I’m sorry i sat on this ask for so long, it’s been very difficult to write an answer to this question that i feel is both honest and useful, but here’s my best attempt at answering with what i consider to be an okayish amount of context…

I’m assuming you’re asking because this post of mine blew up and got a lot of attention, and it looks like you’re a maker that’s keen on designing things to help disabled people and that’s great! there are a lot of areas where products just don’t exist but are of great help or need to people, and filling that gap is really really great! lots of people have lots of different needs, and many disabilities and situations can be helped with technological solutions, much of which need more development, both professionally and more grass roots.

but when it comes to my situation, ie upper limb amputee, i cannot stress enough: the problem is not prosthetic technology, the problem is other people, and ableism.

what i want people to focus on is that i can do almost everything i need to for myself without a prosthesis, using just my elbow, my nub (the soft squishy end of my residual limb), and a taking my time. a bit more awkward, a bit slower, more trips to the fridge and back, but i can do it. the things that i can’t do myself, I’m lucky enough to have people to help me and happy to do so.

but what people actually focus on is prostheses, people love prostheses… so let’s talk prostheses!

I have a myoelectric prosthetic “hand” - a big robot gripper that i can control with intentional nerve signals picked up via electrodes inside the socket that sits over my forearm; telling it to open and close on command, and controlling how fast it does so. the initial reason i wanted one was for soldering, because electronics is an on and off hobby i wanted to continue. I’m sure you know that through-hole soldering is at least a three handed job even for the regularly limbed, so i thought i needed it for that at least, and figured it would be handy (hah) to just wear all day for any task i might want two hands for.

well, in the four years of training and rehab and practice since… I’m fairly confident i don’t actually need it for soldering, let alone anything else. my elbow grip and dexterity is good enough i can easily hold and aim a spool of solder without my prosthesis. i sometimes put it on to take out the trash, but that’s just a time saver, it takes less trips and is faster than slinging bags over my nub arm. it has a little led flashlight in it that’s useful at night outside sometimes? and as alluded to in the original post, it’s got a small tip that can press little buttons that my nub can’t, and that’s the role i most often reach for it to fill.

but myo prostheses are a hassle to put on, often taking several attempts to get positioning right, it’s hot and sweatty, there can be pressure sores, and it’s real heavy in a way your shoulder never really gets used to. these are not really technological issues that need more research or smarts to solve, they’re pretty fundamental limits of trying to attach any kind of medical devices to the human body. if i really had any big necessary use case for absolutely needing two hands, I’d go back to physical therapy and re-train to use a body powered prosthesis; the ones that secure with nice soft leather straps and use your opposing shoulder to control hook grip with tension wires. technology that hasn’t changed in several centuries because we kinda already perfected it… it’s low tech, reliable, has built in proportional control and feedback, and never features in science fiction because it’s just not cool enough.

so why do i still bother? why keep my prosthesis, maintain it, have the socket padded so it keeps fitting, continue the slightly painful muscle control exercises instead of letting them atrophy and the damn robot hand sit on the shelf forever?

the problem is other people, and ableism.

when I leave the house in my natural body, nub on display for all to see (under an arm warmer because perpetually cold stump is a problem seemingly every amputee has to deal with)…

people stare. they notice me from a distance, no matter what i wear, how i carry my body. but it’s not just staring. it’s glaring, it’s disgust, it’s fear, it’s dehumanisation. i have people recoil in horror, cross the street to avoid me, pull their children close to their bodies as if they might start dropping limbs if they get too close. people have stopped me in the street, from behind, demanding to know “what happened”, I’ve had to get off trams at random stops to escape little old ladies insisting i disclose my highly traumatic medical history and that I’m being rude and uncooperative for not “educating” them on “such a fascinating curiosity”… or best yet, the one all my wheelchair using friends know inside out: forceful unwelcome “help” from strangers without even a hello, yet alone an ask. i once had a man leap to his feet and begin thrusting his hands towards my crotch because i wedged a water bottle between my thighs to unscrew the cap and he decided i was clearly incapable of doing it myself… and this isn’t even getting into the ways that medical professionals treat me differently.

i go outside in my natural body, and I’m treated as a freak.

you know what happens when i go out wearing my prosthesis? children smile, adults mind their own goddamned business, leave me alone, and at absolute worst I’ve had a total of two people in four years talk to me about it, politely introducing themselves before saying “that’s neat, how does it work?”…

because fiction and futurism have given people so many deeply ingrained fundamental ideas about prostheses and amputation that I am treated more like a human being while wearing a bulky robot claw with electrodes pressed into my skin, than when i dare to exist as i now naturally am.

this is also borne out by the hundreds of notes on my original post declaring we need to invest more, research more, design more, so that prosthetic technology is better and “works” and is cooler… and literally nobody asking why a piece of technology was designed in such a way that i needed to use my nose, needed to hold two buttons down simultaneously half a meter apart that are barely fingertip sized, when either of them being a toggle would work - a firmware fix that would take 30 seconds to implement if anyone actually thought about the real technological needs of limb different people, instead of scifi fantasies about improving prosthetic technology until its “indistinguishable from the human body”, as if that goal should be self evidently desirable.

the actual technological solution to this situation, by the way, is a bracelet with a chopstick glued to it.

so.

*deep breath*

I’m sorry this was long and angry, I hope you can sense that my anger isn’t directed at you, the question asker, but broadly at everyone and the way society perceives amputees/limb different people… and I hope anyone who reblogged my original post also shares this, because damn did tumblr miss the point of it!

to finish off, I’ll give you the snippy snarky bitch response i originally had in consideration, before I decided to spend several hours on paragraphs of furiously slow one-thumbed attempt at shifting my audience’s perception of prostheses… because legit it’s great that you want to know how things can be improved for disabled people through technology! it’s just that in this one particular case…

if you want to design some technology that would be most helpful to me but is totally absent from the current market, I’d like a portable pocket sized device that projects a psionic field to make ableds mind their own fucking business and just treat me like a human being when i go outside :3