Partners Guide Coping With Cancer
Partners Guide Coping With Cancer
Partners Guide Coping With Cancer
Partners
guide to
coping with
cancer
© Cancer Council Queensland 2012
If you would like to know more about the information and support
services provided by Cancer Council Queensland, call our Helpline
13 11 20, Monday to Friday, 8am to 6pm.
Disclaimer: The information enclosed is provided for educational purposes or for personal use only. Cancer Council
Queensland (CCQ) strongly advises this information should not be used as a substitute for seeking medical or health
care advice. We strongly recommend that you seek advice from your doctor or treating health care team before
making any decision about your health care treatment. Please note that the information enclosed reflects the opinion
of the author/s at the time of writing. Every effort has been made by CCQ to ensure its accuracy, however CCQ and
its advisors do not accept any liability in relation to this information. This publication is current as at December 2012.
Introduction
Being diagnosed with cancer is one of the most distressing and
demanding experiences a person can face. The focus of attention
naturally falls on the person with cancer. However, other family
members, and partners in particular, often suffer as much or even
greater distress. Fears for your partner, emotional turmoil, and
increased demands often continue over a lengthy period, and can
leave you vulnerable to the effects of stress – and just at the time
when you are needed more than ever. If you are the partner of
someone with cancer, this booklet – A Partner’s Guide to Coping
with Cancer – is designed to address your particular challenges.
Not every topic in this booklet will relate to everyone, and there may
be too much information to take in all at once. It may not contain
all the information you need, but may point you in the direction of
further resources. We hope you will find it reassuring that many other
people have faced similar feelings and issues. Their experiences
may give you ideas to help you find your way through change and
multiple demands. What worked for them may help you to support
your partner, look after yourself, and work together to maintain your
relationship.
Note: Our other booklets Coping with Cancer and Coping with a
Diagnosis of Prostate Cancer provide information and strategies to
help guide patients and families through the challenges of diagnosis
and treatment. This partner’s booklet is designed to complement
and to be read in addition to these booklets.
Special issues............................................................................................. 46
Helping children cope.................................................................................. 46
Being a carer as well as a partner................................................................ 48
Fertility.......................................................................................................... 50
When the outlook is poor............................................................................. 52
Appendices................................................................................................. 54
1. Ideas for supporting your partner............................................................ 54
2. Relaxation exercises................................................................................ 56
3. Support map............................................................................................ 58
4. Ideas to show you care............................................................................ 60
5. a. Steps for successful problem solving.................................................. 61
b. Problem solving sample worksheet..................................................... 62
6. Tips for improving communication skills................................................. 64
7. Identifying guiding values........................................................................ 66
With so much going on for your partner, it can also be natural to feel
that your own feelings and needs do not deserve attention and to push
them into the background. However, it is common for partners of cancer
poor concentration
memory problems
worrying thoughts
confusion
fatigue
disturbed sleep
nausea
nightmares
restlessness
headaches
You may have never felt this way before and it can be overwhelming.
However, feeling like this does not mean you are ‘going crazy’ or
that you are ‘weak’. These are all normal reactions as you try to take
in complex, distressing information, make some sense out of it, and
put it into perspective. With time, people usually begin to adjust to
the changes brought about by cancer and begin to feel more like
their usual selves.
Adjusting to change
A diagnosis of cancer marks the beginning of a journey. Cancer is
not just one stressful event to be dealt with and moved past – it is
a series of changing situations and demands. This means that you
and your partner may need to regularly review how you are managing
things. While this requires effort, it will help you to use your time
and energy effectively. Working together as a team to figure out new
ways to adjust to the changes in your lives will help to ensure you
understand each other’s efforts to cope and choose ways that work
well for you both.
Tip
If you want to help the person with cancer, it is important to ask
them what they would and would not find helpful.
Of course, what one person considers is best for them may be quite
different from what will meet another person’s needs. However,
the following information may help to guide you and your partner
to find the most appropriate care for his/her particular needs and
circumstances.
