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@zebulontheplanet

Zeb | He/They | |Nonverbal due to Autism Catatonia| |Medium-High support needs| |Physically Disabled| |21| |Intellectually disabled| |Full-time AAC user| [Icon description: Picrew image of Zeb a Masculine presenting with black hair, brown eyes and sweater. Holding up the peace symbol with fingers. Background is green.] [Header Image: A photo of several branches of cherry blossoms]

Hello, my name is Zebulon or Zeb and this is my blog. My pronouns are He/They. More information about me is below!

  • I am physically disabled, as well as having several mental illnesses. I’m a full time forearm crutch user and ambulatory wheelchair user (ambulatory as can walk with assistance! Not as part time!)
  • I have Schizoaffective disorder bipolar type, Autism (Diagnosed at 7), ADHD inattentive type, Generalized anxiety disorder, Borderline ID, learning disabilities, and HSD.
  • I’m queer and trans. I’m demiboy non-binary, queer, demiromantic, and polyamorous.
  • I’m Mute/Nonverbal and full time AAC user. My communication is a bit odd at times, and can seem small.
  • I have borderline ID!! My brain works differently then yours!

My specials interests are not the same as yours. I do not know a lot of information about them due to memory loss/issues. Please don’t ask me to info dump unless you have a specific question about my special interests.

My special interests are; Service dogs, Autism, The Green Arrow, Greys Anatomy, and more.

Follow my adult blog. MINORS DNI with adult blog @zebulontheadult

I am proudly latino.

  • I use support needs and don’t reclaim some slurs.

#Zebrambles: tag of me rambling or just talking about unrelated topics

#Zebplanet: tag for any post that gets over a thousand notes.

Updated as of 4/01/2025

AAC users like me, who are able to convey their thoughts and feelings, arent the majority. I think people have to realize that.

The majority and the most marginalized of people who use AAC are those who cant always convey their thoughts. Who use AAC infrequently. Who prefer pointing, spelling on a letterboard, who use PECs. That is the people that many people don’t see because they often don’t have access to the internet, and cant use the internet like we can. And their caregivers aren’t sharing their stories because they have other things to worry about.

It’s frustrating when people don’t realize that those people ARE around, and they’re the most marginalized. We need to talk about them more. We need to make their voices known, and heard. No matter if they can efficiently communicate or not. Every part of them deserves to be seen while respecting their own privacy and autonomy.

one of worst part of be nonverbal n not really have reliable way communicate by words (AAC, etc)—but happen even when do have them—be not able defend yourself when people misunderstand you when people say wrong thing about you when people talk bad abt u to your face you can’t explain self can’t curse back can’t defend self can’t tell your truth you just force be there sit there in your anger your upset your sad your mad your unfairness because if you let those show you know it just going be more evidence of that wrong thing they say that only you know is wrong n all other people only get see evidence of how it even more true like you not win it always lose

when people call you bad temper rude angry all the time bad behavior explosive, n only you know it because first time people do thing to wrong or annoy you you can’t say anything do anything abt it you can’t tell them it annoyed you. n second time same thing. third time same thing. five thousandth time same thing. all day every day multiple times a day same thing. n one day you bound to explode n you think in your head how unfair it is how if you do same thing to verbal speaking people if you kick them in corner enough they would also one day get impatient n explode except everyone other verbal speaking people would sympathize with them because they able relate to them see them as person n that verbal speaking person able defend self explain why they explode why stuff annoying. n difference between you n them be you nonverbal thus less relatable be totally different creature n you cant defend yourself u cant get your perspective heard

so when you explode you can’t get your perspective heard people assume you have no perspective for them to hear because they not sympathize with you they not see self in you they not think through your perspective.

n so when you explode out of desperation out of control they say to other speaking verbal people observing n not helping you, “see, what did say? it has terrible temper rude it has anger issues it has behavioral issues n which mean we need fo what we doing to it more to help them or else they never going stop have bad temper anger behavioral issues.”

but in same vein almost like they on purpose make it more difficult for you like they take joy in your suffering they say “geez just communicate normally like regular person no need with all this attitude” n you know by communicate normally they mean communicate by words in calm n comfortable (to them as receiver, not you) easy to accept (for them) way. when by very definition you cant communicate by mouth speech n you not have great access to alternative method of communicate n even if you do you at such huge advantage bc it so much more ignorable it take so much longer time longer concentration more effort n you know they will give you none of that bc that not convenient for them it not help them be morally superior it not help them win their argument. it be as cruel as lock cat in tiny cage n poke it hit it stick it scare it as you ignore its body language n terrified meows for who knows how long n then get mad at it for attacking you out of desperation n label it as have behavioral issues n should be put down.

