Incapacitated Indigent and Alone Guardianship New York
Incapacitated Indigent and Alone Guardianship New York
Incapacitated Indigent and Alone Guardianship New York
Erica F. Wood, JD
Assistant Director, American Bar Association Commission on Law and Aging
John N. Holt, JD
Director of Legal Services and Policy
The Guardianship Project at the Vera Institute of Justice
Executive Summary 5
Section 1. Introduction 13
Section 2. Methods 19
References 100
Appendices 101
Acknowledgements
We acknowledge the assistance of Fatemeh Zarghami primarily on three streams of coordinated research:
and Yuxin Zhao, graduate research assistants, at Virginia Family Gerontology, Health and Aging, and Elder Rights.
Tech. Although the center is part of the College of Liberal Arts
and Human Sciences, it has a university-wide purview,
We also thank Jacqueline Baillargeon, former executive
with more than 80 faculty affiliates representing seven
director of The Guardianship Project.
colleges and 28 departments or units across campus.
The Center for Gerontology serves as the organiza-
The mission of the American Bar Association Commission
tional unit and focal point for aging-related activities at
on Law and Aging is to serve as a collaborative, interdis-
Virginia Polytechnic Institute (Virginia Tech). The center’s
ciplinary leader of the association’s work to strengthen
primary mission is to foster and facilitate multidisci-
and secure the legal rights, dignity, autonomy, quality
plinary research that enhances the quality of life of older
of life, and quality of care of aging persons.
adults. In support of this mission, the center focuses
Disclaimer
The views expressed herein have not been approved by the House
of Delegates or the Board of Governors of American Bar Association
and, accordingly, should not be construed as representing the policy
of the American Bar Association.
5
Executive Summary
In 2005, the Vera Institute of Justice (Vera) and New a likelihood that family members will be spread out
York State’s Office of Court Administration launched geographically, there is a continued and escalating
The Guardianship Project (TGP) to serve as court-ap- need for guardians as well as other decisional options.
pointed agency guardian to a vulnerable, largely indi-
This study aimed to analyze ways to increase and
gent population—elders and persons with disabilities
improve guardianship and decision support services
lacking family or other support—enabling them to live
for this challenging and often overlooked population—
as independently as possible. In launching TGP, Vera
people, formerly called “unbefriended” individuals, who
sought to cast a spotlight on a desperately missing
are alone, with no one to help, and few or no resources.
element of the social safety net and to provide an
The study objectives were to: (1) document the need
approach that humanely addressed critical needs for
for guardianship and decision support services for
individuals in a way that allowed key institutions to
the population, (2) assess the current local and state
operate in concert and more effectively.
ability to meet that need, (3) understand the best prac-
TGP offers a comprehensive guardianship model tices of states providing comparable guardianship and
available in New York City and employs attorneys, decision support services, (4) assess the TGP model of
social workers, and financial and property managers guardianship to ascertain if it is an appropriate model
and partners with investment advisors, volunteers for expansion to meet the increased need in New York
and, when necessary, pro bono counsel, to provide City and in other parts of the state, and (5) highlight
guardianship services for those under its care. TGP’s barriers in court guardianship processes in New York
clients are referred to the program due to a wide variety City and state and improvements that might be made.
of issues, including dementia, serious medical prob-
lems, pending evictions, elder abuse, and placement
in institutional settings against their will. As of 2018,
TGP serves 180 clients year-round.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
6
While data is lacking, our study’s surveys and interviews • Supportive services. New York should provide
uncovered a compelling and undeniable unmet need adequate funding for home and community-based
for guardianship and related services for individuals care and affordable housing for indigent individuals
in New York who are indigent, have been named by a at risk of, or subject to, guardianship—especially
court as “incapacitated,” and who have no one to serve. 1
congregate housing for older adults where people
can age in the community and easily access support
The cases are often urgent and concern the needi-
services.
est in our society, with an alarming mix of Medicaid,
housing, mental health, long-term care, and social • Social work skills. New York should find ways to
services issues—frequently with no one to help. The increase the number of professionals with social
need is especially intense for nursing home residents work and nursing skills to act as guardians for
and for individuals at risk of eviction from housing. individuals with no family or friends to serve.
Guardianship databases would help to confirm, clarify, • Less-restrictive options. New York should provide
and focus the unmet needs and suggest solutions. judicial and legal training on screening for less-re-
Clearly, there is great and equal demand for more strictive options—including a range of decision
available and skilled guardians and for more atten- supports and supported decision making, the
tion to less-restrictive options—as well as a greater use of forms that emphasize screening for such
emphasis on the social work skills required to sort options, and tracking the use of these options in
out the pressing human needs. avoiding unnecessary appointments.
1 Unless New York City is specified, “New York” refers to the state throughout this report.
7
• Increased number of guardians. New York should a nursing home or similar residential facility, leaving
pursue multiple approaches toward increasing a serious and sometimes life-threatening void where
the number of available and skilled guardians to there is no one to make health and personal decisions
serve indigent individuals in need as a last resort and oversee facility care. Moreover, the programs are
after less-restrictive options, including supported overwhelmed with cases.
decision making, have been examined.
New York Judicial Rules, Part 36, provides for appoint-
ments by the court, including appointments of guard-
Who serves as ians. The Part 36 list is predominantly composed of
guardian for the target lawyers, whereas it is often social work skills that are
needed. Additionally, the number of professionals on
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
8
A study in 14 counties by the Brookdale Center for Article 81 specifies that the judge should issue an
Healthy Aging at Hunter College found that, on average, order within seven days after the hearing, unless for
it takes 211 days—significantly longer than the Article good cause shown, yet the Brookdale study showed
81-mandated 50 days—from the filing of a petition it took an average of 82 days. Sometimes judges need
for guardianship to the commissioning of a guard- extra time to find the best and least restrictive answer
ian. Guardianship cases are complicated and require in difficult cases. Mediation may be helpful, especially
sufficient time and attention to individual needs and with family disputes. However, several of our survey
rights—and this is especially so for no- or low-fee cases respondents cited “bottlenecks” concerning the proposed
with scant resources at hand and no one to serve. Yet order and offered practical solutions.
some delays may stem from systemic inefficiencies
Article 81 specifies 15 days from the date of the
that result in wasted efforts and higher costs. Our
order to the guardian’s commission, yet the Brookdale
surveys and interviews sought reasons for the delays
study found it took an average of 66 days. This may
and possible solutions.
be due to court backlogs and attorney delays, but
While Article 81 provides 28 days from the filing of also lay guardians frequently don’t realize that their
the petition to the first hearing, the Brookdale study authority depends on getting not just an order but also
found it takes an average of 63 days. Some delays are a commission. Survey respondents proposed ways
inherent in the very nature and complexity of the cases— to help guardians and to simplify and streamline the
time for needed accommodations, investigation, and commission process. Our survey also found bonding
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
10
practices uneven and that bonding guidelines might • Employ additional clerks. New York should
be useful. provide funding for the addition of administrative
staff trained to move the guardianship process
Article 81 requires the guardian to file an initial report
forward in a timely way.
after 90 days and an annual report thereafter. The
Brookdale study found the average time to the filing • Consider complaint resolution approaches.
of a first report is 237 days. Our study confirmed that New York should explore complaint procedures
a substantial number of reports and accountings are from other states so that problems can readily be
not submitted on time. Often lay guardians lack expe- brought to the attention of courts and consider
rience and training in filing a timely and complete dispute resolution options such as mediation and
report and accounting; survey respondents urged ombudsman functions.
ways of making filing easier. Other delays may be
due to the lack of banks understanding of a guardian’s
authority. Survey respondents emphasized the need
How do other states
for a uniform statewide template for initial and annual provide comparable
reports. An additional issue pointed out by interviewees
was the need for a guardianship complaint procedure services?
or ombudsman function.
