Pacemaker Patient Information 2021 FINAL
Pacemaker Patient Information 2021 FINAL
Pacemaker Patient Information 2021 FINAL
Patient Information
www.heartrhythmalliance.org
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Glossary
Ventricles The two lower chambers of the heart, providing Is there any
most of the pumping force equipment that
can affect
my pacemaker?
Important information
This booklet is intended for use by people who
wish to understand more about pacemakers.
The information comes from research and
previous patient experiences and offers an
explanation of the pacemaker procedure.
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The heart during normal rhythm
If your doctor has suggested that you have a The heart and
pacemaker fitted, it is because you have an normal conduction
abnormality in the electrical conduction system of
your heart. To help you understand this, it may be
useful for you to know how the electrical conduction
system in your heart works normally. Pulmonary veins
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What is a pacemaker?
Pacemakers may be single (one lead), dual (two leads) or triple (three leads) and
you will be fitted with the device appropriate for your particular condition.
Pacemakers are largely used to treat slow heart rhythms (bradycardia). One
type of pacemaker, the biventricular pacemaker or cardiac resynchronisation
therapy pacemaker, is increasingly being used to treat patients with heart
failure; this is not suitable for all but can be discussed with your doctor.
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Why do I need a pacemaker?
There are several different common conditions which cause the heart to beat
and the rhythm to be abnormal. These are:
Bradycardia
Bradycardia is a term that describes a number of different conditions in which
the heart beats at an unusually slow rate. If impulses are sent from the sinoatrial
node at a slow rate, or if the impulses are delayed as they travel through the
conduction system, the heartbeat will be slow.
The severity of and treatment for bradycardia depends on the area of the heart
affected. The goal of using a pacemaker to treat bradycardia is to keep your
heart rate at a level high enough to allow sufficient blood flow to the body.
A pacemaker is required to restore a normal heart rate and correct the slowing
down of the natural electrical conduction tissue. This is most commonly due to
the conduction system 'wearing out with age', but can also occur as a congenital
(in-born) problem or as the result of a heart attack, infection, or particular
medications.
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Sick sinus syndrome
This is a condition where the natural pacemaker does
not function properly and results in your heart going
either too slowly or too fast or a combination of both.
An implanted pacemaker is used to support the slow
heart rate and medicine is usually given to control the
fast heart rhythms.
Pace and ablate for atrial fibrillation (AF)
Pacemakers are also used following a procedure called catheter ablation that
involves applying radiofrequency (special catheter procedure for uncontrolled
AF called 'pace and ablate') energy to the AV node in your heart, which
destroys the cells in this area. This means that the heartbeats can no longer
travel from the top to the bottom of the heart and a pacemaker is then used to
deliver electrical impulses to the heart. This procedure is performed when your
atrial fibrillation causes fast heart rates that cannot be controlled using standard
medication or other therapies. You can read more about the ablation procedure
in the Arrhythmia Alliance booklet: Treatment options for an arrhythmia.
Heart failure
Some people who experience heart failure (when the heart does not pump as
well as it should) can benefit from having a particular type of pacemaker, which
is known as a biventricular pacemaker or cardiac resynchronisation therapy.
This type of pacemaker usually involves three leads in the heart.
If you have heart failure, this therapy may improve some of your symptoms.
However, not all people who experience heart failure will benefit from this
treatment and careful assessment is needed before this type of pacemaker
is implanted.
His bundle pacing
The electrical pathways past the AV node split into right and left. Some patients
have an electrical delay on only one of these, and a pacemaker might be
appropriate to treat this. In practice, a pacemaker for His bundle pacing has two
leads: one on the atrium, and the other, which would normally be implanted on
the of the ventricle, is placed just below the AV node, in an area called the His
bundle, before the electrical conduction pathways split into two. This is a very
specific procedure which may only suit a small proportion of people.
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New leadless pacemaker
A new-style pacemaker is now available, designed to be placed directly in the
heart without the visible surgical pocket, scar and insulated leads required for
conventional pacemakers. The device offers a less invasive approach for patients
compared to traditional pacemaker procedures and leaves no visible sign of
a medical device under the skin, which can mean fewer post implant activity
restrictions and no obstructions to shoulder movement. The leadless pacemaker
is only suitable for a small number of people at this time. Your doctor will be able
to tell you if a leadless pacemaker is suitable for you.
