Age Ageing 2008 Cooper 151 60
Age Ageing 2008 Cooper 151 60
Age Ageing 2008 Cooper 151 60
doi:10.1093/ageing/afm194
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SYSTEMATIC REVIEW
University College London, Camden and Islington Mental Health and Social Care Trust, UK
College London, North East London Mental Health Trust, UK
2 University
Address correspondence to: Claudia Cooper. Tel: (+44) 20 7561 4218; Fax: (+44) 20 7561 4236.
Email: c.cooper@medsch.ucl.ac.uk
Objective: to perform a systematic review of studies measuring the prevalence of elder abuse or neglect, either reported by
older people themselves, or family and professional caregivers or investigated using objective measures.
Methods: we conducted a comprehensive literature search of multiple databases up to October 2006, supplemented by
a search of the references of all relevant articles. Validity of studies was graded by two authors independently using a
standardised checklist.
Results: forty-nine studies met our inclusion criteria, of which only seven used measures for which reliability and validity had
been assessed. In the general population studies, 6% of older people reported significant abuse in the last month and 5.6% of
couples reported physical violence in their relationship in the last year. In studies using valid instruments involving vulnerable
elders, nearly a quarter reported significant levels of psychological abuse. Five per cent of family caregivers reported physical
abuse towards care recipients with dementia in a year, and a third reported any significant abuse. Sixteen per cent of care
home staff admitted significant psychological abuse. Rates of abuse recorded using objective measures (5%) or reported to
home management or adult protective services (APS) (12%) were low.
Conclusion: one in four vulnerable elders are at risk of abuse and only a small proportion of this is currently detected.
Elders and family and professional caregivers are willing to report abuse and should be asked about it routinely. Valid, reliable
measures and consensus on what constitutes an adequate standard for validity of abuse measures are needed.
Keywords: elders, abuse, prevalence
Introduction
Elder abuse is associated with distress and increased mortality
in older people [1] and caregiver psychological morbidity [2].
Discovering the prevalence of abuse, perpetrated against
vulnerable people by those they rely on, is inherently difficult.
There are a wide range of prevalence figures perhaps
because studies employ different populations, measures
and definitions of abuse. The Department of Healths
guidance [3] defined abuse as a violation of an individuals
human and civil rights by another person or persons. It
sub-categorises abuse into physical, psychological, sexual,
financial, discriminatory abuse and neglect and specifies
that abuse is either an individual or repeated act(s) or
omission(s). Numerous instruments measure abuse. They
vary in items included and the level and frequency of
abusive acts considered to constitute an abuse case. Accurate
Objective
To produce the first systematic review of the prevalence of
elder abuse using standardised criteria of study quality.
Methods
Search strategy
151
Abstract
C. Cooper et al.
behavio(u)r of carer or caregiver; abuse and nursing home and residential home or care home. We searched references of all included
papers and review articles.
Inclusion and exclusion criteria
Results
About 322 abstracts were identified electronically, and 31
further titles from references of included studies. We
retrieved 80 of these papers which appeared to meet
the inclusion criteria. Forty-nine studies met the inclusion
criteria, 13 were not on elder abuse prevalence or incidence
studies, 13 were not of original research, 3 were meeting
abstracts, 1 reported lifetime abuse and 1 repeated data.
We discuss below studies using valid and reliable abuse
measures (n = 7) or studies with clearly defined target
populations, probability sampling and standardised data
collection methods. Tables 14 list all other studies.
General older population surveys
152
CTS, Conflict Tactics Scale; OARS, Older American Resources and Services.
153
Response Abuse
Prevalence Abuse
Study
Sample
n
rate
measure
period
by:
1 2 3 4 5 6 7 Sum
......................................................................................................................................
Oh [5]
All people aged 65+ in a
15,230 53%
Own
1 month
Not
X
X
5
district of Seoul, Korea
questions
stated
Harris [6] Random USA sample of
842 Not
CTS physical
1 year
Either
X
X
5
people aged 65+, living as
stated
aggression
spouse
couple, private households
subscale
Ogg [9]
Random sample of people
589 79%
Own
Recently
Family
X
X X
4
aged 60+, in private
questions
member
households in Great Britain
Pillemer
Random sample of people
2,020 72%
CTS and OARS 1 year
Anyone
X
X X
4
[10]
aged 65+ in private
(neglect)
households in Boston; those
living with other people
over-surveyed
Podkieks
Random sample of people
2,008 Not
CTS, OARS
1 year;
Anyone
X
X X
4
[11]
65+ in private households in
stated
and own items
financial
Canada
= 65+
Wetzels
Random sample of people
5,711 84%
CTS and own
4 years
Co-resiX X X
4
[12]
aged 60+ living in private
items
dent
households in Germany
Comijs
Random sample of people
1,797 <59%
CTS, measure
1 year
Anyone
X
X X X
3
[13]
aged 65+ in private
of wife abuse;
households in Amsterdam
violence
against man;
own items
Kivela
People aged 65+ in Finnish
1,086 89%
Own questions After
Anyone
X
X X X
3
[14]
town; moderate dementia
retireand debilitating illness
ment
excluded
Hirseh
People aged 60+ in Bonn
425 10%
Own questions 5 years
Anyone
X X X X X X
1
[36]
Yan [37]
People aged 65+ in Hong
355 <80%
CTS and own
1 year
Family or
X X X
X
X
2
Kong, recruited through
items
domestic
community centres and
helper
approached in recreational
housing estate areas
Yan [38]
As above, fewer people in
276
X X X
X
X
2
recreational areas
Ockleford Opportunity sample of women
149 N/a
Own questions Since aged Anyone
X X X X X X X
0
[39]