As part of our study, we invited programs from other
In response to these findings, our study makes the states that had participated in the national public guard-
following recommendations: ianship study by Teaster et al. (2010) to complete a brief
update in order to inform efforts in New York. We were
• Develop uniform documents. New York courts
able to gather information from five sites in five states:
should create uniform documents for the petition,
the Pima County Public Fiduciary (Arizona); the Office
order to show cause, initial report, and annual
of the Public Guardian (Los Angeles County, California);
report.
the Office of the Public Guardian (Delaware); the Office
• Facilitate filing of reports to enhance monitoring. of Public and Professional Guardians (Florida); and the
New York courts should generate reminders of Cook County Office of the Public Guardian (Illinois).
filing deadlines, provide reporting instructions and Highlights of our findings and recommendations for
samples, and offer electronic filing options. There New York included the following:
is also a need to educate banks about guardian
• Array of funding. New York programs must have
authority to avoid unneeded delays.
adequate funding from a stable set of funding
• Expedite guardian commission process. New sources. Most of the public guardian programs
York courts should educate lay guardians about in the other states we looked at have funding
the need to get a commission and consider ways derived from an array of sources, including state
to combine or streamline the order/commission funds, county funds, grants/foundations, client
process. fees, and estate recovery. Only Delaware had
one funding source.
11
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
12
its inception. TGP’s struggle to sustain itself is not due Throughout the year, the program examines case
to its programmatic model, however, but rather, due records; however, staff could go deeper via more
to its mix of high-fee, low-fee, and no-fee cases that routinized and sustained efforts by the whole staff.
the court orders TGP to take. Often, it is the most
• Optimize mix of cases and caseloads. Case
resource-intensive cases that are very low or no fee.
managers’ caseloads should be reviewed regarding
Hence the need for programs (and alternative funding
staff-to-client ratios as well as mix of cases given
sources) specifically to serve indigent persons.
to each case manager.
Section 1: Introduction
In 2005, the Vera Institute of Justice and New York State’s Office of Court
Administration initiated The Guardianship Project (TGP) to serve as court-ap-
pointed agency guardian to a vulnerable, largely indigent population—elders
and persons with disabilities lacking family or other supports—thus enabling
them to live as independently as possible. In launching TGP, Vera sought
to cast a spotlight on a desperately missing element of the social safety net
and to provide an approach that humanely addressed critical needs for
individuals in a way that allowed key institutions to operate in concert and
more effectively. Guardianship is one among an array of mechanisms (e.g.,
supported decision making, agent under power of attorney for healthcare,
power of attorney for finances, healthcare proxy, advance directive, living
will) to help people with decision making when they are unable to do so in
part or completely—temporarily or permanently.
Under New York law, there are two kinds of guardians for adults. Under
Article 81 of the New York Mental Hygiene Law, a Supreme Court, Civil
Branch or a county court, may appoint a guardian for an adult to manage the
adult’s personal and/or financial affairs when the court finds the individual
is not able to do so. Under Article 17A, a Surrogate’s Court may appoint a
guardian for an adult with an intellectual or developmental disability. This
report concerns appointments under Article 81. According to the statute,
such Article 81 appointments are only warranted when there has been a
showing to a judge that a person has functional limitations, is unable to
recognize the extent of those limitations, is likely to come to harm as a result,
and there are no less-restrictive options.
14
Nationally, while data is scant, the number of persons who need help with
decision making through guardianship or a less-restrictive option appears to
be growing. This growth is attributable to an aging population (the graying
of the Baby Boomers), increased longevity, increased awareness of mental
illnesses and developmental disabilities, military service-related disabilities,
advances in medical treatment, the aging of caregivers, the rising awareness
of elder abuse, and the occurrence of blended families and their increasing
mobility. Although there are few statistics on adult guardianship filings
and caseloads, it is clear that the demand for adult guardianship services is
increasing across the country (Teaster et al., 2010). For example, in New York,
from 2007–2011, the average number of initial New York State guardianship
filings under Mental Health Law Article 81, as reported by the Office of Court
Administration, was almost 2,400 cases per year. Because accurate data
collection is lacking, as yet there is no way to determine exactly how many
cases, and thus, types of guardians, are currently still active in the system
from previous years.
Types of guardians
When classifying guardians who are appointed to assist people who are in
need of this type of surrogate decision maker, it is necessary to distinguish
between private guardians and public guardians. Most guardians are private
guardians and typically family members or friends, although attorneys,
corporate trustees, agencies, or even volunteers also serve in this role.
Attorneys, corporate trustees, agencies, and volunteers generally have the
discretion to choose cases for which they wish to serve. While there are a
number of factors that affect their determination, the intensity of services
needed and availability of payment are two strong incentivizing factors.
Unlike persons with family and friend connections, it can be difficult to
find guardians for at-risk people and/or people with low incomes and high
needs. Attempts to locate a suitable surrogate decision maker can lead to
delays in selecting a guardian and/or the appointment of a guardian who
is ill equipped to meet the needs of the person needing the services of a
guardian. As a result, those with low incomes may fail to receive need-
ed services; fall prey to third-party interests; become victims of abuse,
neglect, and exploitation; have inappropriate or insufficient health care;
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
15
and receive inappropriate placement in facilities. To fill this gap, for people
who are aging alone and without resources, as a last resort, there are public
guardians.
Public guardians
Public guardians, such as TGP, represent a small but highly important subset
of guardians. Public guardianship, sometimes called guardianship of last
resort, refers to the appointment of a public official or publicly funded entity
as guardian in the absence of willing, able, and responsible family members
and friends to serve, or without resources to employ a private guardian
(Schmidt et al., 1981; Teaster et al., 2010). All states have either implicit or
explicit public guardianship—that is, in an explicit scheme, the state estab-
lishes a public guardianship program; whereas in an implicit scheme, a state
designates a state agency to serve (public guardian programs are funded
through state appropriations, Medicaid funds, county monies, legislated
fees from the individual under guardian, or some combination). Among
the populations that public guardian programs often serve are people with
mental illness, traumatic brain injury, intellectual disability, or developmen-
tal disabilities; the homeless; substance abusers; and persons with chronic
diseases, such as dementia.
The purpose of this project was to analyze ways to increase and improve
guardianship and decision support services for individuals in New York City
and statewide whom the court has deemed “incapacitated” and who are
alone with no one to help. Its objectives were to: (1) document the need for
guardianship and decision support services for the population; (2) assess
the current local and state ability to meet that need; (3) understand the best
practices of states providing comparable guardianship and decision support
services; (4) assess the TGP model of guardianship to ascertain if it is an
appropriate model for expansion to meet the increased need in New York
City and in other parts of the state; and (5) highlight barriers in court guard-
ianship processes in New York City and state and improvements that might
be made.
16
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
17
TGP cases usually involve the coordination of complex legal, health care,
case management, and property issues that would be difficult for an individ-
ual guardian to effectively manage due to the resource intensive nature of
these cases and the breadth of knowledge needed to adequately address the
diversity of issues faced by the client. Individual cases are handled by a team
of TGP staff. TGP lawyers manage all legal matters, including litigating on
collateral issues. Case managers offer intensive social services and discharge
planning. A benefits specialist coordinates any and all public benefits for
which clients are eligible, including Medicaid, food stamps, Supplemental
Security Income, rental supplement, etc. The financial team offers assistance
supervising assets, including marshaling bank accounts and overseeing
investments, budgeting, and bill payment. TGP’s property manager works
with landlords, tenants of clients who own property, and the clients them-
selves, in order to keep homes safe and secure for residents.
TGP staff members navigate issues that their at-risk clients face, includ-
ing but not limited to entitlements, budgeting, health care, housing, as well
as those in the legal, financial, and medical systems. From July 1, 2014, to
November 30, 2018, TGP served as court-appointed guardian for 257 living
clients and performed work in furtherance of discharge of TGP as guardian
for an additional 111 clients who passed away before or during that time
period. As of November 1, 2018, TGP was actively commissioned on 160 living
clients. In addition to these clients, TGP is working on 55 cases where an appli-
cation for discharge has been made, mostly in response to a client’s death.
capita income in New York City ($66,800) (U.S. census 2017). Nearly half (42
percent) are living at or below the poverty threshold for 2018 ($12,060 for
a single-family household) (Health and Human Services, 2018). Over three-
fourths (81 percent) of all clients are Medicaid recipients. Over this period,
TGP has been able to maintain approximately 57 percent of its clients in
community settings. Although most of TGP’s clients are older adults and poor,
all its clients have one thing in common—they have no one else to reliably
take care of them at a time in their lives when they are deeply, and in many
cases, dangerously vulnerable.