The procedure is not usually performed under a general anaesthetic, but you
may be given sedation, which will make you relaxed and sleepy.
Before the procedure starts, the doctor will clean the skin with some antiseptic
solution and inject some local anaesthetic under the skin just below your
collarbone.
This will numb the area and allow the doctor to pass a small lead or electrode
through a vein into your heart. You may have one, two or three leads inserted
depending on what type of pacemaker you need. The lead(s) are then connected
to the pacemaker box. This will usually be placed under the skin on your chest
wall. The area will then be closed with dissolvable or non-dissolvable stitches.
If your stitches need to be removed by your GP, practice nurse or district nurse
you will be informed before you leave hospital. The whole procedure should take
approximately 60 to 90 minutes.
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What happens after the pacemaker
is fitted?
After the procedure, you will be taken back to the ward. You will be asked to
lie in bed for a couple of hours before you can get up, eat and drink. Your heart
rhythm may be monitored for a while to make sure that the pacemaker is doing
its job, so you may be attached to an ECG monitor. As the wound can feel quite
bruised and sore, especially for the first day or two, it is recommended that you
take regular painkillers. It is important that you tell your nurse immediately if
you have any pain or discomfort. You may also be given some antibiotics to take
before and after the procedure to minimise the risk of infection.
The wound should be kept clean and dry until it has fully healed, although it is
fine to have a bath or shower after the first three or four days. Ask your nurse
for a protective dressing so that you can bathe without getting the wound wet.
Report any wound problems to your nurse.
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You will probably be allowed to go home the same or the next day provided your
pacemaker is checked, there are no complications and your doctor assesses
it is safe. Your pacemaker may be checked before you go home by a cardiac
physiologist. This check may involve the use of a special computer, called a
programmer, that can look at the device settings and make sure the pacemaker
is working properly, or a simple magnet check and an ECG will be sufficient.
This check takes about 15 minutes and can either be done on the ward or in
the pacemaker clinic. You will also have a chest x-ray to check lead positions
and make sure all is well following the implant procedure. Please ask the
physiologist or specialist nurse if you have any questions or worries about
the device. Depending on local policies, this check may happen a few hours after
having your pacemaker implanted, or a few weeks. In the latter, you will receive
an appointment letter to attend the pacemaker clinic in 4 to 8 weeks' time.
You will be given a pacemaker identity card which has details of the make and
model of your pacemaker. You should always carry this card with you. If you
require any further medical treatment in the future it is important that you show
this card to the health care professionals treating you.
Arm movements
Extra tissue will grow around the lead(s) in your heart after a few weeks,
which will prevent the wire(s) moving out of place. Patients should not interfere
with the area of the implant, but follow the instructions given until the first
follow up visit. As a general guide, you should not raise the arm on the same side
as the pacemaker above shoulder height for the first week. For the next two
weeks full, gentle shoulder movement is allowed. After three weeks you can
exercise gently. Once you have had your first pacemaker clinic check you will be
able to return to normal activity.
Wound site
Your wound site should take about six weeks to fully heal. Try to avoid wearing
tight clothing over the wound until it has healed completely to avoid excess
rubbing over the area.
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If you notice any redness, soreness or swelling of the area, or any signs of
bleeding or oozing from the wound, report this immediately to your implanting
centre as these may be a sign of wound infection.
You will probably be able to feel the pacemaker box under your skin as well
as other lumps close by. These are the leads that are attached to the box,
curled up beside the box under the skin. It is extremely important that you don’t
try to move the box or leads, but do let someone at the implant centre know if
they continue to bother you.
You should not be aware of the pacemaker working, so if you feel body muscles
twitching you should report it to the implanting centre.
The pacemaker will not usually stop the heart from speeding up so if you had
fast palpitations before then they may continue. If this occurs the palpitations
are usually treated by medicine.
The pacemaker will be set to enable your own heart to work as much as possible
on its own and will only come in if your heart rhythm slows down to a certain
level. It works 'on demand', pacing the heart right before it becomes too slow,
so you don't experience any symptoms. If your heart rate is within normal
limits, the pacemaker monitors this activity, only acting when it starts to get
too slow. This allows your heart to work on its own, and saves battery,
preventing you from needing a battery replacement too early.
