playing science telephone
Hi folks. Letâs play a fun game today called âunravelling bad science communication back to its source.â
Journey with me.
Saw a comment going around on a tumblr thread that âsometimes the life expectancy of autism is cited in the 30sâ
That number seemedâŚ.. strange. The commenter DID go on to say that that was âsituational on people being awful and not⌠anything autism actually doesâ, but you know what? Still a strange number. I feel compelled to fact check.
Quick Google âautism life expectancyâ pulls up quite a few websites bandying around the number 39. Which is ~technically~ within the 30s, but already higher than the tumblr factoid would suggest. But, guess what. This number still sounds strange to me.
Most of the websites presenting this factoid present themselves as official autism resources and organizations (for parents, etc), and most of them vaguely wave towards âstudies.â
Ex: âAbove And Beyond Therapyâ has a whole article on âDoes Autism Affect Life Expectancyâ and states:
The link implies that it will take you to the âresearch studiesâ being referenced, but it in fact takes you to another random autism resource group calledâŚ. Songbird Care?
And on that website we find the factoid again:
Ooh, look. Now theyâve added the word âsomeâ. The average lifespan for SOME autistic people. Which the next group erased from the fact. The message shifts further.
And we have slightly more information about the study! (Which has also shifted from âstudiesâ to a singular âstudyâ). And we have another link!
Wonderfully, this link actually takes us to the actual peer-reviewed 2020 study being discussed. [x]
And here, just by reading the abstract, we find the most important information of all.
This study followed a cohort of adolescent and adult autistic people across a 20 year time period. Within that time period, 6.4% of the cohort died. Within that 6.4%, the average age of death was 39 years.
So this number is VERY MUCH not the average age of death for autistic people, or even the average age of death for the cohort of autistic people in that study. It is the average age of death IF you died young and within the 20 year period of the study (n=26), and also we donât even know the average starting age of participants without digging into earlier papers, except that it was 10 or older. (If youâre curious, the researchers in the study suggested reduced self-sufficiency to be among the biggest risk factors for the early mortality group.)
But the number in the study has been removed from itâs context, gradually modified and spread around the web, and modified some more, until it is pretty much a nonsense number that everyone is citing from everyone else.
There ARE two other numbers that pop up semi-frequently:
One cites the life expectancy at 58. I will leave finding the context for that number as an exercise for the audience, since none of the places I saw it gave a direct citation for where they were getting it.
And then, probably the best and most relevant number floating around out there (and the least frequently cited) draws from a 2023 study of over 17,000 UK people with an autism diagnosis, across 30 years. [x] This study estimated life expectancies between 70 and 77 years, varying with sex and presence/absence of a learning disability. (As compared to the UK 80-83 average for the population as a whole.)
This is a set of numbers that makes way more sense and is backed by way better data, but isnât quite as snappy a soundbite to pass around the internet. Iâm gonna pass it around anyway, because I feel bad about how many scared internet people I stumbled across while doing this search.
People on quora like âIâm autistic, can I live past 38ââ honey, YES. omg.
â
tl;dr, when someone gives you a number out of context, consider that the context is probably important
also, make an amateur fact checkerâs life easier and CITE YOUR SOURCES
âthe age at which people in this study diedâ is nothing like a life expectancy
Not responding to your comment specifically, but I do want to clarify, because Iâve seen a LOT of people miss this detail in the comments:
The study had only 26 people who died. Out of 400 something.
94% of people in the study DIDNâT DIE! 94% of people were not even counted towards the average! They didnât die unusually young because they are still alive! And presumably going to live way longer and going to continue pulling the average up and up and up and UP.
Like, I really cannot even express how silly âthe average age of death of 6% of peopleâ is as a statistic.
Itâs SO silly that i think thatâs why people in the notes are often missing it.
Itâs just an utterly crazy thing to do with numbers.
like, just to put this in perspective, I can equally correctly say that the average age of death for 4% of people in USA is under 39.
The most important points have been mentioned already, but since I was masochistic enough to skim through the 2020 paper thereâs just a few more points Iâd like to add. (Cave: Subjective statements following. This paper has put me in a bad mood.)
First off: âPeer-reviewedâ does not always mean that itâs a good study. I have read far too many papers that show methodological deficits to believe otherwise. This is annoying as a reader if youâre trying to find reliable information, but itâs (usually? hopefully?) not malicious: The reviewers requested by the journal are often working under time pressure (reviewing is voluntary work, you donât get paid for it and have to do it on top of your normal workload etc.), might specialise in different fields and therefore not know particular details etc. Please donât blame the reviewers (as tempting as it may be).