Once appointed, TGP strives to help its clients return to or remain in their
homes and avoid unnecessary and costly nursing home admissions, hospital
stays, and other types of institutionalization. In fiscal year (FY) 2018, TGP
returned or maintained approximately 57 percent of its clients in deinstitu-
tionalized settings. Although TGP attempts to keep as many of its clients as
possible in the community, its goal is to provide every client, regardless of
his or her habilitation status, as much self-determination and agency as each
situation allows.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
19
Section 2: Methods
This project examined ways to increase and improve New York’s guardianship
system and other ancillary decision support services for a growing population
of indigent individuals adjudicated by the court as “incapacitated,” and who
have no family or friends able or willing to serve. The project also assessed
the TGP model to determine whether it is considered effective, efficient,
and sustainable by a variety of stakeholders and staff. Evaluation of the TGP
model helps inform the scalability of the project in other areas as well as
serves as an impetus for a system of guardianship in the state of New York.
2 Originally, the project team also included Winsor C. Schmidt, JD, LLM, Metrolina Medical Foundation
Distinguished Professor of Public Policy on Health, University of North Carolina at Charlotte. Professor
Schmidt, a longtime colleague of Wood and Teaster, died on May 18, 2018. Professor Schmidt had a
special interest in guardianship in New York, as he was a native of New York.
20
Guardians 33
Judges 23
Court evaluators 66
Court examiners 18
Judges: 5
Court examiners: 1
Guardianship stakeholders
Mental hygiene legal services: 4
Misc.:4
TGP staff 8
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
21
Note: TGP staff included the interim executive director, director of legal services and former director
of legal services, former director of finance, director of case management, the legal department, the
finance department, and the case management department.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
23
family members.
The cases. The cases show a tangled and acute mix of mental health prob-
lems, dementia, abuse, exploitation, and problematic family dynamics. There
is often no money, no available housing or long-term supports and services,
and no one to serve when a surrogate decision maker is needed. In our inter-
views, we learned the fact patterns of many challenging cases, for example:
• An older woman was being abused by her grandson, who was using all
her money and had taken over her house, forcing her to sleep in the
living room, without medical treatment. The landlord complained that
the rent was not being paid.
• A nursing home resident fell, and her daughter petitioned for guard-
ianship. The daughter planned to shelter the settlement money illegal-
ly and was not aware of Medicaid regulations.
The unmet need. Like most states, New York has no statewide database
showing the number and characteristics of open guardianship cases. Thus,
it is difficult to quantify increases in the caseload and even more difficult to
estimate the extent of unmet need. The Office of Court Administration (OCA)
has recognized the need for guardianship data and has begun in mid-2018
to collect case-level information. OCA has asked that judges, after issuing
an Article 81 Order appointing a guardian, complete a data sheet recording
information about the petitioner, guardian, individual subject to guardian-
ship, and the order. The request includes two specific questions on the unmet
need for guardians: whether the individual’s lack of assets limits the choice
of available guardian; and whether the assets and/or income is sufficient to
adequately compensate a guardian (New York Office of Court Administration,
2018).
Over half the responding judges said that there are not enough resources to
handle their current, active caseload involving these no-fee or low-fee cases
and named an increased number of guardians and increased number of
clerks as resources that would help. Over 80 percent indicated it can be
difficult to find an appropriate guardian to serve for the no-fee or low-fee
cases—and over 55 percent said this occurs “most of the time.” When asked
whether there are a sufficient number of guardians with skills to take the
no-fee/low-fee cases, 60 percent said no, but 40 percent said yes. Comments
attributed the difficulty of finding qualified guardians to the fact that the
work required exceeds available payment.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
25
caseload, and over 70 percent reported they had enough resources to handle
the cases, although many said that an increased number of available guard-
ians and an increased number of clerks would enable them to better handle
the cases. Just over half of responding judges said that it is sometimes even
difficult to find an appropriate guardian for fee-generating cases, noting
that attorneys are reluctant to take on the responsibility and that they seek
a higher rate than is approved—and that it is hard to match the needs of the
individual with the skills of a potential guardian.
or low-fee cases.
Within the overarching unmet need, there are two specific situations in
which the gap is especially harsh:
• “More time needs to be spent on the social work aspects of these cases.”
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
27
• “We’re dealing here with people who don’t fit the typical lawyer–client
relationship, and they need help from those who are well versed in not
only Medicaid, but supportive housing and community services, and
mental health services.”
Most people want to stay in their home and community. Ideally, guardians
would facilitate this strong desire if possible. One judge interviewee lamented
this predominant “pipeline to nursing home pattern,” noting that the way
the system is set up around asset spend-downs for nursing home placement,
there is a disincentive for guardians to do the right thing by trying to keep
people in the community. Another said that it is critical to put money toward
28
“good guardianship,” not just guardianship to fill a gap, and noted that poor
guardianship can be extremely costly.
resort.
In our survey, the responding court evaluators said that they recommend
such options in only 0 to 20 percent of their cases, and most recommend
it “seldom.” They recommended limited guardianship orders in only 0 to 20
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
29
percent of their cases as well. It was not clear if the reported low usage was
because by the time the cases reach the evaluator, the needs are too great and
there are simply no workable options.
3 This observation was made in the most recent study of public guardianship by Teaster et al. (2010).
30
rental subsidies, showing an ability to navigate the system, and once these
were in place, she did not need a guardian.
The goal of limiting guardianship does not end with the appointment of a
guardian, but also must take into account the changes in functional status
and available supports that occur post-adjudication, something that seems
to rarely occur in the current system in New York. Our survey asked judges
about the percentage of cases in which they had terminated a guardianship
and restored rights to the individual. Close to 47 percent of judges report-
ed they terminated a guardianship order and restored rights in less than 1
percent of their cases, 20 percent said they took such actions in 1 to 2 percent
of cases, and the remainder did so in either 3 to 5 percent or 6 to 10 percent
of their cases. This confirms the findings in a 2017 national report about
restoration of rights, finding it very rare—and not even tracked by most court
systems. A recent news story profiled the poignant case of a New York resi-
dent seeking termination of a guardianship and restoration of rights (Leland,
2018).
To protect against eviction, the court will appoint a guardian ad litem, and
that appointment may lead to a guardianship petition. However, according
to a court evaluator, often the person “is just poor and no judge wants to put
them out on the street. You wind up with a lot of cases where the person is
adjudicated as incapacitated, but actually has a personality disorder, and the
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
31
landlord does not want to continue renting to them. These cases are difficult
for the court examiner because the person does not want or need a guardian—
needs help but it might not be a guardian.”
Section summary
With a rising population of older persons, increasing dementia, increas-
ing longevity for individuals with disability, and a likelihood that family
members will be spread out geographically, there will be a continued and
escalating need for guardians as well as other decisional options. While data
is lacking, our study uncovered a compelling and undeniable unmet need for
guardianship and related services for individuals who are indigent, have been
named by a court as “incapacitated,” and who have no one to serve.
The cases are often urgent and concern the neediest in our society, with an
alarming mix of Medicaid, housing, mental health, long-term care, and social
services issues—and often, with no one to help. The need is especially intense
for nursing home residents and for individuals at risk of eviction from
housing.
Guardianship databases would help clarify and focus the unmet needs
and suggest solutions. Clearly, there is great demand for more available and
skilled guardians as well as more attention to less-restrictive options and a
greater emphasis on the social work skills required to sort out the pressing
human needs.
32
Recommendations
• Data. New York should continue and intensify its collection of basic
guardianship data to better inform estimates of unmet need and
strategies for meeting the need.
