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    Climate: Family Perspectives

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    RickySpence
    This document discusses several topics related to families who have members with disabilities. It addresses the climate and ecology of families, similarities reported by siblings of those with disabilities, domains of quality of life for joint activities and trust. It also discusses parents with disabilities, transition planning for children with disabilities, respite care, health care access problems, life expectancy for those with Down syndrome, issues around sexuality and development, characteristics of resilient families, and reasons parents may not plan for future care of their children with disabilities.

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    Climate: Family Perspectives

    Uploaded by

    RickySpence
    11 views3 pages
    This document discusses several topics related to families who have members with disabilities. It addresses the climate and ecology of families, similarities reported by siblings of those with disabilities, domains of quality of life for joint activities and trust. It also discusses parents with disabilities, transition planning for children with disabilities, respite care, health care access problems, life expectancy for those with Down syndrome, issues around sexuality and development, characteristics of resilient families, and reasons parents may not plan for future care of their children with disabilities.

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    This document discusses several topics related to families who have members with disabilities. It addresses the climate and ecology of families, similarities reported by siblings of those with disabilities, domains of quality of life for joint activities and trust. It also discusses parents with disabilities, transition planning for children with disabilities, respite care, health care access problems, life expectancy for those with Down syndrome, issues around sexuality and development, characteristics of resilient families, and reasons parents may not plan for future care of their children with disabilities.

    Copyright:

    © All Rights Reserved
    Download as DOCX, PDF, TXT or read online from Scribd
    Download as docx, pdf, or txt
    11 views3 pages

    Climate: Family Perspectives

    Uploaded by

    RickySpence
    This document discusses several topics related to families who have members with disabilities. It addresses the climate and ecology of families, similarities reported by siblings of those with disabilities, domains of quality of life for joint activities and trust. It also discusses parents with disabilities, transition planning for children with disabilities, respite care, health care access problems, life expectancy for those with Down syndrome, issues around sexuality and development, characteristics of resilient families, and reasons parents may not plan for future care of their children with disabilities.

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    Family perspectives

    Climate
    o

    Refers to the general atmosphere in the home, can depend upon how
    well the family works as a unit.

    Ecology

    Refers to all elements that make up the family unit.

    Siblings

    Similarities

    Similarity 1: They find positive and negative results.


    Similarity 2: They grow toward acceptance of the
    disability
    Similarity 3: Siblings experience a range of emotional responses.
    Similarity 4: Siblings generally report positive family relationships.

    Quality of life domains

    Joint Activities
    Mutual Understanding
    Private Time
    Acceptance
    Forbearance
    Trust in

    Well-being

    Exchange Experiences
    Social

    Support

    Dealing with the Outside World

    Parents with disabilities

    Combined Skills Model

    o
    Parents of children with disabilities

    Special education, transition planning, and parents

    Parents need to be involved in planning for their childs life


    after their school career is over
    Transition planning-

    Respite care

    Organizations that offer to take care of the disabled persons while the
    parents "take a break."
    Health care decisions and problems

    Parents of children with disabilities often experience difficulty finding


    appropriate health care and health care providers
    Particularly, problems are noted by families of children with DS, autism,
    and health impairments
    Difficulty with accessing care is consistent across disability areas
    Families with more than one child needing specialized care report more
    access problems
    o

    Life expectancy for people with DS


    o

    60

    Sexual development and rights of people with disabilities

    Ashley treatment

    refers to a controversial set of medical procedures undergone by a Seattle


    child "Ashley X" born with severe developmental disabilities due to static
    encephalopathy
    she will remain at an infant level mentally and physically- growth
    attenuation
    Principle of equal consideration

    one should both include all affected interests when calculating the rightness of an
    action and weigh those interests equally.
    o

    Equal rights when it comes to sexual development

    Characteristics of resilient families (from Knestrict & Kuchey, 2009)

    Rules
    Routines
    Rituals
    Tenacity
    High socio-economic status
    Criterion Referencing
    Reasons parents don't make plans for the future care of their children with disabilities
    (from Bibby, 2012)

    Parents often felt that their own standards of care could not be met by anyone
    else and were therefore not willing to plan for a substandard care arrangement.
    A wish to oversee care and talk of a supported housing facility, and the paralysis
    in decision-making was caused by the overwhelming stress

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