That said, this is paper is just not very good.
- Literally the first paper the authors cite is miscited. The *first sentence* of the paper states âAlthough studies have shown that there is some abatement of autism symptoms over time (e.g., Woodman et al., 2014), many individuals with autism spectrum disorder (ASD) continue to experience significant challenges throughout adulthood.â Now, if you look at the references, the title of Woodman et al., 2014 is âResidential transitions among adults with intellectual disability across 20 years.â And if you check the paper, there is not a single mention of ASD or autism in the entire paper! So what happened here? A simple search for âWoodman AC autismâ in Google Scholar reveals that Woodman also published two other papers in 2015 and 2016 titled âChange in autism symptoms and maladaptive behaviors in adolescence and adulthood: The role of positive family processesâ and âContextual factors predict patterns of change in functioning over 10 years among adolescents and adults with autism spectrum disordersâ, respectively. Doesnât that sound like something that fits the context far better? Itâs likely that the authors meant to cite the 2015 paper. They just apparently failed to check their reference list even once. Thatâs just sloppy and I can and will blame them for that.
- Out of the 26 people that died over the course of the study, the causes of death were cancer (5), cardiac arrest (5), seizures (3), respiratory failure/pneumonia (3), choking on food (2), medication side effects (2), accidental poisoning (1), or unknown (5). And yes, the authors do state that âBeing in fair or poor health was the strongest predictor of mortalityâ. Gee, really? Thatâs not a surprise for anybody, and it will not get a paper published, so they (cave: provocative allegation following) apparently decided to throw all those causes of death into the same pot, take some scores for âimpairments in social reciprocityâ and âindependence in activities of daily livingâ and see if they by chance get statistically relevant results. And yes, with n=26 vs. 380, chance *is* a relevant factor. You wouldnât do statistics with that. Or at least shouldnât. (Iâd claim that statisticians would weep, but the ones I have talked to seem to be far too used to this.)
- âPerhaps the most intriguing finding of the present study concerns the extent to which impairments in social reciprocity, as evidenced in early childhood, are predictive of mortality that occurs decades later in adulthood.â PLEASE tell me the causal relationship between âimpairments in social reciprocityâ (âabnormalities in joint attention, social smiling, responsivity to the approaches of others, interest in people, exhibiting a range of appropriate facial expressions to communicate, and social overturesâ) and cancer. Iâm waiting. â[âŚ] Future research that elucidates the mechanism by which impairments in social reciprocity may directly or indirectly affect survival in adulthood is needed to understand this finding fully, but the findings point to the importance of lifelong social engagement.â Or you just did bad statistics. But how useful that *explaining* the causal relationship is now somebody elseâs job.
To not completely derail the point of the original post; sometimes there are papers which are just *not good* (which, to be fair, may be caused by systemic issues such as publication pressure etc.) and which may make a game of science telephone easier. (That doesnât excuse you from employing reading comprehension and fact checking, though.)
please help me figure out something Iâm debating with my brother
because I secretly think heâs crazyAfter youâve applied your stick of deodorant youâŚ
put the lid back on
roll it all the way down to the bottom of the tube and put the lid back on
other / iâve never closed a deodorant tube / show results
See ResultsI love polls that are like âI have a very specific point to make about someone elseâs weird-ass habitsâ
Also peak sibling behavior, good job!
Why would you roll it back down? What would be the purpose
(via @antlereed)
This is my favorite response and the only reasoning I will accept from now on
So, OP, why have you been biting your brotherâs deodorant?
I canât, he keeps rolling it down ;__;
does it indicate anything about me that I immediately recognized what paper this figure is from
so I had to immediately go and pull this other amazing figure from the paper, which is âTHE HEXAGONâ a device with six rooms for fruit flies to have sex in and a central room for a fruit fly to observe six couples having sex at once
Is the goal to see if being able to observe multiple options simultaneously effects the watching fliesâ choices?
hello, thank you for asking, I was basically sitting over here vibrating hoping for the opportunity to infodump more
so the things about making decisions is that it takes a bunch of time and energy and brain power to gather and assess information, and it is evolutionarily advantageous to cheat and offload as much of the work as possible onto other people. thus, there is natural selection for observing other peopleâs decisions and mimicking them.
in a lot of critters, this means it is advantageous to watch who someone else picks for sex so you can copy what they decided was sexy when you select your own partner
the simplest version of the fly sex panopticon is basically just a 2-chamber tube where scientists can orchestrate sex shows for fruit flies.