• Social work skills. New York should find ways to increase the number
of professionals with social work and nursing skills to act as guardians
for individuals with no family or friends to serve.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
33
• New York Social Services Law on Adult Protective Services states that
APS services include: “Arranging, when necessary, for commitment,
guardianship, or other protective placement for [eligible] individuals
either directly or through referral to another appropriate agency...”
[Article 9B, Title 1, 473(c)].
Thus, in New York, APS is the designated “guardian of last resort.” The
national public guardianship study (Teaster et al., 2010) called such an agen-
cy designation an “intrinsic” form of public guardianship—that is, there is
no established program devoted to the function, but if there is no one else
to serve, an executive agency is named by the court, and the head of the
agency then selects staff to manage cases. The 2017 APS Guardianship Map
(Appendix B, Bureau of Adult Services, Office of Children and Family Services)
shows the number of cases in which the local commissioner of social services
was appointed by the court to serve as guardian, designating APS staff or a
contracting agency (see below, section on “community guardian programs”)
to fulfill responsibilities. The map shows that in 2017, there were 3,023 cases
(as compared with 2,886 in 2016). A striking pattern shown in the map is that
35
in most upstate counties, there are very few active adult guardianship APS/
department of social services cases, but the number increases in the midstate
area and spikes dramatically downstate, particularly in New York City (where
contracting community guardian programs serve).
• Petitioning vs. serving. In some areas, such as New York City, APS
petitions but does not serve as guardian (due to the presence of the
community guardian programs). In many mostly upstate areas, APS
both petitions and serves.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
36
Our surveys and interviews revealed that most courts and stakeholders in
the system are grateful that APS may be appointed if there is no one else and
that caseworkers generally have the expertise and services needed. APS has
contacts and knowledge to manage care and finances. However, appointing
APS as guardian is perceived by some as not ideal, due to the conflict, and it in
no way fully meets the glaring need for guardians as last resort. Additionally,
it pulls APS away from performing its other important functions of adult
protection. Our respondents said, in sum:
• Serving as guardian is not the primary role of APS. APS staff have a
heavy load of tasks to detect and address adult abuse across a broad
range of settings and must engage with clients, often under trying
circumstances. Serving as guardian “diverts resources from their
other mandated services.”
case. This closes off an essential outside eye on guardianship and prevents
investigations that would be useful to the court in monitoring.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
38
At the same time, some interviewees stated that the community guardian
programs, while knowledgeable, are overwhelmed, have significant staff
turnover, sometimes turn in incomplete reports, and cannot handle the
pressing need in a timely way. Simply put, they are beyond their capacity.
The cap was recently raised to the $100,000 level to expand the number of
professionals on the list who will take cases.
• “I am often the person who has to make unpopular decisions, and the
person I am helping rarely understands the help I provide.”
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
40
Limitations on payment. Our surveys found that the cap, even with the
recent raise, can “eliminate good guardians” and that the scant compen-
sation “generally overcomes the time-consuming responsibilities.” Several
survey and interview respondents said there is an informal quid pro quo for
better paying cases, but this is not written anywhere, can’t be relied on by
attorneys, and is problematic for judges. One judge we interviewed said, “I
would like to know that when I am presiding in a case where the [individual]
will need a guardian who won’t get fees that I don’t need to make deals with
those on the Part 36 list for them to be appointed.” A legal practitioner stated,
“More people including myself would be more apt to take a low paying case if
there was some guarantee” of better payment or a fee-generating case.
Many practitioners simply said they could not keep up their solo practice
with high-input, low-fee, or pro bono cases. However, a few noted they felt
“an obligation to accept no-fee/low-fee cases” and that it was “gratifying” to
help the people involved. One judge emphasized the “compassion” of some on
the list, particularly knowledgeable elder law attorneys who are dedicated to
their service.
Legal vs. social work needs. A related issue is whether the payment for
attorneys is or should be at their rate for legal work, or at a lower rate
for guardianship services, many of which are not law-related. One judge
commented, “the issue of fees is the elephant in the room as there is no rule
on fees for lawyers who serve as guardian.”
We discovered that no complete list of such agencies existed, and our study
sought to compile a list through queries to interviewees (see Appendix C).
Though it may not be fully complete, it offers the best compilation to date and
invites additions.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
42
• “We have one service provider, but when they have a conflict or reach
their limit of cases they can take, it is difficult to find an alternative.”
• “We do have an available not for profit which will act as guardian, but
they require a minimum monthly stipend which many incapacitated
individuals cannot afford.”
• “We need more funds for agencies to serve as guardians or funds for
those appointed to draw from to compensate them.”
• “There are only two nonprofits in the county, and one has stopped
taking cases.”
“public guardianship issues for New York” (Schmidt, 1996). In 2001, the New
York Courts’ Commission on Fiduciary Appointments recommended that
“public funds should be available to compensate Article 81 guardians in cases
involving minimal or no assets” and noted that “one option is the creation of
a public guardian office…“(Commission, 2001). In 2004, the Second Judicial
Department Guardianship Task Force maintained that “the only real solu-
tion…is to establish an Office of Public Guardianship” (Supreme Court, Second
Judicial Department, 2004). In 2016, the Brookdale Center for Healthy Aging
study supported “development of publicly funded guardianship programs
that can provide comprehensive case management to eligible clients in need
of services.”
Our study found high support for increased funding, with many referenc-
ing the potential of a public guardianship program. Close to 90 percent of
responding judges and all of our interviewees said there is a significant need
for increased funding in New York State to provide guardians in these no-fee
and low-fee cases. Comments included the following responses:
• “We need a public guardianship program, and even more than that, we
need the computer tools to enforce compliance.”
In 2018, the New York legislature took a first step toward recognizing the
unmet need for guardianship service. The legislature provided a $500,000
appropriation for two pilot projects—one in Suffolk County and one in
Nassau County. New York State Senate appropriations language specified
that the funding was “to facilitate the use of non-attorneys to serve as guard-
ians appointed by a court under Article 81” (New York State Senate, 2018).
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
44
Section summary
New York has four “guardian of last resort” schemes for individuals who are
indigent, have been judicially deemed “incapacitated,” and have no family or
friends to serve. Each contributes to meeting the need for these persons in
important ways. Each is stretched. Taken together, they fall markedly short of
meeting a compelling need.
New York law and regulations provide for local commissioners of social
services to act as guardian of last resort. In some but not all areas of the state,
the commissioner names Adult Protective Services (APS) to fulfill guardian-
ship responsibilities. APS guardianship practices vary throughout the state.
However, APS as guardian is a clearly conflicting role, staff is often overbur-
dened, and the system is underresourced.
45
New York law also provides for community guardian programs funded
by local social services offices. New York City has three such programs.
Community guardian programs must relinquish cases when a person enters a
nursing home or similar residential facility, leaving a serious and sometimes
life-threatening void where there is no one to make health and personal
decisions and oversee care by the facility. Moreover, the programs are over-
whelmed with cases.
New York Judicial Rules, Part 36, provides for appointments by the court,
including appointments of guardians. The Part 36 list is predominantly
lawyers, though the skills required of the guardians usually extend well
beyond the legal arena and are so diverse as to make it difficult to find a
single individual appointee well equipped to meet all needs. Additionally, the
number of professionals on the list willing to serve as guardians (as opposed
to court evaluators, court examiners, or other roles) has dwindled and may of
the best are capped out, even with the recent increase in the cap, and cannot
take additional cases. Many cannot afford to take no-fee/low-fee cases of the
enormous complexity and time-intensity required.
