Reblogged
Senator Cory Booker pleads with Americans to stand up and use their voices to fight back
Reblogged
Trump basically declared disabled people ‘unfit to work’ as he put it by revoking the Equal Employment Opportunity Law of 1965. It means employers no longer have to legally give accommodations to disabled employees. This will render so many Americans jobless and barely anyone is talking about it because disabled people like me are treated as expendable.
Reblogged surviving-the-hiatus
USA people! Buy NOTHING Feb 28 2025. Not anything. 24 hours. No spending. Buy the day before or after but nothing. NOTHING. February 28 2025. Not gas. Not milk. Not something on a gaming app. Not a penny spent. (Only option in a crisis is local small mom and pop. Nothing. Else.) Promise me. Commit. 1 day. 1 day to scare the shit out of them that they don't get to follow the bullshit executive orders. They don't get to be cowards. If they do, it costs. It costs.
Then, if you can join me for Phase 2. March 7 2025 thtough March 14 2025? No Amazon. None. 1 week. No orders. Not a single item. Not one ebook. Nothing. 1 week. Just 1.
If you live outside the USA boycott US products on February 28 2025 and stand in solidarity with us and also join us for the week of no Amazon.
Are you with me?
Spread the word.
My meds are 5000 a month and I need VNS surgery every 4 years which is like 20,000. Meanwhile, our dumbass government is trying to cut medicaid, which is my saving grace right now. So let's make a difference.
Reblogged
There is a new Chrome extension that detects if a video you’re streaming has a strobe in it, will freeze the video and stick this warning up there until you approve it.
WHERE THE HELL HAS THIS BEEN ALL MY LIFE????
[image description: a screencap of the chrome web store, showing an extension called “seizsafe - epilepsy alert for youtube” and an example image of the extension, showing a blocked video with the text “warning: the following content may potentially trigger seizures for people with photosensitive epilepsy.” there is a toggle with an option reading: “don’t warn me again during this video. click here or hit spacebar to continue watching 👆”. end image description.]
chrome webstore link:
stillaliveiguess
reblog to help photosensitive folk feel safe!!
reblogging because i’m 14 years free of epilepsy
@mossyv4mp Congrats! 🎉🥳 that's super exciting. I'm lucky if I get one month seizure free.
Reblogged so-over-ableism
Anyway, able bodied people need to stop blaming people’s chronic pain on their diets.
Like no mom, my hips aren’t in excruciating pain because I ate a couple cookies last night.
Omg this. My mom has told me that my migraines will get better if I lose weight about a thousand times. Well I lost weight and it didn't help.
Reblogged so-over-ableism
"Brain damage" only sounds like a harsh and offensive way to describe brain injuries because people constantly use it as an insult. It's a totally neutral descriptor of what it is. I have brain damage. My brain is damaged. It's not ableist to call it that, it's ableist to call people you don't like brain damaged because you think it's an inherently bad thing to be.
(Yes abled bodied neurodivergents, that includes you)
So funny story. In 9th grade, my math teacher was on this long ass lecture, b*tching us out for one thing or another and finally he says, "do you all have brain damage?"
I simply said, "yes, some of us do." Well I got in trouble for talking back and sent to the office. My mom was called in. She listened to the whole thing and all she said was ," Susan has Epilepsy."
Instantly, my teacher felt terrible and started apologizing. Obviously I didn't get in trouble
Posted by surviving-the-hiatus
Do you have side effects of seizure feelings even when you aren't going to have a seizure cause I do, and it's scary because I don't know if it is going to happen or not at those times
Yeah. I get Auras and sometimes only auras. Auras are basically small seizures. I have a VNS, so usually I just swipe my VNS and it goes away.
My suggestion is to keep track of when these happen and what it feels like, and if it progresses into a full seizure. Then you can see if there's a pattern. From there, you can tell when you need to call for help during one or leave it be. But if it is scary, call a friend or family member
Posted by surviving-the-hiatus
Hello
I often hear that, for example, take the example of autism they have many disadvantages, but they may have advantages in terms of drawing science, they may be geniuses and so on
are there any strong ones? What are the sides of people with epilepsy in this regard?
are there any positive +?
I have epilepsy myself and I'm wondering
Positives to Epilepsy? I honestly can't think of anything. Its seizures, side effects of seizures and medications. The best thing is the community. the epilepsy community is amazing and I'm active in the Epilepsy Foundation and thats really awesome.
Reblogged haikyuupaladin
Shout out to epileptics who don’t drive
Shout out to epileptics who can’t eat certain foods
Shout out to epileptics who are autistic
Shout out to epileptics who have cognitive disabilities
Shout out to epileptics who have autoimmune disorders
Shout out to epileptics who have physical disabilities
Shout out to epileptics who have cerebral palsy
Reblogged haikyuupaladin
A “flash warning” in font to small to read is not a proper flash warning
A “flash warning” in the corner of the post where you cannot see it right away is not a proper flash warning
A “flash warning” that appears the same time as the flash is not a proper flash warning
A “flash warning” in a hard to read font is not a proper flash warning
A “flash warning” in the caption is not a proper flash warning
A “flash warning” in the comments is not a proper flash warning
—
A proper flash warning is
- in a big, easy to read font
- is up for enough time before the flash for someone to read
- is in the middle of the screen
Put proper flash warnings
Merely Okay flash warnings are up for enough time for someone to read AND react to them.
If there's a flash warning, it should last long enough for me to cross a room, grab a remote, and turn off/pause the media.
Good flash warnings are clear and present before you ever hit play.
If I have to squeeze my eyes shut and feel around for a way to turn off the media, you've failed as an artist and content creator
Posted by surviving-the-hiatus
Anonymous asked:
I (F/27) had a seizure in public the other day and it was one of the most embarrassing epilepsy moments I’ve had since I first started having seizures at 19. I’m very appreciative of concerned strangers that tried their best to help but having a fire truck, ambulance, and the cops all show up while random people film me on their phones was humiliating. I haven’t been able to stop obsessing about it and just can’t let it go. How other people dealt with this?
Oh I'm so sorry this happened to you. I guess the best advice I have is you can't control your seizures and you can't control other people's actions. But they had the best of intentions and were trying to help. What helps me I'd advocating for myself. I'm involved in my local Epilepsy Foundation and we work on informing people about Epilepsy and how to respond appropriately. That helps me manage my emotions with it. I suggest contacting your local Foundation, they are a wonderful resource. I can also help you find one near you.
Does anyone else have advice???