(âwatch a demonstrationâ is scientist code for watch anorthern pair of fruit flies have sex)
you can very quickly instill a preference: cover male fruit flies with pink or green fluorescent powder, and then let a female fly observe another female fly having sex with a pink male. the observer will conclude that pink is extremely sexy and be much more likely to select a hot pink male herself. by switching the colors and the learned preference to green, you can demonstrate that this is indeed learned behavior, and not some kind of pre-existing genetic preference.
the 6-way âsexagonâ was invented for this paper to test how seeing different ratios of pink vs. green males being chosen would affect the development of preference.
the cool thing about this graph is it shows it didnât matter if there were only slightly more of the the females picking pink or green males, the observer would still develop a preference for whatever the majority were choosing.
the whole paper is very cool, and absolutely worth a read:
it argues (and supports experimentally) that since preferences can be learned and passed on, fruit flies have an actual culture that can vary among populations and be transmitted to youngsters across generations.
this is super cool, because most studies proposing or examining the existence of culture in animals have been focused on higher level stuff like monkeys. if something as simple as a fruit fly can have a culture, this suggests that animal culture could have had huge effects on evolution from the ground up.
so yes, animal culture! fruit fly culture! very cool
but also an excellent evolutionary argument for voyeurism
the sheer frequency of the phrase âdecapitated virgin femalesâ does imply as much
So Iâve been working on making sure all my course videos are captioned for accessibility
And I wanted to go in and hand add captions to the video for reading blood pressure to indicate when the korotkoff sounds occur
Except to edit captions the system first makes me auto-generate captions
And I was expecting either something blank, or complete nonsense where the sounds occurred
But I was *not* prepared to open it up and see the heart noises translated like this:
oh no
IT HAPPENED AGAIN
these ai-generated articles are really getting round the bend
fascinated by âkeeping nipples hard with asexual natureâ
donât just say that like anyone knows what it means
I feel like this might be inaccurate, but Iâve never been to Australia
NO
All too often I say “the data is bad :( ”
had a dream that I ran a tumblr bracket tournament but it was a competition to choose the âblandest animalâ
by the way, I do not remember what animals were in the bracket at all, but I do remember wombat had made it really far and all of the notes were like âheâs just a guyâ
2 categories of responses:
I think air quotes are my favorite hand gesture
We literally invented a way to draw punctuation in the air so we could be sarcastic better, love that energy
Are there other gestures like this?
I want to be able to do emojis in real life
facial expressions
very excited about this new medical option where we swallow a vibrator
i regret to inform you all that i did the research so you dont have to, and its exactly what you think. itâs a machine. its got an app. you can monitor the pill, in your body, through the app.
you raise such a good question
what is endgame for the vore vibrators
y'all, literly nothing on this website will tell me what is in the capsule or what happens to the capsule when it comes out the other end, but I have learned that it takes 3 weeks of treatment to see significant results and also that you have to place the capsule in an âactivation podâ before you swallow it
and yes there is an app
I found a pdf they provide for physicians and I am currently making my way through it
current fun facts:
-the Pod has a usb charger and a wall adapter
-do not MRI this capsule, dear god
-do not bite the capsule
-if a child swallows a capsule they need to go to the hospital
more fun facts from the dosing instructions
there are no directions for what to do at the end of the line so I am assuming the mystery capsule (that should not be allowed around pacemakers) gets flushed
it does say to see a doctor if you think it has not been excreted âwithin 2 weeksâ
ps I assume this is standardized language, but I LOVE the idea that the vore vibrator might accidentally interfere with TV and radio
@kawaiianimeredhead i vote yes
I’m tired of Hades being the creepy one on the relationship
AU where Persephone is a zombie. She died too young and her mom couldn’t bear to let her go and breathes a wisp of life into her every morning to keep her almost-not-quite alive by her side. This is a little uncomfortable for Persephone, but she’s an adaptable type, so she rolls with it.
Hades kidnaps her because she’s *already dead*, hello, did she get lost? It’s an unkindness to leave a soul wandering. Turns out he wildly misread the situation and now he’s got an annoyed and amused zombie houseguest causing all kinds of trouble while she waits for her mom to come knocking.
Also Persephone thinks the underworld is fucking awesome (*way* more comfy than being dead in the living world) and Hades is stupid-cute and pretty soon she’s working out an elaborate plot to timeshare.