New York has scattered not-for-profit social service agencies that, among
other services, take guardianship cases using meager funds from the estates
or small Medicaid stipends where there is any income to be managed. Such
agencies are vastly underfunded to serve as guardian and do not exist
throughout the state. There was agreement by those we interviewed that
funding for additional nonprofits, especially those similar to the TGP model,
would help to staunch the unmet need.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
46
Recommendations
• Funding for diversity of services. New York should provide addition-
al funding for a diverse pool of guardianship and decision support
services. Funding for such services should prioritize living in the
community as a primary goal, similar to TGP (see Section 7). Funding
should include Medicaid payment in nursing home cases.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
48
Since the enactment of Article 81, reviews have sought to determine how
well practice is carrying out the law’s intent—including a 2001 New York
Courts report on fiduciary appointments (Commission, 2001), a 2004 Second
Judicial Department Guardianship Task Force Report (Supreme Court, 2004)
and others. The Brookdale Center for Healthy Aging at Hunter College
completed an in-depth file review in 14 New York counties, examining a total
of 2,414 Article 81 guardianship case files (Callahan et al., 2016). Along with
TGP, the Office of Court Administration assisted the project in accessing the
files. The Brookdale project examined basic demographic data on individuals
served, petitioners, and guardians; reasons for guardianship; length of the
process; monitoring; and outcomes in terms of social services and public
benefits secured.
Shortly after the enactment of Article 81, a law review article noted that:
Not all of our survey and interview respondents perceived any bottlenecks
in the system—including 40 percent of judges surveyed, almost 37 percent
of court evaluators, 53 percent of court examiners, and 29 percent of practi-
tioners. Others saw delays but reported that while the processes are lengthy,
they appropriately allow for attention to needs and rights, observing that the
50-day statutory timeframe is simply unrealistic and even unfair: “Frankly,
50 days is a ridiculous number. No one’s rights should be infringed upon with
such a rushed judicial process.” Many, however, described various unneces-
sary roadblocks in three phases of the process, as summarized below.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
50
• “Attorneys for the parties often need to investigate issues like mental
illness, which require time and effort and contacting third parties.
Additionally, it seems like the pro bono cases sometimes take a back
seat in many attorneys’ caseload” see Section 6.
• Petition forms. The petition is the entry into the system. It can set
the case off on the right track or hold things up unnecessarily right
away. One judge commented, “our clerks reject many petitions due
to errors in form and substance.” Family members and other nonpro-
fessionals often find it challenging to fill out a petition form. Another
judge remarked that often petitioners fail to tell the court—and
it may not be elicited in the form—that the person does not speak
English, or cannot read English, and that a translator is needed. A
uniform, plain-language, accessible petition form could reduce
time-consuming errors in the petition and make sure that all needed
information is included. Clear instructions and samples can be help-
ful as well. Uniformity could also help clerks to review the form more
expeditiously.
• The court should contact the parties before sending out the order to
show cause to see if they are available on the date shown.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
52
majority of respondents did not perceive bottlenecks from the first hearing
to the order and judgment, some did—almost 27 percent of judges, almost 37
percent of court evaluators, and close to 12 percent of court examiners.
• “It would expedite the process if the court staff could print an order
and judgment right at the hearing rather than wait for one of the
53
Of course, flexibility to tailor the order to the individual needs of the person,
as required by Article 81, is important. But a uniform order template with
selected options could be both efficient and individualized (Frolik, 2002). A
uniform order and judgment form was recommended by the Second Judicial
Department Guardianship Task Force Report as early as 2004 (Second Judicial
Department, 2004).
• “Many guardians are not fully educated and need help to get their
commissions.”
• “In many counties, it takes an eternity for the clerk to record the notic-
es of entry. I have waited weeks…before I or my clients could obtain
commissions.”
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
54
• “At the hearing, give all lay guardians a handout explaining the
commission process.”
Our survey asked judges to name criteria they use in determining wheth-
er a bond should be set. They named asset amounts, results of background
checks, monthly income, and whether the guardian is a professional. In the
survey, 40 percent of judges said they set bonds in less than half of cases, and
one-third said they set bonds between 50 percent and 65 percent of cases.
Guidelines on bonding may be helpful to judges and clerks, to create more
uniformity of practice.
Reports and accountings are the primary way in which the court learns of
problems in the guardianship. Without a timely report (or with a failure to
report at all), the court has no way of assessing the well-being of the individ-
ual or the extent to which the guardian is carrying out fiduciary duties. One
judge commented that “It is hard to know if the guardian is actually doing
visits they should be doing and whether they are doing the best for the person
with the resources at hand.”
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
56
Also, one legal practitioner observed that banks do not always recognize the
authority of a guardian, accounting for additional effort and delay. The prac-
titioner suggested that the court offer education for banks on guardianship
and develop a form letter stating that the commission grants the guardian
the power to access financial information.
Notably, one judge urged the creation of an ombudsman for the guard-
ianship process—a recommendation that was made as early as 2001 by
the Commission on Fiduciary Appointments. The commission found that
“laypersons believe they have nowhere to go with questions and complaints”
and urged that the court system “designate an ombudsman to provide
information and field complains about the fiduciary process” (Report of the
Commission, 2001).
Section summary
In the development of Article 81, maximizing self-determination and expedit-
ing guardianship cases were both prominent features. While it is important
to comply with time deadlines set out in the law, it is also important to focus
on the individual and support his or her rights. The balance may be challeng-
ing. Our study examined issues of timing in court processes and monitoring
to identify solutions that streamline procedures yet preserve rights.
A 2016 file review in 14 counties by the Brookdale Center for Healthy Aging
at Hunter College found that on average, it takes 211 days—significantly
longer than the Article 81 mandated 50 days—from the filing of a petition
for guardianship to the commissioning of a guardian. Guardianship cases
are complicated and require sufficient time and attention to individual
needs and rights—and this is especially so for no- or low-fee cases with
scant resources at hand and no one to serve. Yet some delays may stem from
systemic inefficiencies that result in wasted efforts and higher costs. Our
surveys and interviews sought reasons for the delays and possible solutions.
While Article 81 provides 28 days from the filing of the petition to the first
hearing, the Brookdale study found it takes an average of 63 days. Some
delays are inherent in the very nature and complexity of the cases—time for
needed accommodations, investigation, and evaluations. Other delays may be
addressed through solutions such as a uniform, plain-language petition, as
well as additional court clerks to move the process ahead.
Article 81 specifies that the judge should issue an order within seven days
after the hearing, unless for good cause shown, yet the Brookdale study
showed it took an average of 82 days. Sometimes judges need extra time to
find the best and least restrictive answer in difficult cases. Mediation may
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
58
Article 81 specifies 15 days from the date of the order to the guardian’s
commission, yet the Brookdale study found it took an average of 66 days. This
may be due to court backlogs and attorney delays, but also lay guardians
frequently don’t realize that their authority depends on getting not just an
order but a commission. Survey respondents proposed ways to help guard-
ians and to simplify and streamline the commission process. Our survey
also found bonding practices uneven, and that bonding guidelines might be
useful.
Article 81 requires the guardian to file an initial report after 90 days and
an annual report thereafter. The Brookdale study found the average time to
the filing of a first report is 237 days. Our study confirmed that a substantial
number of reports and accountings are not submitted on time. Often lay
guardians lack experience and training in filing a timely and complete report
and accounting; and survey respondents urged ways of making filing easi-
er. Other delays may be due to lack of bank understanding of a guardian’s
authority. Survey respondents emphasized the need for a uniform statewide
template for initial and annual reports. An additional issue that came up in
the interviews was need for a guardianship ombudsman mechanism.
Recommendations
• Develop uniform documents. New York courts should create uniform
forms for the petition, order to show cause, initial report, and annual
report.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
60
4 The following ten participants from the previous study were all invited to participate: Pima County
Public Fiduciary (Arizona), Maricopa County Public Fiduciary (Arizona), Office of the Public Guardian,
Los Angeles County (California), San Bernardino County Public Guardian (California), Office of the Public
Guardian (Delaware), Office of Public and Professional Guardians (Florida), Office of the State Guardian
(Illinois), Cook County Office of the Public Guardian (Illinois), Public Guardianship Services, Senior Legal
Assistance, and Elder Abuse Prevention, Maryland Department on Aging, and Adult Public Guardianship
and Office of Adult Services, Maryland Department of Human Services (Maryland).
