Challenges of Palliative Care at Home in Brazil: A Reflection

Revista Brasileira de Enfermagem, 2022

Objectives: to analyze palliative care production developed by health professionals to home care patients. Methods: this is an exploratory study, with a qualitative approach, using the transpersonal care theoretical framework. Thirteen interviews were conducted with health professionals and 18 observations were conducted on different cases. Content analysis was performed using MAXQDA©. Results: actions performed: maintenance and follow-up measures to people eligible for palliative care, in acts of dialogue and "listening" to caregivers and users, conducting guidelines for the care and self-care process, performing technical procedures, delivery of materials, referrals and medical prescriptions to users. Final Considerations: it is perceived the need for advances in the implementation of government policies in Brazil that insert palliative care into the Health Care Network through educational, managerial and care actions that ensure human dignity, thus allowing the developm...

Palliative Medicine

As part of the work on organizational standards in palliative care, the Standards Team formed by the Polish Society of Palliative Medicine, concerning home palliative care for adults, proposes to change the name to the Home Palliative Care Team. We also believe that a flexible system of visits to the patient's home should be created, tailored to the individual needs of the patient and their caregivers. As part of the individualization of patient care, it is proposed, among others, to increase the frequency of services for which there is an increased demand, at the expense of those that may be less needed at a given moment. The document presents an organizational chart, requirements regarding staff qualifications, the scope of provided services, procedures performed as part of home care, as well as conditions for providing equipment and visits to the patient's home.

International Journal of Integrated Care, 2012

Brazilian Journal of Anesthesiology (English Edition), 2014

Background and objectives: in Brazil, palliative care (PC) is not properly structured and that reality transforms this theme in a public health problem; therefore, initiatives become relevant in this context. This paper aims to share the experience that occurred in an oncology referral hospital in the State of Maranhão and present initiatives that helped in the development of PC Service. Experience report: the hospital had an outpatient Pain and PC Service, but without specialized beds. The terminally ill patients stayed in common wards, which caused much unrest. A sensitization process was initiated in the hospital through initiatives, such as a photo contest called Flashes of Life and a ward called Room of Dreams, designed in partnership with the architecture course at the Universidade Estadual do Maranhão. The process culminated in the granting of wards to the PC and in the commitment of the Foundation, sponsor of the hospital, to run the project. Conclusion: this experience was a reproducible local initiative for the establishment of PC in a cancer hospital. Local initiatives are valuable in Brazil because they favor a significant number of patients and show its effectiveness in practice to governments and society. To structure a PC service, it is essential to establish priorities that include the assignment of drugs for management of symptoms, humanization, multidisciplinarity, sensitization and education of professionals.

Mediterranean Journal of Clinical Psychology, 2014

The study aims at investigating the operators' impressions about the needs of patients and their families, their idea of palliative care, their moods and what they consider important in everyday clinical activity. Specifically, the study involved a group of 20 operators in a home palliative care service. Data were obtained through a self-report questionnaire. The results find the operators' strong need to share their work experience. Moreover the whole team is reputed to be important. This work is considered to be a source of human and professional gratification rather than economic. Finally, according to operators home palliative care involve a strong interplay between the operators' technical skills and their human resources. Keywords: cancer, final stage of life, palliative care in the home, care teams.

European Journal of Cancer, 1997

nursing team, palliative care unit. Centre for Development of Palliative Care (C.O.P.Z.). Dr. Daniel den Hoedkliniek, Rotterdam. The Netherlands The Centre for Development of Palliative Care (C.O.P.Z.) was opened in the Dr. Daniel den Hoedclinic in 1994. The unit for palliative care, operational since september 1995 is the centre's academic workplace. The unit has 8 beds. The nursing team is self-dlrected and wor1ls according to the principles of Integrated Nursing. Through the C.O.P.Z:s steering committee, the interdisciplinary team of the unit has been given a development task. The development task consists of being able to show the increased value gained through the development of palliativa care within the unit. This development is given shape through, among other things, developing protocols for specific nursing care. Starling both the wor1ling party 'Protocol' and the wor1ling party 'Standard Nursing Care Plans' is a requirement for this. An inventary has been made of the most common nursing care problems according to Gordon's Health Panems. Based on literature from the National Organisation for Quality Assurance (C.B.a.) and the National Centre for Nursing and Care (L.C.V.V.), gUidelines have been drafted for the most suitable structure for protocols In palliative care. In connection with the unit's most common nursing care problems, the following protocols have been, or are being developed at present: (prevention of) constipation, itch, handling anxiety, nausea and vomiting. The protocol is a good instrument for the development of nursing care in the palliative patient. Because of the presence of mulbdimensional problems in palliative care, specific protocalmaking is a necessity to clarify the role of nurses in palliative care.

2015

In this paper we discuss the fact that more and more patients are treated in their homes by a whole set of organizations, sometimes with different ownership, and how this fact places new and heavy demands on health care and home service staff to communicate and to collaborate. We further discuss the need for communication and collaboration on different managerial and operational levels. In particular we point to the need for managers in different organizations to agree on ways of communicating and collaborating on the operational level and that this aspect has to be taken into account during procurement of home care services. As a result the paper suggests a number of methodological measures and IT solutions to support organizational development, coordination and collaboration.

Revista de saúde pública, 2010

To analyze home care practices of outpatient and hospital services and their constitution as a substitute healthcare network. A qualitative study was carried out using tracer methodology to analyze four outpatient home care services from the Municipal Health Department and one service from a philanthropic hospital in the municipality of Belo Horizonte, Southeastern Brazil, between 2005 and 2007. The following procedures were carried out: interviews with the home care services' managers and teams, analysis of documents and follow-up of cases, holding interviews with patients and caregivers. The analysis was guided by the analytical categories home care integration into the healthcare network and technical-assistance model. Home care implementation was preceded by a political-institutional decision, both with a rationalizing orientation, intending to promote cost reduction, and also with the aim of carrying out the technical-assistance rearrangement of the healthcare networks. The...