Papers by Aimee Roundtree
MA Lopez-Olivo, AK Roundtree, Z Ortiz, B Skidmore, ME Suarez-Almazor
ANNALS OF THE RHEUMATIC DIS... more MA Lopez-Olivo, AK Roundtree, Z Ortiz, B Skidmore, ME Suarez-Almazor
ANNALS OF THE RHEUMATIC DISEASES 66, 189-189
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Maria E Suarez-Almazor
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APL Lamberti, AR Richards - 2011
Cited by 2 - Related articles
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Complex Worlds: Digital Culture, Rhetoric, and Professional Communication, 2011
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The Journal of Rheumatology, Aug 1, 2007
Studies of systemic sclerosis (SSc) have enlisted measures of physical function and generic healt... more Studies of systemic sclerosis (SSc) have enlisted measures of physical function and generic health-related quality of life in order to determine health status. However, the measurements obtained may not discriminate other essential quality of life (QOL) domains important to patients with SSc. Our study used qualitative methods to evaluate patients' assessment of disease and symptom burden in SSc. We conducted 3 focus groups and 5 in-depth interviews of patients with SSc. Guiding questions were based on 5 themes: patient awareness, SSc-related problems, disease activity and progression, symptoms, and expectations. Thematic analysis was conducted using qualitative, grounded theory methodologies. Symptoms such as pain (localized or generalized), fatigue, and malaise were reported to have major influence on daily activities and QOL. Gastrointestinal symptoms were among the worst prevalent and disruptive physical problems. All participants reported significant disruptions in their social lives, a burden considered by many as the worst consequence of their disease. All expressed major effects on their overall well-being because of emotional distress, including depression, low self-esteem, concerns with physical appearance, and uncertainty about future outcomes. Patients with SSc report significant symptomatic and emotional burdens, which, in turn, affect their QOL and psychological well-being. Additional research and fuller awareness of the disease and symptom-related burdens experienced by patients with SSc may lead to additional relevant outcome measures and more effective overall treatment programs.
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BMJ Supportive & Palliative Care, 2012
This qualitative study of survivors of allogeneic stem cell transplantation (SCT) for haematologi... more This qualitative study of survivors of allogeneic stem cell transplantation (SCT) for haematological malignancy explored attitudes about late effects of therapy, healthcare issues and information needs. We conducted 12 indepth cognitive interviews and three focus groups of patients who had previously had SCT and were without recurrence of their primary disease. We used grounded theory methods, where themes emerged from consensus between cocoders. Health-related quality of life was assessed with the short-form 36 (SF-36). The study included 22 patients (50% female; 95% white; mean age 47 years). The mean time from SCT was 5.2 years (±1.4 years). Most had low SF-36 scores. Participants discussed late effects of therapy, most commonly graft-versus-host disease, and how they impacted their quality of life. They reported frequent healthcare use and cancer screening after SCT and discussed problems affording care and interacting with insurance companies. Participants shared sources of health information (eg, preferring providers as their primary sources of information, but also learnt from websites, medical journals and peer experiences) and identified information barriers (eg, feeling 'on their own' insofar as they did not have targeted care for their needs), and expressed importance of anticipatory guidance regarding infertility. Overall, participants' personal issues and social influences impacted survivors' needs and attitudes. SCT survivors face continuing and lasting health effects. The factors impacting survivorship needs are complex and may be interrelated. Future research should study the affect of incorporating personal and social issues into existing clinical SCT programmes on survivors' quality of life.
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Reviews, 1996
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Poroi, 2011
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Journal of Community Health, 2012
We explored attitudes about prevention, screening and treatment of hepatitis B virus (HBV) infect... more We explored attitudes about prevention, screening and treatment of hepatitis B virus (HBV) infection in Chinese, Korean and Vietnamese communities. We use qualitative methods in 12 focus groups (n = 113) of adults who self-reported their ethnicity to be Chinese, Korean, or Vietnamese. We use grounded theory (i.e., consensus-building between co-coders about recurring, emerging themes) for analysis. Diet, nutrition, fatigue and stress were misidentified as HBV causes. Improving hygiene, diet, exercise, and holistic methods were misidentified as viable HBV prevention methods. Common screening problems included not affording test and not understanding test results. Participants shared reasons for using complementary and alternative medicine--when Western medicine fails or becomes unaffordable. Participants sought information from medical providers and fellow community members, but also from the internet. Many of the attitudes and opinions that emerged may deter participation in HBV screening, prevention and treatment, insofar as community members may factor them into healthcare decision-making, choose alternative but ineffective methods of prevention and treatment, and undervalue the benefits of screening. More patient education in both traditional and new media is necessary for clarifying transmission, screening and treatment misunderstandings.