61
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
62
FUNDING pima county los angeles delaware (state florida (state cook
SOURCES (az) county (ca) program) program) county (IL)
Federal
State X X X
County X X X X
Medicaid
Grants/foundation X
Private donations
Client fees X
Estate recovery X X
Other
All the programs were empowered to make decisions about people’s personal
and financial affairs. All the programs had the following roles: monitoring the
delivery of services, arranging for the delivery of services, and advocating for
services. The Cook County Office of the Public Guardian (Illinois) also had respon-
sibility for directly providing some services. In their role as surrogate decision
maker, programs also serve as representative payees, personal representatives of
decedents’ estates, private guardian, and providers of supported decision making.
program pima county los angeles delaware (state florida (state cook
roles (az) county (ca) program) program) county (IL)
Representative
X X X
payee
Personal
representative
X
of decedents’
estates
Private
guardianship X
services
Supported
X X
decision making
63
For fiscal year 2017, Table 6 shows the cumulative total of public guardian
clients served by each program.
We asked the programs to provide for us, for fiscal year 2017, the approxi-
mate number of people served in the following age groups.
TABLE 7. total number of people served in fiscal year 2017 by age group
age groups pima county los angeles delaware (state florida (state cook
(az) county (ca) program) program) county (IL)
People 65+ 50% (185) Don’t know 45% (122) 50% (1600) 66% (462)
People 18-64 50% (185) 39% (107) 50% (1600) 33% (231)
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
64
For fiscal year 2017, we asked programs to describe the primary residence
clients (Table 9). Residences varied widely across the programs.
primary pima county los angeles delaware (state florida (state cook
residence (az) county (ca) program) program) county (IL)
Own home or
X X X
apartment
Assisted living X X X
Nursing home X X X
Mental health
X X
facility
Group home X X X
Acute hospital X X X
Jail X X X
Missing or
whereabouts X
unknown
Other X
Restoration of rights. For fiscal year 2017, one person subject to guardian-
ship was restored to partial legal capacity in Delaware, and 10 people were
restored to full legal capacity in Cook County, Illinois, which has a significant
population of younger clients.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
66
Cook County Office of the Public Guardian (Illinois). “1. The bar/restau-
rant in Wrigleyville discussed earlier. 2. We have many challenging hoarding
cases including cases with severe environmental hazards, such as mold and
chemical contaminants. 3. Some of our financial exploitation recovery cases
are very complex, challenging, and resource intensive, especially those with
financial institutions as defendants. 4. We have people going through difficult
divorces, which are resource intensive cases.”
Cook County Office of the Public Guardian (Illinois). “1. Our outstanding,
caring, compassionate, smart, hardworking, passionate, tenacious interdis-
ciplinary staff. 2. Our financial recovery program. 3. Our home care program.
4. Our sophisticated asset management and collection practice. 5. We imple-
mented one of the first digital asset-collection programs. 6. Our access to top
consults in virtually all professions due to our location in Chicago.”
Office of the Public Guardian (Delaware). “OPG has excellent case manag-
ers and focuses on providing consents that reflect what the client wants for
themselves and will advocate strongly for the clients’ desires, despite being
guardian.”
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
68
Cook County Office of the Public Guardian (Illinois). “By far, our biggest
challenge is resources. Our resources have been going down every year while
our caseloads, and the complexity of the cases, continue to increase. Last year,
Cook County had a $200 million deficit to fill, and next year, it is expected to
be another $80 million.”
significant vacancies and turnovers which impacts service delivery and abili-
ty to meet legal and fiduciary mandates.”
Section summary
While the mix of information from county and state programs around the
country are not representative of all programs, information from each paints
a picture of public guardianship that is illuminating in its own right and
instructive for New York as it contemplates the replication of TGP and the
expansion of public guardianship programs across the state.
Recommendations
• Array of funding. New York programs must have adequate funding
from a stable set of funding sources. Funding derived from an array
of sources, including state funds, county funds, grants/foundations,
client fees, and estate recovery. Only Delaware had one funding
source.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
70
• Live at home. New York programs should work to keep people in their
own homes as much as possible. Primary residences of people under
guardianship varied across the programs.
Vera, OCA, and Samuels originally planned to have TGP clients at all levels
of income and assets, and to fund the program appreciably with fees from the
73
one-third of clients who were expected to have significant income and assets.
However, TGP ended up with appointments of mostly indigent clients and a
relatively low percentage of clients with the ability to pay fees. This, therefore,
necessitated an important shift in TGP’s business model and greater reliance
on government contracts and foundation support. (See Budget section below
for more detail on TGP’s funding sources.)
TGP receives its referrals directly from the appointing courts and is typi-
cally called upon to serve in cases where there are limited resources and the
complexities of the case put the incapacitated person at risk of being unnec-
essarily institutionalized in an overly restrictive setting. Some of the common
presenting issues include difficulty securing adequate home care, need for
effective real property management, instability caused by severe mental
illness, elder abuse and exploitation, and adversarial landlord tenant issues
arising from client behaviors such as extreme hoarding.
Client census
In calendar year 2017, TGP served a total of 190 clients. TGP clients were 70
percent female, of whom 17 percent were 60 years or younger, 41 percent
were 61 to 80 years, 27 percent were 81 to 90 years, and 15 percent were 91
or older.5 TGP serves an ethnically diverse population: 52 percent white/
Caucasian, 27 percent black/African American; 15 percent Hispanic; 3 percent
Asian; and 3 percent other/unknown. Clients’ living arrangements are such
that 60 percent resided in their homes or communities, 37 percent resided
in a nursing home, and 3 percent were hospitalized. Over three-fourths (83
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
74
percent) lived below the New York City median annual income ($66,800),
42 percent lived at or below the poverty threshold ($12,060), and 87 percent
had active Medicaid.6 In addition to serving as guardian, TGP serves as Social
Security Administration representative payee for 98 percent of its clients.
Administrative structure
TGP staff visit clients at least once a month, even though the law mandates
only four visits per year, in order to prevent or proactively address challenging
issues that its clients face (e.g., dementia, serious medical problems, evic-
tion, elder abuse, and placement in institutional settings against their will).
An essential component of the work of TGP is accepting cases where a client
is languishing needlessly in a hospital or nursing home because no one will
take on the challenges of transitioning him or her back to their homes or to
a less-restrictive setting with proper oversight. TGP recognizes that keeping
as many individuals as possible in the community can save Medicaid dollars.
For example, a 2015 cost-benefit analysis shows that TGP was able to save
over $3.1 million in Medicaid dollars (the majority of which was from nursing
home avoidance for clients), which improved the quality of life for clients and
recognizes and respects each person’s autonomy and dignity (TGP, January
2018). Incorporated into TGP case standards is language mirroring that of the
National Guardianship Association, including that the program is client-cen-
tered and maximizes autonomy.
A unique aspect of the program is that TGP is able to access funding streams
beyond fees that allow the agency to maintain a low client-to-staff ratio allow-
ing the staff to spend more time on individual cases, identify and take actions
on what is best for client, and not have to factor in the number of other clients
waiting. In addition, but difficult to quantify, is the TGP ethos, which is a
unique culture dedicated to this particular type of work. TGP receives a subset
of cases from the court that are very difficult cases, cases that need special
5 Demographic information is for the 151 clients for whom TGP was actively serving as guardian on
June 30, 2017.
6 New York City and federal income statistics and thresholds are for 2017.
75
or to a less-restrictive setting.
