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    Criteria: Content and Relevance - 4pts Grammar and Organization - 1pts Total: 5pts/item

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    Maika Narciso
    This document discusses an article about gene therapy and the ethical concerns it raises. Some key ethical questions are whether it is acceptable to keep a child isolated in plastic enclosures for their entire life just to survive, and whether it is ethical to subject children to experimental treatments that may have negative side effects and not guarantee safety. Stakeholders affected include the children's parents who must decide whether to allow the risky treatment, and the doctors responsible for the children's lives and treatment outcomes.

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    Criteria: Content and Relevance - 4pts Grammar and Organization - 1pts Total: 5pts/item

    Uploaded by

    Maika Narciso
    31 views1 page
    This document discusses an article about gene therapy and the ethical concerns it raises. Some key ethical questions are whether it is acceptable to keep a child isolated in plastic enclosures for their entire life just to survive, and whether it is ethical to subject children to experimental treatments that may have negative side effects and not guarantee safety. Stakeholders affected include the children's parents who must decide whether to allow the risky treatment, and the doctors responsible for the children's lives and treatment outcomes.

    Original Description:

    GENE THERAPHY ARTICLE ANALYSIS

    Original Title

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    This document discusses an article about gene therapy and the ethical concerns it raises. Some key ethical questions are whether it is acceptable to keep a child isolated in plastic enclosures for their entire life just to survive, and whether it is ethical to subject children to experimental treatments that may have negative side effects and not guarantee safety. Stakeholders affected include the children's parents who must decide whether to allow the risky treatment, and the doctors responsible for the children's lives and treatment outcomes.

    Copyright:

    © All Rights Reserved
    Download as DOCX, PDF, TXT or read online from Scribd
    Download as docx, pdf, or txt
    31 views1 page

    Criteria: Content and Relevance - 4pts Grammar and Organization - 1pts Total: 5pts/item

    Uploaded by

    Maika Narciso
    This document discusses an article about gene therapy and the ethical concerns it raises. Some key ethical questions are whether it is acceptable to keep a child isolated in plastic enclosures for their entire life just to survive, and whether it is ethical to subject children to experimental treatments that may have negative side effects and not guarantee safety. Stakeholders affected include the children's parents who must decide whether to allow the risky treatment, and the doctors responsible for the children's lives and treatment outcomes.

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    © All Rights Reserved
    Download as DOCX, PDF, TXT or read online from Scribd
    Download as docx, pdf, or txt
    of 1

    Directions: Read the article ‘Bubble kid’, success puts gene therapy back on track in pages

    1-3 of this document. Answer the following questions.

    Criteria:
    Content and Relevance - 4pts
    Grammar and Organization - 1pts
    Total: 5pts/item

    1. What are some ethical questions or concerns raised in this case?

    Some ethical questions and concerns surrounding gene therapy would be:

    (1) Even for this kind of disease, is it ethical to let a child remain in isolation, to live in a
    series of plastic enclosures for the rest of his/her life just to keep them alive?

    (2) For a treatment that had a rocky start as it caused some negative consequences
    before and would not guarantee the safety of the patient, was it ethical to let the
    children go through such trials?

    (3) How will they now cure SCID in a substantial way, knowing that some patients also
    died in the process?

    (4) Because of the high costs of the gene therapy treatment, won’t that make it available
    only to the poor but only to the wealthy?

    2. Who are the stakeholders in this situation? Who are affected by the decisions made?

    One of the stakeholders in this situation are of course the children’s parents, as they
    would be the main ones to decide if they would allow their child to push through with
    taking the risk or not. Another are the Doctors or Specialists, whose hands have been
    entrusted with the life of the child, to successfully treat him/her and in which clearly, the
    children who has the disease, are the ones that’ll be affected by this.

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