Invest in your physical health: Make sure that you are eating
healthily to give your body the best chance to cope with stress.
Alcohol and caffeine (found in coffee, tea, soft drinks, and
chocolate) can put a strain on your body so keep them to a
minimum. Try to exercise regularly. While making time for exercise
is hard at the best of times, it is even more important now, as
regular physical activity has been shown to lift mood, lower
blood pressure, improve sleep, and reduce stress. Also (and
perhaps unexpectedly), physical activity is also an important way
You and your partner may respond to and deal with stress in very
different ways. For some people, being alone or engaging in a
solitary activity is an opportunity to unwind and re-focus their
attention and energies. For others, talking and being in company is
essential in helping them cope with stress. If you and your partner
cope with stress in different ways, it may be helpful for each of you
to find some relaxing activities that you can do independently – if you
are both less stressed as a result, your relationship will also benefit.
There are a few key questions you can ask yourself to check
whether your thoughts are helping you or not:
If you feel like your thoughts are causing difficulties for you, the
Coping with Cancer booklet has a more detailed section on Helpful
thinking. You may also like to get support from the Cancer Council
Queensland’s Cancer Counselling Service.
People often find it very hard to ask for and accept offers of help.
You may worry about burdening others, but often family and friends
are eager to find ways to help, and may feel helpless or shut out if
you don’t ask for or accept their help. Ask yourself the question “If
someone I loved or cared about had a problem, would I want to help
out?” One idea for overcoming this barrier to getting support can be
for a trusted and capable friend to take on the role of co-ordinating
help. You and your partner need to let this co-ordinator know what
type of help you would like (see over). Then when someone asks you
whether there is anything they can do to help, you can direct them to
your co-ordinator who will give them an appropriate task.
It is important to let people know the things you would find helpful
so they can choose ways to help that match their abilities. It can be
useful having a list of things that it would be nice to get help with
– then when people ask if there is anything they can do, they can
choose from the list something they would be comfortable doing.
“My next door neighbour just started mowing our lawn, and
you know what, he said that it actually helped him to feel like
he was doing something useful. ”
“Having a close friend with us at medical appointments,
helping to remember information, really helped take some of
the pressure off us. ”
What do we live for, if it is not to make life less difficult for
each other? George Eliot
Think about the things that you can do for one another to show that
you really care. These don’t need to be big gestures like planning a
holiday or a major purchase, just small, everyday things. It can be
useful for each of you to take some time to think about things you
might like your partner to do that would really mean something to
you or help you. Then together, discuss and plan ways of caring for
one another over the next week – perhaps even writing down one
caring activity each day that you will do for your partner. Try to be
creative, and use the list in Appendix 4 for some ideas. Try to vary
your activities (a kiss and a compliment every day could get a little
boring). Don’t make them too difficult – use many, small caring acts
that only take a minute or two, and a few that need more effort. You
can make your plans separately, or you can use the list to talk about
the ways you would each like the other to show they care.
“Grace made the point that she didn’t want me to solve her
problems, she just wanted to know that I understood what
she was going through. It was hard for me to step back and
”
just listen but that was really what she was after.
Committing to the solution: Both you and your partner are more likely
to commit to the agreed option if you have both been involved in the
discussions (rather than feeling the decision has been imposed).
Although a structured approach may take a little more time and effort,
it can bring positive returns such as better mutual understanding and
closeness which, in turn, will help your relationship generally.
Talk to your partner openly about how you are feeling. It may
help to have this discussion outside the bedroom when you
are feeling less vulnerable. Discuss how the cancer or cancer
treatments have affected desire for intimacy or ability to respond
sexually. This will help to clear up misunderstandings and help
you to better support one another and work out ways to stay
intimate.
Let your partner know how much you care. Consider telling them
how much they mean to you, how important the relationship is to
you, and how you want to work it out together.
