Participatory Medicine & E-Patients

Development and Usability Evaluation of an Art and Narrative-Based Knowledge Translation Tool for Parents With a Child With Pediatric Chronic Pain: Multi-Method Study

Kathy Reid, Lisa Hartling, Samina Ali, Anne Le, Allison Norris, Shannon D Scott

J Med Internet Res 2017 (Dec 14); 19(12):e412

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Impact of an Electronic Health Record-Integrated Personal Health Record on Patient Participation in Health Care: Development and Randomized Controlled Trial of MyHealthKeeper

Borim Ryu, Nari Kim, Eunyoung Heo, Sooyoung Yoo, Keehyuck Lee, Hee Hwang, Jeong-Whun Kim, Yoojung Kim, Joongseek Lee, Se Young Jung

J Med Internet Res 2017 (Dec 07); 19(12):e401

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Patient Health Record Systems Scope and Functionalities: Literature Review and Future Directions

Lina Bouayad, Anna Ialynytchev, Balaji Padmanabhan

J Med Internet Res 2017 (Nov 15); 19(11):e388

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“A Phenomenal Person and Doctor”: Thank You Letters to Medical Care Providers

Talya Miron-Shatz, Stefan Becker, Franklin Zaromb, Alexander Mertens, Avi Tsafrir

Interact J Med Res 2017 (Nov 02); 6(2):e22

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Combining Participatory Influenza Surveillance with Modeling and Forecasting: Three Alternative Approaches

John S Brownstein, Shuyu Chu, Achla Marathe, Madhav V Marathe, Andre T Nguyen, Daniela Paolotti, Nicola Perra, Daniela Perrotta, Mauricio Santillana, Samarth Swarup, Michele Tizzoni, Alessandro Vespignani, Anil Kumar S Vullikanti, Mandy L Wilson, Qian Zhang

JMIR Public Health Surveill 2017 (Nov 01); 3(4):e83

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Effect of a Website That Presents Patients’ Experiences on Self-Efficacy and Patient Competence of Colorectal Cancer Patients: Web-Based Randomized Controlled Trial

Jürgen M Giesler, Bettina Keller, Tim Repke, Rainer Leonhart, Joachim Weis, Rebecca Muckelbauer, Nina Rieckmann, Jacqueline Müller-Nordhorn, Gabriele Lucius-Hoene, Christine Holmberg

J Med Internet Res 2017 (Oct 13); 19(10):e334

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Views of Community Managers on Knowledge Co-creation in Online Communities for People With Disabilities: Qualitative Study

Julia Amann, Sara Rubinelli

J Med Internet Res 2017 (Oct 10); 19(10):e320

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Evaluating Patient Empowerment in Association With eHealth Technology: Scoping Review

Tracie Risling, Juan Martinez, Jeremy Young, Nancy Thorp-Froslie

J Med Internet Res 2017 (Sep 29); 19(9):e329

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System-Wide Inpatient Portal
 Implementation: Survey of Health Care Team Perceptions

Jennifer L Hefner, Cynthia J Sieck, Daniel M Walker, Timothy R Huerta, Ann Scheck McAlearney

JMIR Med Inform 2017 (Sep 14); 5(3):e31

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The User Knows What to Call It: Incorporating Patient Voice Through User-Contributed Tags on a Participatory Platform About Health Management

Annie T Chen, Rachel M Carriere, Samantha Jan Kaplan

J Med Internet Res 2017 (Sep 07); 19(9):e292

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The Effects of Coaching Patients to List Questions Before Visiting Cancer Specialists: Retrospective Evaluation of Visit Preparation in a Rural, Underserved Setting

Jeffrey K Belkora, Marijoyce Naguit, Lauren Stupar, James Wiley, Shelley Volz, Sara O'Donnell

J Particip Med 2017 (Aug 22); 9(1):e15

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Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers

Audun Utengen, Dara Rouholiman, Jamison G. Gamble, Francisco Jose Grajales III, Nisha Pradhan, Alicia C Staley, Liza Bernstein, Sean D Young, Kevin A Clauson, Larry F Chu

J Med Internet Res 2017 (Aug 17); 19(8):e280

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“Am I normal?” The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers

Simone Oerlemans, Lindy P Arts, Nicole J Horevoorts, Lonneke V van de Poll-Franse

J Med Internet Res 2017 (Aug 15); 19(8):e288

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Evolving Patient-Researcher Collaboration: An Illustrative Case Study of a Patient-Led Knowledge Translation Event

Jenny Leese, Sheila Kerr, Annette McKinnon, Erin Carruthers, Catherine Backman, Linda Li, Anne Townsend

J Particip Med 2017 (Aug 04); 9(1):e13

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Individual Prognosis of Symptom Burden and Functioning in Chronic Diseases: A Generic Method Based on Patient-Reported Outcome (PRO) Measures

Niels Henrik Ingvar Hjollund

J Med Internet Res 2017 (Aug 01); 19(8):e278

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Consumer Adoption of Personal Health Record Systems: A Self-Determination Theory Perspective

Vahid Assadi, Khaled Hassanein

J Med Internet Res 2017 (Jul 27); 19(7):e270

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Do Physicians Respond to Web-Based Patient Ratings? An Analysis of Physicians’ Responses to More Than One Million Web-Based Ratings Over a Six-Year Period

Martin Emmert, Lisa Sauter, Lisa Jablonski, Uwe Sander, Fatemeh Taheri-Zadeh

J Med Internet Res 2017 (Jul 26); 19(7):e275

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Patients’ Perspective on Participation in Care With or Without the Support of a Smartphone App During Radiotherapy for Prostate Cancer: Qualitative Study

Maria Hälleberg Nyman, Catharina Frank, Ann Langius-Eklöf, Karin Blomberg, Kay Sundberg, Yvonne Wengström

JMIR Mhealth Uhealth 2017 (Jul 26); 5(7):e107

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What Patients Value About Reading Visit Notes: A Qualitative Inquiry of Patient Experiences With Their Health Information

Macda Gerard, Alan Fossa, Patricia H Folcarelli, Jan Walker, Sigall K Bell

J Med Internet Res 2017 (Jul 14); 19(7):e237

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Information and Communication Technologies to Support Chronic Disease Self-Management: Preconditions for Enhancing the Partnership in Person-Centered Care

Sabine Wildevuur, Fleur Thomese, Julie Ferguson, Ab Klink

J Particip Med 2017 (Jul 07); 9(1):e14

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