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Journal of Business and Technical Communication, 2001
Studies in the rhetoric of science have tended to focus on classic scientific texts and on the hi... more Studies in the rhetoric of science have tended to focus on classic scientific texts and on the history of drafts and the interaction surrounding them up until the moment when the drafts are accepted for publication by a journal. Similarly, research on disasters resulting from failed communication has tended to focus on the history of drafts and the interaction surrounding them up until the moment of the disaster. The authors argue that overattention to the moment skews understanding of what makes scientific discourse successful and neglects other valuable sources of evidence. After reviewing the promises and limitations of studies from historical, observational, and text-analytic approaches, the authors call for studies of responses to research articles from disciplinary readers and argue for studies using a variety of qualitative and quantitative methodologies that will explore the real-time responses of readers to scientific texts, test the effects of rhetorical strategies on readers, and track the course of acceptance or rejection over time.
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JCOM, 2010
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Journal of General Internal Medicine, 2010
BACKGROUND Physicians can play a significant role in helping to decrease the hepatitis B virus (H... more BACKGROUND Physicians can play a significant role in helping to decrease the hepatitis B virus (HBV) burden among Asian Americans. Few studies have described knowledge and practice patterns in the medical community among different provider types regarding HBV and liver cancer. OBJECTIVE Our study explores the HBV beliefs, attitudes and practice patterns of medical providers serving Asian American communities. DESIGN We conducted three focus groups with primary care providers, liver specialists, and other providers predominantly serving Asian American community. We asked about practices and barriers to appropriate medical care and outreach. PARTICIPANTS We moderated three focus groups with 23 participants, 18 of whom completed and returned demographic surveys. Twelve were of Asian ethnicity and 13 spoke English as a second language. Only eight screened at least half of their patients, most (72%) using the hepatitis B surface antigen test. APPROACH We used grounded theory methods to analyze focus group transcripts. RESULTS Participants frequently discussed cultural and financial barriers to hepatitis care. They admitted reluctance to screen for HBV because patients might be unwilling or unable to afford treatment. Cultural differences were discussed most by primary care providers; best methods of outreach were discussed most by liver specialists; and alternative medicine was discussed most by acupuncturists and other providers. CONCLUSIONS More resources are needed to lower financial barriers complicating HBV care and encourage providing guideline-recommended screenings. Other providers can help promote HBV screening and increase community and cultural awareness.
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Supportive Care in Cancer
Purpose We conducted a qualitative study to explore breast cancer survivors’ perceptions and atti... more Purpose We conducted a qualitative study to explore breast cancer survivors’ perceptions and attitudes about their current healthcare utilization, screening, and information needs. Methods We completed eight focus groups of breast cancer survivors. We included women, adult survivors, with an initial diagnosis of breast cancer in the year 2000, treated, and without a recurrence as per medical record. To analyze transcripts, we used grounded theory methods, wherein unexpected themes and direct answers emerged from consensus between co-coders. Results Focus groups included 33 participants, the majority of whom were white (84.8%), college-educated (66.7%), and covered by private medical insurance (75.7%) or Medicare (27.3%). Participants’ perceptions and attitudes about care were framed in terms of personal experiences (including facing barriers to screening, feeling in limbo in the healthcare system, having problems with communication with and between physicians, confusion about symptoms, and using self-prescribe remedies), personal attitudes (including strong opinions about what survivorship means, concerns about recurrence, and changes in self-perception and agency), and social influences (including modeling others’ behaviors, changes in social life, and listening to family). Conclusion Survivorship attitudes, recurrence fears, memories, and self-perceptions were influential personal factors in addition to self-efficacy. Solutions such as providing a cancer treatment summary might resolve many of the problems by consolidating and making readily available the numerous medical history and recommendations that survivors accrue over time, switching from provider to provider. Clinicians must also implement communication changes in their interactions with patients to enhance positive attitudes and behaviors, and leverage social influences.
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Journal of Clinical Epidemiology, 2009
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Books by Aimee Roundtree
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Papers by Aimee Roundtree
ANNALS OF THE RHEUMATIC DISEASES 66, 189-189
Books by Aimee Roundtree
ANNALS OF THE RHEUMATIC DISEASES 66, 189-189