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A Guide for Healthcare Providers on Recognizing Signs

and Symptoms in the Final Stages of Life

Introduction

Why Recognizing
Symptoms Matters
As healthcare providers,
understanding the signs of the
terminal stage helps us:
Provide timely comfort measures
to patients.
Address family concerns about
what to expect.
Offer empathetic, clear
communication to reduce family
stress.
Signs and Symptoms by Stage
One to Three Months Before Death
Changes in Appetite: Decreased interest in One to Two Weeks Before Death
food or fluids; patients may need smaller
portions or only sips of water. Increased Sleep: Most of the day is spent sleeping; responsiveness
Sleep Patterns: Increased need for rest; may decreases.
Confusion or Restlessness: May exhibit signs of agitation or
spend most of the day sleeping.
hallucinations, often due to metabolic changes.
Social Withdrawal: Reduced engagement
Vision-like Experiences: Patients may report seeing deceased
with family and caregivers as energy
loved ones or spiritual figures.
declines.
Vital Sign Changes: Fluctuations in body temperature, pulse, and
blood pressure.
Care Tips:
Congestion: Gurgling or rattling sounds from the throat due to
Offer favorite foods in small quantities
fluid buildup ("death rattle").
without pressuring the patient.
Keep a calm and quiet environment for rest. Care Tips:
Reassure families that these are natural processes.
Days to Hours Before Death Use gentle suctioning or repositioning to reduce
congestion.
Energy Surge: Brief period of alertness or increased energy, often Speak softly and maintain a comforting presence
followed by rapid decline.
Physical Changes:
Minutes Before Death
Cool, blotchy, or purple skin on extremities.
Glassy or teary eyes; eyelids may not fully close. Breathing Changes: Gasping breaths, with long pauses in
Weak or irregular pulse; significant decrease in urine output. between.
Breathing Patterns: Irregular breathing, including pauses (Cheyne- Lack of Response: Patient may not respond to touch or
Stokes breathing). sound.
Increased Restlessness: Fidgeting or repeated movements. Final Moments: Breathing and heart rate slow until they
Care Tips: stop.
Use warm blankets for comfort but avoid overheating. Care Tips:
Encourage families to speak to the patient, even if they seem Provide emotional support to families during this time.
unresponsive. Maintain a calm and peaceful environment for the patient.
Communication Strategies Self-Care for Caregivers

Prepare Families: Use simple, empathetic language Caring for terminal patients can be emotionally
to explain what to expect. challenging. Protect your well-being by:
Example: “These changes are natural as the body Seeking support from colleagues or counselors.
begins to shut down.” Taking breaks when needed.
Encourage Questions: Allow families to express Engaging in activities that help you relax and
concerns or ask for clarification. recharge.
Acknowledge Emotions: Validate their feelings of
fear or sadness.
Developed as informed by the Alberta Health Services Guidelines
This guide is for staff education purposes to enhance care
quality and family support in end-of-life situations.

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