There is information that may help you and your partner enjoy
a satisfying, intimate relationship despite physical changes or
difficulties. Your doctor can advise you about using aids and
medications, and can also refer you and your partner to other health
professionals who specialise in the management of sexual problems.
Sex after treatment may be different. However with the right advice
and some patience and effort, it is possible for couples to find ways
to continue a satisfying sex life. Sources of further information are
listed below.
Take your time; don’t try to solve the problem too quickly. Also, take
one step at a time – focus only on the immediate issue at hand.
Take turns to listen and to speak. Hear your partner out, and ask
your partner how they are feeling. Let them know how you feel
about what they have said. Use good communication skills (see
the Improving Communication section in this booklet).
Really listen – and feed back what you think the other person
is trying to say so they feel heard and know you understand
(not necessarily agree with) their point of view.
Rather than the expected period of relief and normality, you may find
that your partner still feels anxious – perhaps even more anxious
than he/she did during treatment. Without the demands of treatment,
your partner finally has time to absorb the reality and implications of
what they have been through. It is therefore not unusual for others
(sometimes partners and often family or friends) to be ready and able
to move forward more rapidly than the person who has had cancer.
This mismatch can then lead to your partner feeling misunderstood
and isolated in their experience. It is also not uncommon for patients
and partners to miss the regular contact with the treatment team and
the reassurance that everything is being done to keep the cancer
You and your partner may find that the people closest to you are
less available to you for support. They may assume that everything
is ‘over’ and ‘back to normal’ and may expect you both to be feeling
on top of things without understanding the on-going challenges you
may be facing. As well as getting less practical support, there may be
less emotional support, with advice such as “be positive”. Although
this is a well-meaning response, it may be out of sync with how you
and/or your partner are feeling and shuts off opportunities to express
feelings and work through natural fears and concerns.
For both you and your partner, increased anxiety – often related
to cancer reminders – will be a feature of the weeks and months
following the end of treatment. Cancer reminders can take any shape
but commonly include follow-up medical visits, the anniversary of an
important date (e.g., the date of diagnosis), new aches or physical
symptoms, learning of someone else’s diagnosis with cancer, or
media reports about cancer. You and your partner may respond to
these reminders in a range of ways – from mild discomfort, irritability,
or physical tension, to anxiety/distress, and sleeplessness.
At these times you may start to feel you are not coping or are moving
backwards. Be reassured, these are completely normal responses to
coming to terms with a very difficult life event.
Use this time of transition to look after yourself well and recover your
physical and mental stamina. Allow time and space for ‘reflection’
– times when you can let your thoughts and feelings come and go
without feeling like you have to do anything to change them. Now
may not be the best time to make any life-changing decisions; if
possible, wait until you both have had more time to adjust to the
changes brought by cancer. In the meantime, you may want to
plan for some short or medium-term goals, like taking a holiday, or
returning to activities you had stopped, now that cancer treatment
has finished.
In time, most people find they are less preoccupied with worrying
thoughts. In the meantime, remind yourself that it is a normal part of
moving forward to experience fear and uncertainty from time to time.
Some ideas to help you manage living with uncertainty include:
Remember, also, that there are many people who have had a similar
experience and understand how you are feeling. Your doctor, Cancer
Council Queensland’s website or the Cancer Council Helpline (see
next page) may also be able to help you find out more about sources
of information and support available to you.
It may be useful for you and your partner to work out a plan of action
together based on:
You won’t realise the distance you’ve walked until you take a
look around and realise how far you’ve been. Unknown
When you neglect or get side-tracked from your values, you can feel
stressed, frustrated or lost. Once you are clear about what matters
most to you, it is easier to identify your priorities and establish goals as
a couple that will enable you to include meaningful activities in your life
despite the obstacles that cancer might put in the way. For example,
you may identify that doing enjoyable things together is an important
value (i.e. gives your life meaning, helps you feel connected, helps
you cope with stress), and that cancer/treatment has reduced your
enjoyable time together. You are then able to work out if you can do
anything to change this, such as putting 10 minutes aside every day
for a cup of tea together no matter what else is happening.