Budget. The annual TGP budget is growing: it was over $1.8 million in
fiscal year (FY) 2016, almost $2.3 million in FY 2017, and projected to be $2.6
million in FY 2018. Seventy-five percent of the $2.6 million is from the Office
of Court Administration contract mentioned earlier. In addition, 5 percent of
the budget is from a second state contract, 10 percent from a city contract, 5
percent from foundation grants, and it is estimated that 5 percent will come
from court fees and Medicaid exempt payments. The court fees are gener-
ally calculated as a percentage of each financial transaction and requested
at the time of filing of the annual or final account, are paid for with client
assets upon approval by the court, and are awarded and paid often years
after the services are rendered. The FY 2018 budget amount is therefore
mainly income received in FY 2018 for services rendered in prior years, the
main exception being the monthly Medicaid exempt payments. The Medicaid
exempt payments (i.e., NAMI), as mentioned earlier, are $450–$500 per month
and subtracted from what the client owes Medicaid to be paid to the guardian
contemporaneously with the rendering of services. Currently, TGP collects
about $55,000 a year in NAMI fees from approximately 10 clients on Medicaid
living in nursing homes.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
76
Staffing model. TGP has an executive director to whom all of TGP’s senior
management staff directly report. There are four departments (legal, case
management, finance, and development/communications) and two special-
ties (property management and benefits coordination). The Legal Department
consists of a director, a deputy director and two staff attorneys. The Case
Management department consists of a director, eight case managers, and a
benefits coordinator. The Finance Department consists of a director and six
finance associates. A real property manager also directly reports to the exec-
utive director. The Development/Communication Department consists solely
of a director of development/communication. TGP also has an administrative
coordinator who oversees two part-time employees who provide clerical and
receptionist support, both of whom are paid by the New York City Department
for the Aging.
Also assisting TGP in its work are various interns, volunteers, fellows, and
temporary staff members who work with the program at any given time.
Human resources and information technology functions are performed
by the central office at the Vera Institute and the New York Unified Court
System, respectively.
connected with a retired corrections officer. The program has matched about
15 volunteers with clients.
Attrition. TGP is limited as to the salaries it can pay. If staff members move
on, then TGP replaces them by recruiting qualified candidates. TGP conducts
rigorous background checks on its prospective employees. Turnover seems
to come in waves. Case managers are the cornerstone of services, which are
stable when people have remained for two or more years. Turnover, according
to one former executive director, is no higher than other legal services or
social work positions. The work is difficult, and so people leave due to burnout
and licensing requirements. John Holt is the longest standing member of TGP,
having been with the organization as a full time-staff member since 2010 and
having worked as a legal intern since 2009. There has been significant turn-
over of executive directors, with four permanent and three interim directors
from 2005 to 2018.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
78
organization does.
Program functioning
Collaboration amongst TGP’s teams is at the heart of program functioning
because of the organizational structure and model. Once TGP is appointed
the guardian, the program determines the extent to which the client can
participate in decision making. Case managers do an initial assessment and
get a sense of the clients’ needs and wants; finance investigates what income,
expenses, and assets they have; the property manager assess their home,
if applicable; and then staff meet as a team (i.e., representatives from the
departments of case management, legal, and finance department) to develop
a plan with which they are constantly balancing autonomy versus safety.
During the team meetings, they determine if there are family or friends that
are or can be supports for the client, though unfortunately, that is not possi-
ble for about half of TGP clients, as they are persons aging alone. In addition
to the client-centered approach that strives to maximize client autonomy in
decision making, TGP must operate within in the boundaries prescribed by
79
the appointing court in the order and judgment and the statutory framework
of Article 81. Within the authority granted by the courts, daily decisions
usually flow from the case managers because they have the most contact with
the clients and often need to make decisions quickly. When complicated situ-
ations arise—such as ones that involve financial decisions, moving a client,
repairing or selling a property, protecting a client from abuse, addressing
uncleanliness and hoarding, preventing eviction and/or homelessness, etc.—
the client’s entire team is engaged. If further input is needed regarding a
specific client, the team is enlarged to include the executive director so that a
strategy can be put in place. Some specific cases, such as end-of-life decisions,
or using the Family Healthcare Decisions Act, are those for which the director
of TGP makes the final call. Some decisions, for example permanent place-
ment in a nursing facility or sale of real property, require court oversight and
judicial approval.
For each client, TGP keeps case notes, including notes by case managers and
notes by the legal team. For the most part, the finance department does not
use the case notes function of the database, but finance keeps a book balance
in the same database. The goal is for the tracking system to be structured so
that all data is in one place. Currently, there is a central database, but it does
not have fields for everything that needs to be tracked. Each department
therefore also maintains its own Excel spreadsheets. TGP is currently in the
process of hiring an expert to upgrade its database, consolidating all track-
ing into the central system and creating canned reports for easier analysis
of data. Also, the current system includes a shared calendar documenting
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The activities recorded and tracked by the finance team are also used in
real time throughout the year by all teams to inform decision making for the
clients. Every transaction is recorded, back up documentation is scanned, and
bank statements are monitored and reconciled to the system. The finance
team is also responsible for submitting reports to outside entities, such as the
Social Security Administration, for clients for whom the program serves as
representative payee, which is about 98 percent of TGP clients.
TGP also works to establish and maintain relationships with clients in care
facilities and visits them on a monthly basis just as the organization does
for those in living in the community. TGP works with clients to make sure to
meet client needs and respect client wishes. To do this, TGP staff members
work closely with facility staff, including nurses. TGP faithfully attends care-
plan meetings to ensure that all aspects of clients’ lives are monitored and
addressed.
Cultural diversity and sensitivity. TGP has diverse staff members, includ-
ing Spanish-speaking staff to help clients with language needs and to reach
out to families. Staff are mostly women and one-quarter white. Staff also
include people who are LGBTQ. Staff try to account for religious identities of
clients and try to keep cultural diversity and sensitivity in the front of their
minds, including their dietary needs. Staff acknowledged that sensitivity and
communication needs filters into health care and end-of-life needs and pref-
erences. Said one staff member, respect for each individual “creates a better
situation for everyone when they respect their wishes, and it makes things
less antagonistic.”
We were not made aware of any cultural diversity training. One staff
member observed that TGP has had non-English speaking Asian clients and
has experienced challenges in serving them due to language barriers, despite
attempts to seek outside translation services.
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Responsive to its duties under Article 81, TGP also prioritizes the establish-
ment of a pre-need funeral contract as early in the guardianship as possible,
to help ensure there are adequate resources to fund it and to maximize the
likelihood that clients are able to participate in the planning. Upon the death
of a client, TGP case managers make funeral arrangements and, as required
by Article 81, inform relevant people, such as family members. Staff make
sure that the client is buried with dignity, informed by work done before
death, including a pre-need funeral contract and, when possible, discussion
about wishes.
TGP has protocols concerning securing property and other assets after
death. TGP is usually granted authority to pay for outstanding expenses (e.g.,
charge accounts or electric bills) post-death if said authority existed and the
bills accrued before death. TGP is responsible for filing final accounting to the
court and distributing funds to the estate. TGP involves the public administra-
tor as quickly as possible, as the majority of its clients do not have a last will
and testament or family members available to seek letters of administration.
Outreach
TGP maintains relationships with legal services, APS, or other entities as
needed, reaching out for additional expertise as needed in order to best
serve its clients. In the beginning of the program, TGP assembled an advisory
committee from New York as well as around the country to guide its program-
matic structure, data collection, and outreach. In addition to helping shape
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TGP’s model and services, the advisory committee introduced TGP to key
players and helped TGP become known nationally.
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When asked about activities related to individual cases, one TGP staff
member observed, “TGP spends an enormous amount of time on these [client]
functions. There is no such thing as an average client.”
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86
injured citizens and train their families to provide care. After weighing the
options, TGP felt that a return to the home country would be in the client’s
best interest, as it would allow him to be with his family. TGP negotiated with
the hospital to pay for the cost of having the client take a Medivac plane to his
home country and sought the requisite authority from the court to effectuate
the discharge. TGP was later notified that the client died, surrounded by his
mom and sister.