I’m tired of Hades
being the creepy one on
the relationship
Beep boop! I look for accidental haiku posts. Sometimes I mess up.
itâs a bot parade
itâs been 12 hours ;__;
*stands on side of road clapping as bot parade goes by*
Donât talk to me or my (*checks notes*) 2,478 bot followers ever again
I’m tired of Hades being the creepy one on the relationship
AU where Persephone is a zombie. She died too young and her mom couldn’t bear to let her go and breathes a wisp of life into her every morning to keep her almost-not-quite alive by her side. This is a little uncomfortable for Persephone, but she’s an adaptable type, so she rolls with it.
Hades kidnaps her because she’s *already dead*, hello, did she get lost? It’s an unkindness to leave a soul wandering. Turns out he wildly misread the situation and now he’s got an annoyed and amused zombie houseguest causing all kinds of trouble while she waits for her mom to come knocking.
Also Persephone thinks the underworld is fucking awesome (*way* more comfy than being dead in the living world) and Hades is stupid-cute and pretty soon she’s working out an elaborate plot to timeshare.
so I clicked on one of the tumblr ad links and
guys
guys help me
I was not prepared
help me oh my god
âG Point Specialistâ
what do you mean SPECIALIST that thing is gonna get every damn point in there
(via bundibird)
Ant tending aphids and an assassin bug hiding on a sunflower
@codedredalert, oh this such a good question! and I do love talking about ants and ant mutualisms
So there are two important things to know about aphids, and lot of sucking insects that feed on plant phloem (aka sap, kind of the plant equivalent of blood):
- 1. Aphids are basically plugging their mouth into a firehose, where the pressure of plant fluids into their bodies is so strong they actually have to have physical mechanisms to slow the flow down

[aphid feeding on plant phloem with stylet mouthpart. scientists can cut the aphid away, leaving the stylet in place to collect phloem from the plant like the tiniest straw. this is not very nice to the aphid. - Image source]
- 2. Plant juice is super high in water, pretty high in sugar, and very low in other useful stuff like, say, amino acids/proteins. So in order to get a useful diet, aphids drink WAY more than they need, and excrete all the excess water and sugar. This sticky sugar poop is called âhoneydewâ.
[aphid excreting honeydew - image source]
If honeydew builds up around the aphids it can grow mold, cause infections, kill the plant, attract predators - all sort of unfun consequences of living in your own sugar poop.
[sooty mold on leaves - image source]
Some insects handle this by launching the honeydew far away from their bodies (like the aptly named âsharpshootersââ stand under a tree full of those and enjoy the faint, sticky mist.)
[sharpshooter launching honeydew - video source]
A lot of insects just kind of make do (make dew?) and move on when the situation gets sticky dire.
But a really *cool* thing you can do, is provide your sticky goo to ants as a delicious snack. In fact, if you are an aphid in an ant-aphid mutualism, they may even approach you and tap you with their little antennae and milk it right out of your buttâwow, the image I am crafting with words right now; what is my life?
[ant drinking honeydew from aphid - image source]
Anyway.
I called it a mutualism, so what do the aphids get in exchange for being the sweet beverage equivalent of moo-cows? Well, for one they hopefully donât get eaten. Thatâs a plus. And for two, their hangout spot doesnât get quite so sticky. And for three, the ants patrolling around on the plants may chase off other predators and herbivores, making a nice safe home. Yayyyy!
[ants defending aphids from ladybug - Image source]
(I mean, sometimes they may not. I have definitely also watched ants callously ignore a ladybug chomp chomp chomping its way through their aphid farm while the ants sip their aphid tea.)
Interestingly, ant-aphid mutualisms can sometimes even benefit the plant! (Making it a plant-ant-aphid mutualism ot3? Maybe). This is because although aphid feeding puts some wear and tear on plants (especially if their population gets large), a lot of bigger, munchier, leaf-feeding bugs like caterpillars and grasshoppers can do even more damage to plant.
[caterpillar rapidly eating a leaf - Image source]
Terrible! Do not like. Maybe itâs worth it to try out having aphids after all? Because if youâve got aphids, youâve got ants. And if youâve got ants, maybe theyâll chase off some of the bigger herbivores. And all it cost you was a case of horrible blood-sucking plant lice (aka aphids).
An even more direct strategy that skips the lice: many plants invest in extrafloral nectariesâ basically little spots on the leaves and stems that release sugary nectar.
Why have this nectar if itâs not in a flower attracting pollinators? Well, one use for providing this free lunch is to get yourself some ants.
[ants feeding at extrafloral nectary at base of leaf - Image source]
Worth a shot.