they hold you to impossible standard n idk what more insulting, for them to not know it impossible standard to you because you visibly obviously nonverbal a core part of who you are n to be able to just forget abt it when it convenient to them, just how neglectful are they like it take more effort to forget abt it than it be to remember it. or is it more insulting that they on purpose hold you to impossible standard they know be impossible for you, how sadistically cruel that is.

they give you none of the access none of the privilege none of the understanding none of the support none of the sympathy they give to other speaking verbal people but they expect every single one of the ability every single one of the expectation of the demand of the convenience of the ease they receive from other speaking verbal people n if you fail give them those it your fault.

Starting the “30 days of autistic acceptance” trend going around! This is a post from yesterday that I didn’t post.

April 2nd, Dependence: How independent are you? Are you able to live alone? Have a caretaker? Live with a relative? Is there anything you need help with in your daily life? If you live alone, does being autistic make anything about it more difficult? Do you wish you lived with someone?

I don’t live alone. I currently go to a school that’s set up a lot like assisted living, where I have help.

Once I graduate, I will go to live with my full-time caregiver! I’m unable to be fully independent, and need daily care. Due to my physical disabilities, and autism, it makes it really hard to live alone and do stuff alone.

I cannot cook independently, bathe myself consistently independently, sometimes feed myself, access society, etc. I need help with several BADLs and almost all IADLs. It’s very important that I get the help I need so I don’t die. My verbal communication is also nonexistent due to me being nonverbal, making it very important that I have people with me nearly all the time to help communicate with others.

Before it was planned to be with my full-time caregiver, I was planning to go into an assisted living facility due to my needs being too much for my family. Although they were very against me going into an assisted living facility. I need daily care, so it wasn’t really an option. My family wasn’t at all able to fully care for me, and it lead to a lot of neglect, strained relationships, and resentment on their part.

I’m completely unable to be independent. It’s so important that I have access to the care that I need. I need lots of care. Not as much as my HSN friends, but still a lot. This means that I’m completely unable too. I will hopefully, eventually, get paid caregivers on top of my one caregiver. However, we’re still talking about that.

I think a lot of people don’t realize just the severity and amount of support I need.

I really don’t understand what goes through my carers’ heads sometimes.

Like why have I had to explain to three separate people that it isn’t appropriate to open the door to a public toilet while I’m sat on the loo with my pants round my ankles? I don’t think any of them would be okay with someone exposing them to the whole world like that.

But tell me again how people with carers are privileged when the people we rely on to stay alive and meet our basic needs don’t even remember that we’re real people with feelings

Screaming at everyone this upcoming autism awareness month that nonspeaking/nonverbal people who are autistic are still autistic. No matter if they’re nonverbal/nonspeaking or not.

(Nonverbal as in cant speak at all, all the time!!)

I always get “that doesn’t happen” and in the same breath I get people asking what makes a nonverbal person nonverbal and that it’s “always caused by other issues” instead of it just them being autistic and autism does in fact sometimes cause you to just be nonverbal.

I don’t know. I don’t think people realize the reality of being nonverbal. You WILL get people who say “that isn’t autism”. Always. For not even just nonverbal things, but being higher support needs even. Or having “stereotypical” autistic traits.

Violent meltdowns? Cant possibly be autism. Needing help bathing? Brushing your teeth? Medication? Phone calls? Not being able to mask? All not autism. (This is sarcasm)

I think people need to realize just the LACK of awareness towards autism that isn’t just white low support needs, high masking autism.

Using a wheelchair is exhausting sometimes. Like I KNOW it’s better than using my forearm crutches and will be better for my legs overall because I can’t walk well with crutches without doubling over in pain.

But still! It’s just exhausting too. Like the fact I have to roll all the way down to my room, then back to my classes 4-5 times a day SUCKS! It doesn’t help that my room is on the other side of the school either.