Case example 4. TGP became guardian for a woman with severe, untreated
paranoid schizophrenia. At the time of appointment, she was involved in an
eviction proceeding, was behaving erratically by calling hundreds of times
to complain about the condition of her apartment, and was barred from
interacting with members of her family by an order of protection issued
in a recently resolved criminal matter. TGP was able to resolve the eviction
proceeding, even negotiating a reduction of the rent owed due to issues with
the condition of the apartment. Unfortunately, the client’s mental illness
remained untreated, and in a delusional state, she violated the order of
protection, was arrested, and sent to Rikers Island. TGP advocated for her to
be placed in its psychiatric unit, where she would be better monitored and
protected, and she was able to secure funds to make her bail. When she was
released, she acted increasingly erratically until, fearing for her safety, TGP
successfully petitioned for her to be involuntarily admitted to a psychiatric
hospital. While she was hospitalized, TGP made arrangements for her dogs to
be boarded, worked with the hospital to put a sustainable care plan in place,
and worked with counsel to defend the new criminal charges that she was
facing. Upon her release from the hospital, TGP helped the client remain as
compliant as possible with her medication, therapies, and court mandated
probation. Working together with her criminal defense counsel, TGP reached
a plea agreement that avoided a felony conviction and the possibility of jail
time. Though much progress was made, the client continues to require active
intervention to prevent her from lapsing into behaviors that put her at risk of
institutionalization.
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88
state.
Stakeholders’ comments
Use of Medicaid funds. Mentioned above, the project investigators Teaster
and Wood interviewed 14 stakeholders, including judges, representatives
from New York State Mental Hygiene Legal Services, court examiners, and
other individuals who were presently or had recently worked with members
of TGP. Interviews of most stakeholder lasted about an hour. Participants
were asked if TGP used Medicaid funds appropriately and effectively.
Respondents all agreed that TGP did so. Said one respondent, “Absolutely.
[They are using funds appropriately] In keeping people out of nursing homes,
which is what Vera is doing. Money is very effectively spent. They are saving
the state money if they keep people in the community.”
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90
There was general agreement that the model of having a mix of cases that
include both poor people and people with assets would have worked if there
was a way to control the mix of cases, reliably predict fee amounts, and
collect payments in a timely fashion. Theoretically, TGP would have been
able to offset the cases that brought in nothing with fee-generating cases.
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Unfortunately, the income generated from the cases with assets has not
been nearly enough to offset that no asset cases combined with the complex,
resource-intensive cases that TGP receives.
TGP discovered that its work produces not only greater autonomy related to
living in the home but also a cost savings from moving people out of nursing
homes and keeping them in the community with a level of care more suited
to their particular functional abilities. For example, a client who was indepen-
dent with most activities of daily living, but was prevented from returning
from a nursing home to an apartment due to the condition of the apartment,
was able to safely live in the community with a minimal amount of homecare
after the apartment conditions were improved. Home improvement services
are much more cost effective than incurring the expense of a nursing home
bed and would likely result in significant savings to Medicaid.
Other people interviewed thought the model would be replicable with the
caveat that the program should make sure that all alternatives to guardian-
ship were fully explored. As a stakeholder remarked, a number of people in
New York City could avoid guardianship if services were available before the
filing of a petition.
Finally, one stakeholder had this to say about the TGP model: “If you can
make it here, you can make it anywhere,” while another stakeholder said,
“Please create as many Veras [TGPs] as possible.”
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92
One stakeholder was unhappy with the way TGP marshaled assets. Most
guardians go to the bank, marshal assets, and open a guardianship account.
TGP used to keep all money in one account and track a running balance for all
clients. Thus, TGP could not show a bank statement with the exact amount of
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money by client. This stakeholder thought that there should be one account
that is individual to a single person, thus limiting problems. Instead, TGP
marshaled funds together in all one big account. (Note, this scenario was true
three years ago but was changed. TGP now opens individual guardianship
accounts for each client and manages over 400 separate bank accounts.)
Stakeholders regarded that the major threat to TGP was inadequate funding
and large caseloads. One stakeholder remarked that, “there was a time when
they were behind on their reporting.” You want to be a model in all respects.
One stakeholder asked, “Would a scaled down version be less costly?”
Stakeholders, at the same time, believed that the TGP model “has gained
traction and that in New York City there is a growing acceptance of what
standards should be in terms of keeping people at home.” Opined one stake-
holder, “I am not sure that that this administration recognizes this, but you
can save dollars by supporting people in the community.”
Another stakeholder suggested that TGP should expand and be able to take
on more cases. To do so, TGP should continue to engage in policy discussions.
Finally, one stakeholder suggested developing a mediation project of some
kind: “Some new cases, such as self-petitions, or pro se petitions, which
are difficult and time consuming, could use mediation. If we could get TGP
involved and work out family guardians, that would be good.”
Section summary
The TGP model is supported both internally by the staff members and exter-
nally by stakeholders. TGP’s team approach is a holistic “one-stop shopping”
approach to the provision of guardianship services, and the low ratio of
guardian-to-protected person affords persons in need of services high-quality
guardianship. TGP is especially outstanding in its efforts to either keep people
living in community settings or to return people to community settings as
appropriate. TGP’s quality of guardianship service is not without costs, and
so the program was previously unable to attain a level of sustainability that
would enable it to spin off from the Vera Institute. TGP’s inability to spin off
from Vera is not due to its programmatic model, however, but rather due to
the need to find additional funding streams because the mix of high-fee and
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94
low-fee/no-fee cases that TGP is appointed does not balance out to cover the
cost of providing the services.
Recommendations
• Increase ease of information access. TGP’s reports should be
combined and retrievable in one place; this is possible because
the accounting system is structured to have data all in one place.
Throughout the year, the program examines case records; however,
staff could go deeper via more routinized and sustained efforts by the
whole staff.
• Replicate the TGP model. The TGP model should be replicated and
evaluated. The evaluation should be a formative, process, and summa-
tive evaluation.
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Section 8: Summary of
Recommendations
Who needs services
• Data. New York should continue and intensify its collection of basic
guardianship data to better inform estimates of unmet need and
strategies for meeting the need.
• Social work skills. New York should find ways to increase the number
of professionals with social work and nursing skills to act as guardians
for individuals with no family or friends to serve.
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97
• Employ additional clerks. New York should provide funding for the
addition of administrative staff trained to move the guardianship
process forward in a timely way.
• Live at home. New York programs should work to keep people in their
own homes as much as possible. Primary residences of people under
guardianship varied across the programs.
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99
• Replicate the TGP model. The TGP model should be replicated and
evaluated. The evaluation should be a formative, process, and summa-
tive evaluation.
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APPENDIX A.
EXECUTIVE
DIRECTOR
DIRECTOR OF LEGAL DIRECTOR OF CASE DIRECTOR OF DEVELOPMENT ADMINISTRATIVE INTERIM DIRECTOR PROPERTY
SERVICES AND POLICY MANAGEMENT AND COMMUNICATIONS COORDINATIOR OF FINANCE MANAGER
FINANCE
ASSOCIATE
FINANCE VOLUNTEER
(PART-TIME)
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York
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0/0
New York City: 2117 ST. REGIS
0/2
1/4 ESSEX
JEFFERSON
1/2
LEWIS
0/0
HAMILTON 1/5
WARREN
2/13
OSWEGO
6/39
6/34 ULSTER
SULLIVAN 6/29
DUTCHESS
23/49 0/7
PUTNAM
ORANGE
5/10
WESTCHESTER
2/16
ROCKLAND
2/12
SUFFOLK
257/2117
NEW YORK CITY
7/55
NASSAU
Please note: this map only shows cases in which Adult Protective Services is guardian or contracts with a community guardian. It
does not include family, private, or other nonprofit guardianship cases.
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Jewish Association Serving the Aging8 Bronx, Kings, Nassau, New York, Queens
LCG Community Services—United Guardianship Services Bronx, Kings, Nassau, New York, Queens, Suffolk
Vera Institute of Justice—The Guardianship Project Bronx, Kings, New York, Queens
7 Note: Vera/TGP staff compiled the initial list for the New York Community Trust study, with additional input from the Office of Children
& Family Services, as well as study interviewees. It does not represent a complete, final, or official list. Rather, it is an exploratory list as
a basis for further confirmations and additions.
Incapacitated, Indigent, and Alone: Meeting Guardianship and Decision Support Needs in New York