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@mothbrothel / mothbrothel.tumblr.com

IG: harrieeet

a poem for Pearl

i didnt have anyone, but you will never know how lonely life had been when you walked in how you were the happiest to see me someone had ever been and i kept wondering if i deserved that there is something so pure about the way that i love you and thats a lot to say when i feel so tainted i could thank you for your company on misty midday walks but nothing could capture the things you say…

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To do or not to do?

Pacing and Activity Decision Chart*

A. Will it cause so much pain or fatigue that I can't function for days?

If NO then :

B. Given current symptoms will I be able to complete the task?

(If you answer YES to question B go to D, if NO then go to C)

If YES then :

C. Can I make it manageable by:

Splitting the task into smaller sections?

OR

Using an adaptation or aid to make it easier?

OR

Asking for help with challenging parts of the activity?

(If you answer YES to C go straight to D)

D. Is there enough recovery time between now and when I next need to function?

If you answer YES/PROBABLY to D then LET'S DO

THIS THING!

If you answer NO to both question C and D then:

Best not. It's OK for an emergency, but not for routine tasks.

Disclaimer:

*A simplified version, The full version would fill a book. Process varies between individuals.

**Most activity can aggravate symptoms, so it's not about avoiding pain and fatigue, but trying to keep them manageable. Trial and error is required to find this level and it can change over time.

StickmanCommunications.co.uk (HMSA)

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