from Irish, Italian and British
60
professional and voluntary
organisations
C. Cooper et al.
Table 2. Studies asking other populations of older people about abuse
Validity questions (see
questions in method)
Primary care
Risco [22]
Ruiz [23]
Random sample of
Spanish primary care
patients aged 72+
without severe
cognitive impairment
Consecutive attendees
aged 70+ at Barcelona
primary health service,
without cognitive or
sensory impairment
209
64%
219
89%
Canadian Task
force and AMA
definition
Not stated
Any
neglect, they asked whether the person had been refused food
or medical assistance or forced to take sedatives. About 3.4%
had experienced any physical abuse, 1.3% financial abuse,
and 2.7% neglect in the last 4 years, and 0.8% 10 verbally
154
abusive acts over any 1 year of that time; the computed 1-year
prevalence rate for any abuse or neglect was 3.1%.
The 1-year prevalences reported among people aged 65+
in Amsterdam [13] were about 3.2% for verbal abuse and
Response Abuse
Prevalence
Potential
Study
Sample
n
rate
measure
period
abuse
1 2 3 4 5 6 7 Sum
.....................................................................................................................................
Dependent older people
.....................................................................................................................................
Wang [15]
Random samples of
195 Not
Psychological
Not stated
Carer
X
X
5
people aged 60+
stated
elder abuse scale
partially dependent on
a carer living in (1) care
homes (2) private
households in 2
counties, Taiwan
Beach [16]
Cognitively or physically
265 Not
Modified CTS
Not stated
Carer
X X
X
4
impaired people aged
stated
60+ in private
households in Texas,
Georgia, Pittsburgh
and Dallas; recruited
from hospitals, social
service agencies,
support groups, local
media
Fulmer [17] People aged 70+ with
165 41%
Elder abuse
Not stated
Any
X X X
X
3
MMSE 18+ and carer
assessment
for 20 h a week,
instrument
attending four
emergency
departments in New
York and Tampa, USA
Pittaway
People aged 55+
605 78%
Own questions
Verbal and
Any
X
X X X
3
[20]
receiving home-care
neglect:
services recruited from
1 year; other
service provider lists in
aged 55+
London, Ontario
Buri [21]
People aged 65+ enrolled 1,017 49%
Own questions
Not stated
Any
X X X X X
2
in the Iowa Medicaid
Waiver program
(provides home care) in
Polk County and
random sample from
other counties
Validity questions
(see method)
155
Paveza
People aged 40+ with
184
36%
CTS
Any abuse Year since
Physical: 5%
X X
X
4
[24]
Alzheimers disease
severe
diagnosis
diagnosis and their carers
violence
were recruited from
subscale
memory and other hospital
clinics in USA
Pot [25]
People with a
169
97%
Own ques- Pillemer
1 year
Verbal: 30%
X
X X
4
CAMDEX/DSMIIIR
tions
criteria
Physical:
dementia recruited from
11%
Amsterdam
epidemiological study, day
hospital and memory clinic.
Carers provided direct care
once a fortnight
Cooney
People aged 65+ with
82
93%
CTS and
Pillemer
1 year
Verbal: 51%
X
X X X
2
[41]
DSMIIIR dementia
own
criteria
Physical:
diagnosis and main
items
20%
co-resident carers were
Any: 52%
recruited from London
Health authority register
and dementia community
support team
Homer
People receiving/conse51
72%
Not
Pillemer
1 year
Verbal: 41%
X X
X X X
2
[42]
cutively referred for geriatric
standard
criteria
Physical:
services respite care, or
14%
attending day hospital for
Any: 45%
respite in London and their
carers
Cooney
Carers recruited from a
67
34%
Not
Pillemer
1 year
Verbal: 52% X X X
X X X
1
[43]
voluntary organisation for
standard
criteria
Physical:
dementia carers
12%
Any: 55%
Pillemer
Older people diagnosed with 236
60%
Own ques- Any abuse Time caring
Physical:
X X X X X X
1
[45]
dementia in last 6 months
tions
5.9%
and carers were recruited
from dementia screening
program and clinicians in
USA
C. Cooper et al.
APS, Adult protective services; ACAT, Aged Care Assessment Teams; MDS, minimum dataset
156
Response Abuse
Abuse prevalence
Study
Sample
n
rate
measure
% (95% CI)
1 2 3 4 5 6 7 Sum
....................................................................................................................................