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Safety issues
Can I still drive after I have my pacemaker implanted?
The Driving and Vehicle Licensing Agency (DVLA) have guidelines in relation to
patients who require a pacemaker and whether or not they are safe to drive.
There will be some restrictions, but these will vary depending on why you have
had your pacemaker fitted. It is very important that you discuss this with your
nurse, physiologist or doctor at your pacemaker centre who will explain this in
more detail.
You must inform the DVLA that you have had a pacemaker implanted it is also
strongly recommended that you inform your insurance company.
Following your initial recovery, it is advised to avoid strenuous activity in the first
four to six weeks after pacemaker implantation but then to partake in regular
healthy exercise. Please talk to your pacemaker clinic if you have concerns about
physical activity.
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Is there any equipment that can
affect my pacemaker?
Electromagnetic interference will not damage your
pacemaker but may temporarily interfere with its
settings whilst you are in contact with it.
Most mechanical and electrical devices that you use
in your normal daily activities will not affect your
pacemaker.
Some studies have shown that some mobile phones can affect the pacemaker
if held within six inches of the device. It is therefore recommended that you do
not keep a mobile phone in a coat or shirt pocket over the pacemaker. Keep
the handset more than six inches away from the pacemaker; ideally hold the
phone over the ear on the opposite side to the device.
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Shop doorway security systems
It is advised that you walk through shop doorway security systems at a normal
pace and not to wait around in this area.
Some electrical nerve and muscle stimulators (TENS units) may cause
interference with pacemakers but this depends on where they are being applied,
and, if any of these treatments are suggested to you then your pacemaker clinic
should be contacted for advice.
Travel
You can safely travel abroad with your pacemaker, but you are advised to show
the security staff your pacemaker identification card. Walk through the metal
detector archway if asked to do so, but the metal casing of the device may set
off the airport security alarm. The detector will not cause any harm to your
pacemaker provided you walk briskly through the arch.
Arc welding
Generally, this should be avoided but can be performed under special circumstances.
Please ask your pacemaker centre if you need further information on arc welding.
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Pacemaker clinic visits
Your pacemaker should be checked regularly and
you will be invited to attend your pacemaker clinic
as required. You will be seen at least once a year and
may be asked to attend more often if necessary.
You may also see the consultant cardiologist or their
registrar at your clinic visit.
During each clinic visit, the physiologist or specialist
nurse will examine your pacemaker using a special
programmer. This machine will allow them to
examine the settings and the battery life of your
device.
Special measurements are also done to assess the
state of the leads that connect the pacemaker to
your heart. If your condition has altered, changes
may be made to the pacemaker settings using the
special programmer. All the information is
confidentially stored in your records.
Your wound will also be checked and you may have other tests done. Please
also take this opportunity to ask any questions or let the medical team know if
you have any problems or worries.
Most pacemaker checks can now be performed remotely, using a device called a
home transmitter, or even your smartphone. Your local pacemaker clinic will be
able to advise you on this and help you set up this system if they believe it's
appropriate for you. The pacemaker activity and your heart rhythm are then
analysed by the clinic in exactly the same manner as when you physically attend
the clinic.
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Changing the pacemaker
Normally a pacemaker battery lasts between six and thirteen years. Your battery
will be checked at every visit to the pacemaker clinic and staff at the clinic will
be able to predict when you need a new pacemaker box and arrange for you to
be admitted at a convenient time for you. Don’t worry, it will not be allowed to
completely run down. for more information please visit What happens when my
pacemaker runs out of battery? by Cristiana Montiero https://
heartrhythmalliance.org/aa/uk/virtual-patient-education-platform
You will need to be admitted to hospital and the procedure is similar to having
your first pacemaker fitted, but it will not usually involve having new leads.
Please take your ID card with you whenever you go to hospital. It may also
be useful to contact your implanting centre for advice before you go into
hospital for any investigations or operations that are not associated with your
pacemaker. It is important to always mention to any doctors, nurses or dentists
that you have a pacemaker before undergoing any investigations or procedures.
This booklet has been written to support those with a pacemaker and their
carers, who struggle to find information on this device.
Without donations and fundraising, we would not be able to provide support
through our award-winning resources and helpline.
If you would like further information or would like to provide feedback please contact info@heartrhythmalliance.org.