Clinical Data Repositories

HEALTH INFORMATION SYSTEM FOR MEDICAL LABORATORY SCIENCE
COLLECTION
- A library of heterogeneous data sets from more
- Repositories – place, room, or a container where
organizations than a warehouse or more sources
some things are deposited or stored
than a registry.
- in electronic or written format
Organized to help users find a particular data set,
- combination of collected information like patient
but not to query for data combined across data
vital information, patient’s lab result, doctor’s sets.
diagnosis, treatment plan, etc,
FEDERATION
- represents an aggregated database of clinical
- A repository distributed across multiple
information
locations, where each location retains control
- it usually houses a multitude of laboratory
over access to its own data and is responsible for
results, diagnostic reports, and various clinical
making the data comparable with the data of
documentation.
other locations.
- data are readily searchable and exportable,
often because the information is gathered from
standard clinical care procedures
- it integrates physician-entered data with data
from existing information systems, including
laboratory, radiology, admission, and pharmacy
- a place where both clinical data and other data
of interest, such as external data sources and
financial data, are assimilated.
• Patient Demographics
• Patient’s Primary Care Provider
• Medication List
• Allergies
• Hospital Inpatient Visits
• Emergency Department Encounters
• Outpatient Practice Visits
• Immunizations
• Diagnoses • Information for patients is typically scattered
• Procedures across multiple subsystems. A clinical data
• Lab Results repository standardizes data from disparate
• Social History sources into a cohesive format. It comprises
• Vitals numerous tables, each offering a partial view of
patient information.
• The structure of clinical data repositories allows
data to be extracted along dimensions such as
STUDY time (by year, month, week, or day), location, or
- A database that collects observations for a diagnosis among many others.
specific clinical research study. • This data can often be accessed in smaller units
within the same dimension. For instance, a user
ELECTRONIC HEALTH RECORD can view the number of patients with having a
- A database of observations made as a result of certain type of diagnosis, lab result, or
direct health care prescription within a year, then a month in that
year, and further into a day in that month.
REGISTRY
- Observations collected and organized for the
purpose of studying or guiding particular
outcomes on a defined population.
- Associated studies are either multiple or long- • Data collected through an electronic health
term and evolving over time. record system may be retrieved at the request of
an authorized user, whether a physician, medical
WAREHOUSE technologist, nurse, or radiologist. The
- A repository that adds levels of integration and electronic health record may present patient
quality to the primary (research or clinical) data care information as text, tables, graphs, sounds,
of a single institution, to support flexible images, full-motion video, or signals on an
queries for multiple uses. electronic screen, phone, pager, or paper
- Is broader in application than a registry. (Bronzino and Peterson, 2014).
• Unfortunately, analyzing trends and patterns
from large data sets can be a challenging
process. This is where data visualization, the art
HEALTH INFORMATION SYSTEM FOR MEDICAL LABORATORY SCIENCE
of representing data in a pictorial or graphical

format, becomes useful.
DATA VISUALIZATION
- helps in simplifying a wide array of information
and it allows decision-makers to derive analytical
results from information presented visually.
- Correlations, patterns, and trends which might
be undetected from text-based clinical data can
be revealed and recognized with more ease
because of data visualization.
VISUALIZATION
- is increasingly becoming an important tool in
decision making.
- The graphical representation feature of most
clinical data repositories enable scenario
analysis, which helps users use different kinds of
filters in order to change the level of information
that may be seen.
- Common filters include age and gender, in order
to assess how the outcomes of a certain
intervention will be based on isolating certain
factors.

Clinical Data Repositories

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Clinical Data Repositories

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HEALTH INFORMATION SYSTEM FOR MEDICAL LABORATORY SCIENCE

of representing data in a pictorial or graphical

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