Shugarman
Referrals aged 60+ in
701
100%
MDS abuse
4.7 (3.16.3)
X
6
[31]
private households
screen
with informal carer, to
Michigan long-term
care services
Cooper [30]
Probability sample aged
3,881
80%
MDS abuse
4.6 (3.95.3)
X
X
5
>65 receiving health or
screen
social community
services in 11 countries
Fulmer [33]
All attendees at random
336
93%
Own measure of
12.8
X
X
5
sample of adult day
physical abuse
health care programs
(for people needing 3
h of health care a week)
in USA
Bond [48]
People aged 60+ referred 354
100%
Manager reported 21.5
X X X
4
to Office of the Public
financial abuse
Trustee, Manitoba,
Canada, 199596
Cham [49]
Singapore Emergency
62,826
100%
Staff opin0.03% (incidence)
X X X
4
department attendees
ionphysical
aged >65 +
abuse
non-accidental trauma
or reporting cruel acts
Lachs [50]
APS reports (198192)
2,812
100%
Reported case
2.0 (1.52.5)
X X X
on probability sample
of elders in New
Haven, Connecticut
Vida [51]
Consecutive referrals
126
100%
Staff opinion
16(9.622.4)%
X X X
4
aged 60+ to inpatients
(physical,
and outpatients
psychological,
geriatric psychiatry
financial abuse,
division in Canada
neglect)
Kurrle [52]
Consecutive referrals
5,246
n/a
1.2(0.42.0)%
X X X X
3
aged 65+ to four Aged
Care Assessment
Teams (ACAT) in
Australia
Livermore
Consecutive referrals
1,777
100%
5.4 (4.36.5)%
X X X X
3
[53]
aged 65+ to New
South Wales ACAT
National
People aged 60+ living in USA older
n/a
APS cases and
1% of US 60+
X X X X X
2
Center on
private households
populasentinel
population
Elder abuse
from random sample of
tion
reporting
[34]
20 US counties in 1996
(census)
Zhu [55]
Forensic autopsies aged
121
100%
Pathologist report 11%
X X X X X X
1
65+ in Osaka 199498
abuse
Family carers have been asked about physical, verbal, psychological abuse and neglect. Only Paveza et al. [24] used a valid
and reliable abuse measure. They found that 5% (1.98.1)
of carers reported physical abuse in the year since diagnosis
on the severe violence subscale of the CTS. In studies with
well-defined target populations, 1120% of family carers
reported physical abuse and 3755% reported any abuse
meeting the Pillemer criteria (Table 3). Pot [25] reported that
abuse scores were not correlated with the Eysenk personality
Questionnaire lie scale as an indicator of validity.
Surveys of professional carers
157
C. Cooper et al.
158
Discussion
The range of prevalence of abuse reported by general
population studies was wide (3.227.5%), possibly reflecting
true variation in abuse rates across cultures as well as the
differences in defining and measuring abuse. Over 6% of
the older general population reported abuse in the last
month. In addition, 5% of older couples reported that their
relationship had been physically violent in the last year,
using measures with known psychometric properties. These
rates are probably an underestimate, as some people may be
reluctant to report abuse.
Nearly a quarter of older people dependent on carers
reported significant psychological abuse, and a fifth reported
neglect. Over a third of family carers report perpetrating
significant abuse. These studies indicate that vulnerable old
people are at high risk of abuse and that they and their family
carers are frequently willing to report it. The act of abuse
does not imply intent, and in many cases the carers may
not have viewed their own actions in this light. Abusive acts
reported may reflect lifelong verbally or physically abusive
relationships, or onset of abuse in response to carer stress or
challenging care recipient behaviours. Studies using observed
abuse measures in vulnerable older people report much lower
rates (5%), suggesting that they are probably only detecting
the most serious abuse, and this is supported by a study that
compared objective and family carer reports of abuse in older
people [19]. This probably reflects the isolated and secretive
nature of the abusive act. Our results suggest that routinely
asking vulnerable older people and their family carers about
abuse will often lead to its detection, and is more sensitive
than using observer measures. Nonetheless these may have
a role for detecting serious abuse in non-verbal patients or in
those too afraid to report it.
One in six professional carers report committing
psychological abuse and one in ten physical abuse. Over
80% of care home staff had observed abuse, suggesting that
care home staff might have been denying any abusive acts. We
speculate that most care staff are able to cope without abusing
as unlike family carers they have a limited number of hours
for caring. There may be a small but worrying proportion
of professional carers who sadistically misuse their power
over vulnerable individuals in their care, and this might also
explain the high number of staff who have observed abuse.
Very few cases of abuse were reported to home staff [27]
or the APS [34]. We suggest that greater efforts to address
institutional abuse through improved detection strategies
such as whistle-blowing schemes are urgently needed.
Key points
Conflict of interest
Two authors are also the authors of one of the reviewed
papers. None of the authors have a financial conflict of
interest.
Funding
Camden and Islington Mental Health and Social Care Trust
funded article collection.
Supplementary data
Supplementary data for this article are available online at
http://ageing.oxfordjournals.org.
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(Due to the large number of references, only 40 are listed below and
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Conclusions
Acknowledgements
C. Cooper et al.
160