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The idea of good death has continued to demonstrate vast changes and patterns from its predecessors through time. The tendency to be aware of death and anticipate related circumstances is also important for the self and the others. Also, the celebration of death and practices involved also play an important role in acknowledging the life and untimely loss of the deceased. Further, concerns about assisted suicide and commodification of body organs are growing. Although funeral rituals have been criticized over time, the funeral industry is also rising through the economic ladder. This paper will argue the issues identified above.
University of Helsinki, 2021
Dissertations, however, remain few, and ethnographic studies are even scarcer. 5 Scholar of religion Terhi Utriainen's (1999) dissertation Läsnä, riisuttu, puhdas is one rare exception; her study profited from ethnography among the care staff at a hospice home and she wrote on the role of women as caregivers for the dying from an embodied perspective. Sociologist Anssi Peräkylä (1990) studied ethnographically relationships between staff members and dying patients in hospital surroundings, while sociologist Riikka Lämsä (2013) has examined the hospital ward and questions of anonymity from a material perspective in her dissertation Potilaskertomus. Lämsä's notions on how institutional practices construct the experiences of patienthood proved to be especially useful in my analysis of the affectual care environment. My own focus on death and dying attends to dying persons, which here are regarded as "patients," since they are all in a professional medical care relationship. I am interested in how patients experience their situation of being terminally ill, how they feel about their trajectory of illness and their care, and how they think of death. This differentiates my study from many in the field of death studies. Especially in Finland, hospice and palliative care have previously been mostly studied from the perspective of care staff, on one hand, or from that of the bereaved, on the other. Although my understanding of subject is relational (i.e., subjectivity 6 is seen as generated from and realizing itself in dynamic embodied relations with the environment), I wanted to limit my scope here by concentrating on the patient. In my study, the surrounding people-whether they are medical personnel, family members, or other significant people in the patients' life-become visible only as part of the patients' experiential lifeworld. The phenomenological notion of lifeworld (Lebenswelt, introduced originally by German philosopher Edmund Husserl in 1936) is used throughout the work as a way to accentuate the subjective experience 7 of the world and everyday life, which is at the center of my scholarly interest. The term "lifeworld," which is commonly used in phenomenological anthropology, creates the general theoretical frame for my study. It is akin to concepts such as lived body (le corps vécu), as contrasted with the body-object, originally introduced by French philosopher Maurice Merleau-Ponty in 1945. Later on, the phenomenological way of emphasizing lived experience became apparent in such concepts as lived religion (Orsi 1985) or lived eschatology (Venhorst 2012). 5 Media anthropologist Anna Haverinen (2014) wrote her dissertation on death rituals and grief on the internet, whereas Mari Pulkkinen's (2016) dissertation in the study of religion explores the experiences of grief as described by people in their written narratives. Likewise in the field of the study of religion, Salome Tuomaala (2011) focused on women's agency in abortion and Leila Jylhänkangas (2013) wrote about euthanasia debates in Finland. 6 The Oxford Companion to Philosophy defines subjectivity as "pertaining to the subject and his or her particular perspective, feelings, beliefs, and desires" (Solomon 2005). I prefer the more extensive definition by social scientists Ellis and Flaherty (1992: 1), according to whom subjectivity is "human lived experience and the physical, political, and historical context of that experience." 7 I follow pragmatist John Dewey's approach to the concept of experience, according to which experiences are understood to occur when aspects of the world and the self come together in a manner that evokes emotions, ideas, and conscious intent (Dewey [1934] 2005: 36). More on the notion of experience can be found in Chapter 2. ~ 7 ~ International studies Even internationally, ethnographic accounts on Western death and dying have been less common, especially within the realm of anthropology (Goodwin-Hawkins and Dawson 2018). In his recent article in Annual Review of Anthropology, anthropologist Matthew Engelke (2019) writes on contemporary trends within the anthropology of death, and even though he touches on some of the same themes which are central to my study (e.g., materiality and medicine), most of the actual research he discusses continues to be about the corpse, commemoration, and societal issues around the dead. The article does not mention any studies on actual dying processes, especially from the perspective of the dying themselves. Some exceptions do exist, however. Of the international death studies literature, the most relevant works in regard to mine are two ethnographies on hospice from the UK (see also Kaufman 2005). 8 The first one, Jennifer L. Hockey's Experiences of Death: An Anthropological Account (1990), is a seminal anthropological study on hospice. Hockey investigates death and dying in two institutional settings-a residential care home for elderly people and a hospice-while also commenting briefly on a third setting, a bereavement support organization. My approach to the ethnographic material follows that of Hockey; she focuses on the cultural and social framing of human experience, and especially on the role of ritual and metaphor used in order to manage death in contemporary society (Hockey 1990: 81-89). Hockey did her ethnography in the 1980s, and both the UK and Finland have changed significantly since then in regard to elder care and palliative care. However, Hockey's theoretical insights continue to be valuable, especially the ones about the position of hospice itself as a ritual space and time, viewed especially in terms of liminality (Hockey 1990: 156-157). The major difference between our studies is that, unlike Hockey, I am particularly drawn to the patients' own endeavors to seek ways to handle their situation, whereas Hockey looks at hospice more from a systemic point of view, analyzing how various professional actors affect the construction of death. I continue Hockey's interpretation on hospice and other institutional care places as ritual locations, but add the individual ritual activities that patients practice. Another study that has special relevance for mine is Julia