ACT UP, 1990
HIV 'Undetectable = Untransmittable' Is a Game-Changing Fact. Why Isn't the Message More Public?
On a Sunday afternoon in late April, there was a small but buoyant dance party at the fairly new outdoor AIDS memorial in New York City’s Greenwich Village, which had once been ground zero of the AIDS epidemic.
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The reason for the party? It was to celebrate and promote the fact that we now know with certainty that people with HIV whose meds make the virus undetectable in their blood (as confirmed by lab tests) cannot transmit the virus to sexual partners. In New York City, a host of organizations – including the health department and Housing Works – have been part of an effort in recent years to end New York State’s AIDS epidemic by 2020. Now, they’re rallying behind the Undetectable = Untransmittable or U=U message, which is the national rallying cry of the Prevention Access Campaign.
In recent months, a stunning array of prominent international agencies and individuals have signed onto a U=U consensus statement saying that, based on modern science, undetectable people cannot transmit HIV. They include AIDS United, GMHC, the Human Rights Campaign, the International AIDS Society, the UK’s National AIDS Trust and the National Alliance of State and Territorial AIDS Directors (NASTAD), to name just a few.
“U=U is such incredible news that we’ve been saying we should be dancing in the streets about it,” says Bruce Richman, who started Prevention Access Campaign. Richman says he’s been eager to get the U=U word out since he learned in 2012 that because he was undetectable he was not infectious. (He was diagnosed with HIV in 2003.)
Even since then, scientific evidence for U=U has continued to mount in a series of very large studies, such as one released early last year finding that among nearly 900 serodiscordant (one HIV+, one HIV-) gay and straight couples followed over 16 months, there was no evidence of HIV infection despite their having condomless sex.
This has massive health, prevention and legal implications. It means that HIV-positive folks and their HIV-negative sexual partners can all but stop freaking out about the possibility of transmission. It also renders even more outdated various state laws from the 1980s and 1990s that criminalize HIV-positive people for endangering sexual partners when they don’t disclose their HIV status. Finally, it should serve to reduce the stigma suffered by HIV-positive people, who are often made to feel as if they are second-class citizens for carrying an infectious virus.
But despite all that – and despite the fact that U=U has essentially attained global scientific and advocacy consensus – national, state and local entities still do little to broadcast this fact to the general American public. A brief review of the main HIV webpages for health departments nationwide serving those states and cities hardest hit by HIV found that not one stated in clear language that people with undetectable HIV were incapable of transmitting the virus.
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“None of the websites are saying this, none of the marketing campaigns,” says Richman. “I’ve found that people who know this information tend to be privileged, have private insurance, are often white. That is so unjust that information that concerns our social, sexual and reproductive health and lives is being withheld.”
Richman can become very passionate when talking about how little the HIV health establishment has done thus far to make U=U general knowledge. “When I realized that the power structure thought people with HIV were irresponsible and couldn’t understand this info, I was furious,” he says. “This information changed my life, lifted my feelings of shame and being toxic. That was so freeing.”
“Everyone,” he adds, “should clearly have that information.”
In a private cemetery in small-town Arkansas, a woman single-handedly buried and gave funerals to more than 40 gay men during the height of the AIDS epidemic, when their families wouldn’t claim them. -Source
One person who found the courage to push the wheel is Ruth Coker Burks. Now a grandmother living a quiet life in Rogers, in the mid-1980s Burks took it as a calling to care for people with AIDS at the dawn of the epidemic, when survival from diagnosis to death was sometimes measured in weeks. For about a decade, between 1984 and the mid-1990s and before better HIV drugs and more enlightened medical care for AIDS patients effectively rendered her obsolete, Burks cared for hundreds of dying people, many of them gay men who had been abandoned by their families. She had no medical training, but she took them to their appointments, picked up their medications, helped them fill out forms for assistance, and talked them through their despair. Sometimes she paid for their cremations. She buried over three dozen of them with her own two hands, after their families refused to claim their bodies. For many of those people, she is now the only person who knows the location of their graves.
How have I never heard of this?
People like her should be remembered. And even more importantly, we must remember that there was a time in our history when we needed someone like her.
“When Burks was a girl, she said, her mother got in a final, epic row with Burks’ uncle. To make sure he and his branch of the family tree would never lie in the same dirt as the rest of them, Burks said, her mother quietly bought every available grave space in the cemetery: 262 plots. They visited the cemetery most Sundays after church when she was young, Burks said, and her mother would often sarcastically remark on her holdings, looking out over the cemetery and telling her daughter: ‘Someday, all of this is going to be yours.’
‘I always wondered what I was going to do with a cemetery,’ she said. ‘Who knew there’d come a time when people didn’t want to bury their children?’"
Wonderful woman. Wonderful story.
This is an ally.
This is a hell of an ally.Epic Grudge-holding Mom has Epically Empathetic Daughter.
She did good work.
Just to add to this, there is currently a GoFundMe page dedicated to raising money for a memorial to be placed in Files Cemetery dedicated to those whom she cared for, and those who lost their lives to the epidemic.
“Someday,” she said, “I’d love to get a monument that says: This is what happened. In 1984, it started. They just kept coming and coming. And they knew they would be remembered, loved and taken care of, and that someone would say a kind word over them when they died.“
–http://m.arktimes.com/arkansas/ruth-coker-burks-the-cemetery-angel/Content?oid=3602959
If anyone is interested in reading her story or donating towards the memorial, here is the link
Enyce Smith is utilizing the art of voguing to make a statement about the slew of tragedies that queer, trans and black people have all suffered over the past several months.
The queer artist’s new video, sponsored by HIV non-profit organization REACH LA, brings together a group of voguers to provide artistic commentary and perspective on the recent tragedies targeting people identifying along the queer spectrum and within communities of color.
“With recent tragedies I felt it was important to make a video showcasing the beauty of being different and the need for love and respect all across the board,” Smith told The Huffington Post. “We need to own who we are and be proud of it! The LGBTQ community and the African American community are speaking out on not being treated fairly and being a part of both. I feel it’s only right to speak out so I address the Orlando Pulse shooting, the discrimination against trans [people] using public restrooms and the recent killings of black lives. We are all humans.”
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