(And yes, I cannot just use my crutches. It’ll cause me severe pain and I can’t do it right now. I can barely walk around my room even with my crutches. I don’t need advice or “just use your forearm crutches”).

when someone autistic can’t access autistic community in “traditional way” - like can’t communicate by word independently n need caregiver assist, or can’t communicate by word at all, or can’t be online or go in person event by self need caregiver be with at all times - big part of autistic community’s way of “accommodating” them be kick them out not let them in

do you care about severely disabled people who are disabled due to mental illness, intellectual disability, and developmental disability. do you care about people with low adaptive functioning? do you care about disabled people who are visibly disabled without any aids, for the way they talk, walk, act? do you care about disabled people who need 24h care? about disabled people who need almost anything to be explained to them simply? about disabled people who can't and might never understand things you take for granted? do you care about disabled people who are missing from society - who are locked up at home with family or away in institutions? do any of you actually give a shit about pw mental health conditions and ID/DD and include them in your activism?

Anonymous asked:

i'm the one who asked about recipes a little bit ago, out of curiosity what are your favorite foods?

Hello! This is a good question! With foods, I’m sensory seeking. I love foods with unique and bold flavors.

Some of my favorite foods are mostly Korean foods. Things like kimchi, kimchi-jjigae, kimchi fried rice, etc.

I like creating authentic and good foods. I like spice, and I like bold flavors. I also really enjoy seafood, but not raw seafood as I don’t like the texture.

But yeah! Most of the foods I like require a lot of prep and work. Which I don’t mind, I just have to get help. I love cooking though! Just need lots of help.

I also grew up eating a lot of soul-food. Because my mom grew up thinking her mom was black, and my grandma was raised as a black woman. So lots of soul-foods and different things like that.

Hope this answers your question!

I’ve been in debilitating pain lately. I don’t talk a lot about my chronic pain online here. But I think it’s worthy of talking about.

People don’t realize just the effects of chronic pain. What it does to you, and how it affects you. Yes, I’m in pain ALWAYS. And yes, sometimes it’s worse than others. But just because my pain is worse one day, doesn’t mean my pain is gone the next. I want people to realize the extent and life with chronic pain that’s debilitating.

I use my wheelchair everyday now, and most of the time, all day, everyday. My laundry is STACKED cause I haven’t been able to do it. Mountains of clothes in my room. I don’t shower often cause it causes me even more pain and is exhausting, so I have gotten sores. From using my wheelchair so much, I’ve also started to develop mild pressure sores. It sucks!

I’m out of my pain medication currently, just took my last dose, and I’m still suffering. Every day of my life, I’m suffering. And now, more than ever. My pain has continued yk get worse, with no end in sight, and it’s sad. It’s so sad.

I hate being in pain, and I wish more people talked about debilitating pain that’s makes you stuck in bed all day.

Screaming at everyone this upcoming autism awareness month that nonspeaking/nonverbal people who are autistic are still autistic. No matter if they’re nonverbal/nonspeaking or not.

(Nonverbal as in cant speak at all, all the time!!)

Who is saying this? I've been in this community since I was 12 and never saw this once

You’d be surprised. I get a lot of “but you’re intellectually disabled?” Or “it isn’t autism, it’s intellectual disability.” “It’s this…” “its that.” You’d be surprised what people say online, and In real life. Especially in real life.

Intersexuality / Intersex variance

The state of being intersex

Intersexism

bigotry against intersex people

Helpful clarification, I keep seeing people use the word intersexism to refer to being intersex.

I feel like "know your audience" is a writing concept that people aren't taught enough about in school. Its usually reduced down to like, "use simple words when writing children's books" but it really means a lot more than that.

Its also about knowing that different words have different meanings to different audiences. If I say "pedestrians" in a wheelchair user space, people are going to understand that I mean people who walk. If I say it outside a wheelchair user space, people will assume I mean "anyone not in a car."

There's also layers of understanding that audiences have. When I talk about "obligate wheelchair users" in a disability space, it's because nearly everyone knows that ambulatory wheelchair use is a thing and that ambulatory doesn't always mean someone can walk a useful amount. Saying "obligate" is a short way to say I'm including everyone who can't walk a useful amount and HAS to use a wheelchair along with nonambulatory wheelchair users, while leaving out people who are part time or occasional wheelchair users. If I used it in an able bodied space, I'd first have to establish ambulatory wheelchair use and how it's a spectrum, and then we'd be derailed.

There's more to knowing your audience than that, but it's not really relevant to the current arguments around the use of the word privilege in a disability post geared towards educating leftists. Also, another part of knowing your audience is knowing when a bunch of exhausted cripples are going to start going "woah brother, I hope you don't think I'm going to read all THAT." and I'm already past that point. 😬 [cringe emoji]

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