make
them here (continue on a separate sheet if necessary).
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Bilateral
Body image
Doffing/doff
Donning/don
Inter-rater reliability
Liner
Literature search
Literature review
Methodology
Outcome measure
Prosthesis
Qualitative research
Quantitative research
Reliability
Research
Residual limb/residuum/stump
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Socket
Suspension
Through-knee amputation
Transfemoral/above-knee amputation
Transtibial/below-knee amputation
Unilateral
Validity
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17/11/2010 14:46
Evidence-based guidelines
This publication is an evidence-based resource to support
occupational therapists working with adults with acquired unilateral
or bilateral lower limb amputation. It provides best practice guidance
for those occupational therapists currently working in this specialism,
as well as offering a useful reference document for students and
newly qualified occupational therapists. It can also be used to inform
service users, carers and other professionals working with people
with lower limb amputation about the roles and responsibilities of the
occupational therapist in this clinical area.
Available
for Download
Available
for Download
ISBN 978-1-905944-25-5
Available
for Download
Available
for Download
Download for
BAOT members
www.COT.org.uk
Tel: 020 7357 6480 Fax: 020 7450 2299
Download for
BAOT members
Download for
9 781905 9 4 4 2 5 5
Specialist Section
Trauma
and
Orthopaedics
Specialist Section
Trauma
and
Orthopaedics