Committing to action
Staying focused on your values strengthens your commitment to
the goals you set for yourself. To stay motivated, remind yourself
that your actions are in line with the values that maintain the quality
of your life. This can also help you stay on track when the going
gets tough (the right road is not always the easy one).
When you are working out your new goals, it is useful to consider
what practical, family, or other issues may interfere with them. If
you identify possible obstacles in advance, and work out ways of
overcoming them, you are more likely to be successful in reaching
your goals. The section on Solving Problems Together (page 29)
may provide some helpful strategies.
As your circumstances are likely to change over time, you will need
to be flexible about revising your plans as necessary. Again, your
values can be a guide to finding new ways to stay on track despite
any difficulties you may encounter along the way.
Before you tell your children about the cancer, it can be helpful for
you and your partner to work out together how you will deal with
this as parents and a family. This is likely to include what you want
your children to know, what treatment will involve, how you will try
to keep family routines as normal as possible, and what changes
can be expected. As a way to increase the support network for your
children, it may also be useful to tell other significant people in your
children’s lives what is happening and/or enlist their help. These
people may include extended family, people in the school community
such as teachers or other parents, sports coaches, neighbours,
and so on. However, it is advisable to ask these adults to manage
this information sensitively. It’s also important to ask each of your
children who they would like to have on their support team. Under
your leadership as parents, your family can continue working as a
team with your children feeling secure and involved.
Pick a time and place when you can easily get their attention and
have time to talk.
Use short, simple sentences to explain the basic facts. Find out
what they already know about cancer, don’t overload them, invite
questions and check for fears hidden behind the questions. It
can also be important to tell young children that the cancer is not
their fault.
Reassure them about their welfare and tell them about any
changes to their normal routines. Involve them in how you intend
to handle the situation, including who they may wish to tell (or
not to tell).
Let them know that it is ok for them to still have fun and to
engage with their normal activities – this can help children feel
safe, more optimistic and assists them to cope.
There may still be times when you feel you need professional advice
and this may be provided by a school counsellor, psychologist or
counsellor, social worker, or a member of your treatment team.
Fertility
Sadly, some treatments for cancer can lead to permanent
infertility or there may be uncertainty about the possibility
of having children after treatment. If you have not started or
completed your family, this realisation can come as a shock.
For some people, not being able to have children is devastating,
involving losses of future hopes and plans. Infertility can also
cause some people to feel differently about themselves as a
woman or man, with other physical changes (such as early
menopause, hormonal changes) adding to these feelings.
In the early days, when you are still dealing with the shock
of diagnosis and fears for your future, it can be hard to think
about issues such as fertility. However, if this is something that
is important to you, then it is essential to discuss it with your
doctors before cancer treatment starts. In some cases, there may
be options to try to preserve fertility using techniques to store
eggs, ovarian tissue, embryos, or sperm for future use. Even if
this turns out not to be possible, knowing that you have explored
the possibilities is likely to make a positive difference to how you
feel later.
You are likely to have many concerns, such as dealing with practical
issues and potential loss and grief, which are outside the scope of
this booklet. Details of further sources of information and support
that may help you with these issues are available through the Cancer
Council Helpline and website and the Palliative Care Helpline.
m Keep me company
m Take me on an outing
m Give me hugs
m ________________________________________________
________________________________________________
m ________________________________________________
________________________________________________
m ________________________________________________
________________________________________________
Slow breathing:
Take a long, slow breath in and then let the air out slowly and
gently…….. feel your whole body relax.
Take another long slow breath in, and allow the air to travel deep
into your lungs …….. filling from the base …...... feeling your
abdomen and lower ribs expanding. As you breathe out, listen to
the sound of your breath.