Lawton's The Dying Process: Patients' Experiences of Palliative Care (2000). While doing extended ethnography at both a day hospice and a hospice ward, Lawton's theoretical questions revolved around the ideas of self, body, and personhood, and how they were constituted in contemporary Britain. Due to Lawton's personal and academic inexperience in relation to death (Lawton 2000: vi-viii), the corporeality and bodily aspects of dying shocked her once she started her ethnography. Subsequently, a large portion of her study reflects on and investigates the meaning of bodily 8 The renowned North American medical anthropologist Sharon R. Kaufman wrote an influential account on hospital death in the United States: …And a Time to Die: How American Hospitals Shape the End of Life (Kaufman 2005). Many of Kaufman's notions (such as those relating to how death might be shaped not just by medicine but also by bureaucracy and technology) are relevant to my research, at least to a certain extent, but since her study focuses specifically on hospital death in the US context, it does not directly resonate with mine, which is about the patient's subjective experience of the end of life. ~ 8 ~ autonomy for personhood. One of Lawton's main conclusions was that, due to changes in admission policies (which reflected broader trends in care for terminally ill people), hospices have become "enclaves in which a particular type of bodily deterioration and decay is set apart from mainstream society" (Lawton 2000: 124). "In doing so," Lawton argues, "hospices and other similar institutions enable certain ideas about 'living', personhood and the physically bounded body to be symbolically enforced and maintained" (Lawton 2000: 124). This is an interesting argument, which my study comments on only indirectly. Lawton's remarks are noteworthy, because while healthcare policies are developed and realized nationally, they are framed by universal medical advancements and also by international recommendations in regard to palliative care, such as those presented by the WHO (2016). Furthermore, due to similar demographic shifts and advances in various diseases, as well as economic challenges, healthcare practices and policies exhibit global trends (Yeganeh 2019), and palliative care and care for the dying are no exception (Etkind et al. 2017; Kaasa et al. 2018: e589). Hockey's and Lawton's works have inspired successive ethnographies, for instance, in regard to dying in Germany (Eschenbruch 2007; Menzfeld 2017). Lawton's embodied perspective and her concept of an "unbounded body" 9 (Lawton 1998, 2000) have been well appreciated and developed further, both in regard to dying patients (e.g., Probst et al. 2013; Håkanson and Öhlén 2014) and in regard to health and illness in general (e.g., Draper 2003; Howarth 2013). The issues of the care place and place of dying have also gained attention from several ethnographers (Morris & Thomas [2007] 2016; Broom and Cavenagh 2011). My study can be seen as a successor in this line, but bringing forth a new perspective from a country which is Western by its economic and political profile yet unique in terms of its historic and cultural position between the East and the West (see Butters 2017). This study contributes and brings variety to the contemporary academic discussion on death and dying in Western cultures, since until now the majority of studies have been produced either in Anglo-American countries or in continental European countries like the Netherlands. A significant majority of these ethnographies (including those of Hockey and Lawton) are about the experiences of palliative care rather than the experiences of the end of life or dying per se (e.g., McNamara 2004; Moore et al. 2013). Sociologist and renowned...
Journal for the Scientific Study of Religion, 1978
have a unique authority and competence in the interpretation of the human encounter with death. Theirs is an extraordinary range of experience, in clinical research with psychedelic substances, in cross-cultural and medical anthropology, and in the analysis of Oriental and archaic literatures. Their pioneering work with psychedelics administered to individuals dying of cancer opened domains of experience that proved to be nearly identical to those already mapped in the "Books of the Dead," those mystical visionary accounts of the posthumous journeys of the soul. The Grof/Halifax book and these ancient resources both show the imminent experience of death as a continuation of what had been the hidden aspect of the experience of life.
Shofar: An Interdisciplinary Journal of Jewish Studies, 2021
In an interview published in the New York Times in March 2020, titled "What Judaism Teaches Us about the Fear of Death," philosopher George Yancy describes the ways traditional Judaism generally focuses more on life than on death. Alternatively, he explains, it could sometimes be said to focus more on death than on life, depending on what texts, traditions, and interpretations one examines. Using the Akedah, or the story of the binding of Isaac, as an example, he states, "Different Jewish interpretations of [the story]. .. reflect this range between an emphasis on life, on the one hand, and the spiritual possibilities presented by death on the other hand." 1 When we titled this special issue of Shofar "What's Jewish about Death?," it was with this very ambivalence-what we see as a central and productive tension running through Jewish tradition and culture-in mind. This collection is made up of a series of creative and critical responses to our question, confirmation of how an ironically categorical inquiry can liberate if we remain open to where it may take us. There is, of course, nothing particularly Jewish about death, that ultimate universalizing force. But today, several years following the 2018 Tree of Life shooting in Pittsburgh, and in the midst of the 2020 swelling of support for Black Lives Matter, a worldwide activist movement driven by grief, alongside the devastating and still in-progress global Coronavirus pandemic, the puzzles of what Jewishness and Judaism, in their many configurations and iterations, can teach us about death, and what attending closely to death, as well as its close companions, mourning and grief, can teach us about Jewishness and Judaism, have particular urgency. As numerous historians and scholars recognize, it was in times of great upheaval, including around the Crusades and the Black Death, and its attendant massacres, that various now widely recognized Jewish customs and rituals surrounding death, mourning, and memorialization were crystallized. 2 This contemporary moment, then, seems like the right time to rethink what death-and its economic, material, social, ideological, and emotional contexts and circumstances-can mean for Jews and the world around us.
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