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I just want to say that for one, a lot has happened in regards to my health.
Last time you heard from me was when I was receiving a blood transfusion.
For one, I am alive :D
On another note I have intestinal failure and liver disease related to a thing called TPN. Which means it’ll be progressive and there’s absolutely nothing that we can do. I’ve also had quite a few procedures and surgeries and heading towards more surgeries.
I’ve had repeated bouts of sepsis now as well as other infections and things are just not looking good. I’m on central line no. 4 now and there are a lot of concerns from my doctors that we are going to run out of vascular access. Which is where I get most of my treatments from is from my central line. (I.e. TPN, home infusion therapy, in hospital infusion therapy, etc.)
I also have a thing called a Mass cell disorder. Which plays a good part of my digestive tract issues as well as airway problems and things like anaphlaxis. Sadly insurance isn’t wanting to cover medications for it.
Needless to say things are not looking good on my end. There’s the concern that I’m heading towards the need for organ transplant as well. Especially with the liver disease. But for now I’m putting this blog as well as my other role play blog on indefinite hiatus. If you so happen to want to keep contact and follow me on my journey with chronic Illness I post to my instagram at least weekly and I also have my personal blog that you can follow. (Instagram: @Clinicallychronically and Tumblr @Clinically-chronically )
Thank you all for the wonderful memories and take care.
Keep moving forward everyone, I love you!