[If ending your relaxation at this point: take your own time… start
to become aware of your surroundings… ]
Put the names of your closest family members in the white circle
in the middle.
Put the names of people who are potential supports in the outer
blue circle: that is, people who have a relationship with your
family and could be willing to help out but have not yet made
an offer to help/provide support.
Think about how you could use the information on your map.
For example you may decide to:
Service
providers Community
Friends Family
Put the problems into order – list those that need immediate
attention first followed by those that can wait for now.
Brainstorm: Take your most urgent problem, and list all the
possible options for dealing with it. Make sure you include every
idea, no matter how silly it may seem, as these ideas can lead to
more flexible and creative thinking.
Take some time to relax, calm down and focus clearly on what the
real problem is, then work through the problem using the ABCD
steps below.
STEP NOTES
A. Attitude
Take an optimistic attitude Take a deep breath. Stop and think. There is
no immediate catastrophe – think of this as a
challenge. We can handle this problem.
Do I need to change Worry less about debt? Or, review our needs
my attitude? and make realistic plans.
B. Brainstorm
Write down ALL your ideas Find ways to reduce payments (talk to bank
and utility companies); tighten budget;
borrow money; do extra work; check
superannuation/long service/insurance(s);
sell house or downsize; sell other goods;
see financial counsellor
D. Decide
Decide on your best idea, put it in action, and rate the outcome – either:
You are satisfied with the outcome – congratulate and reward yourself
OR
You are not satisfied with the outcome – don’t give up…try again with your
second choice!
Example
Best idea: See a financial counsellor before we make any fixed decisions.
Outcome: We received advice about reducing mortgage payments, payment plans for
electricity/gas, and spreading regular bill payments over the year. So we can both worry
less, I can take better care of myself and, most importantly, we can spend time together.
Try to speak honestly about how you feel even if it is difficult. Most
partners say that they prefer to know things even if it makes them a little
upset. More problems are caused by hiding things than by dealing with
them directly.
Think about what you want to say and try to keep it simple and to the
point. This makes it less likely you will be misunderstood.
There are always positive things that you and your partner are doing. If you
can let your partner know what they have done that you like, they will be
less likely to switch off to what you are saying e.g., “I’m really glad that you
let me know what was troubling you”.
To let your partner know what you dislike or what you would like to see
change, state the negatives simply without blame or attack e.g. “I felt as
though I hadn’t done it well enough”.
When sharing how you feel or what you would like, use ‘I-statements’.
Using ‘I’ instead of ‘you’ is a useful skill, especially during conflict. For
example, saying “I feel hurt when you keep things to yourself” is a less
blaming way of expressing your feelings than “You make me so angry
when you don’t even trust me enough to tell me what’s wrong”. Describe
the situation, how you feel and what you would like. For example, “I’ll do
my best to help out but I need you to be more specific about what would
be most useful”.
Notice the feeling/s that you hear or see your partner trying to express.
Often feelings aren’t put into words but will be reflected in how your
partner says things or how they look.
Summarise in your own words what you think your partner has said. This
helps your partner to feel understood and gives him/her the opportunity to
correct you if you haven’t got it quite right.
Don’t judge what your partner says. Hear your partner out and put your
own reactions on hold until later. People who have known each other
for many years may feel as if some discussions (even if important) are
no longer worth having as they always seem to end in the same way.
Responding differently to usual ways of communicating can break old
patterns and helps to reach new ground.
Us
m Having a healthy lifestyle m Sharing retirement
Our Relationship
m Having a close and loving m Making time for fun together
relationship
m Being companions
m Maintaining our individuality
m Solving problems together
m Respecting each other
Cancer is challenging and may alter your lives in the short term and
possibly long term. Knowing what your values are helps you focus
on what gives your life meaning and what is most important to you,
despite the challenges you face. Once you are clear on the things
that matter most to you, you can find ways to bring them into your
daily life and adapt to the changes brought about by cancer.
www.cancerqld.org.au
CSSQ5041 11/2012