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Allegedly Human

@allegedly-human / allegedly-human.tumblr.com

Pronouns: go on guess. I hate bigots of all kinds, TERF included obviously. 18+ both in the blog's content and in its ownership. Send weird stuff in my ask box I dare you. I post under #allegedly mine, if you want to suffer.

I’m going to be a bitch for a second, but when I’m conversing with someone newly diagnosed with MCAS/POTS post covid and they complain about “the long wait” to get diagnosed and that “long wait” is 3-4 months my entire brain blue screens.

Like on the one hand, yes those 3-4 months must have been so, so scary and I am so unbelievably glad we’re in a place where doctors know enough to reconize it now. Like truly, I am so sincere I am so happy for them.

But I’m also just like... 30 years, man.

I spent 30 years being told from the age of eight I was manifesting my allergic reactions through anxiety by health care professionals.

Fuck, five years ago when I was starving to death from how severe my MCAS had gotten an allergist told me it was anxiety.

And you got diagnosed in three months.

MONTHS

MONTHS

AND YOU’RE COMPLAINING

I’m not mad at them. I’m not. I’m just sad for myself.

But also, hey, yeah. If you come into an MCAS forum and wonder why a bunch of the old timers get upset when you complain it took months for a doctor to listen to you, this is why.

It's not that you deserved to wait longer. It's that we didn’t either and and sometimes even good changes can unearth a world of hurt.

The average wait time for a POTS/dysautonomia diagnosis pre-covid was a decade.

Now it's still a decade but that's because the wait list to see a specialist is out the fucking stratosphere because everyone got covid and suddenly that ‘anxious female’ disorder turns out to be very fucking real.

Vaccinate if you are able. Wear a mask. Wash your hands and cough into your elbow. This shit isn’t over.

There are a handful of people in my inbox currently reaching out super excited to have someone to talk to about their weird shit and wanting to complain about their treatment by doctors, which is all fine and dandy, but unfortunately they are also inadvertently triggering the shit out of me because of how they are phrasing things, so just to reiterate everything above but also to add:

I am very sorry if longcovid has left you with complex health needs. But I am going to need you to take a moment and stop talking about these things as though they were unknown phenomenons caused exclusively by Covid, when the only reason you are able to have any sort of treatment is the activism and perseverance of the people before you.

Just, please be mindful of how you are phrasing things. There is a community here already waiting full of resources and support. You don’t need to strip it for parts and pretend it’s something new just because it’s happening to you.

the reason there is treatment for long covid is because of the countless number of patients over the past two decades who used their own bodies to test out treatments with the desperate hope that some day, other patients would have it better. better than five, ten, twenty, thirty years or more of desperately fighting for accurate diagnosis and effective treatment. those are years of actively going to doctors and having test after test.

this effort has been across autonomic conditions, collagen disorders, bleeding disorders, thyroid disorders, hormone disorders, autoimmune disorders, ME/CFS, and other types of conditions so often triggered by infections such as covid-19. these types of conditions have always existed, and most research for many of these conditions is from only the ten years prior to covid-19, largely by patient-led and patient-focused groups such as dysautonomia international.

it worked. it was not an accident. it was not easy. it was a coordinated effort of awareness, experimentation, research, and education around the world. it has been physically and mentally excruciating and a lot of patients suffered through failed treatments and died waiting for the types of treatment that are now considered common knowledge.

do not fucking erase us.

For your future information, here are medical innovations younger than both the basics of HRT for trans ppl & the first gender-reassignment/gender-confirmation surgery. I put together this incomplete list earlier today bc I was bored:

  • all organ transplants
  • most modern vaccines, including the polio vaccine
  • the gluten-free diet as a treatment for celiac disease
  • synthetic insulin
  • oral contraceptives
  • MRIs
  • the concept of a "blood bank"
  • pacemakers
  • hydrocortisone
  • ibuprofen
  • diazepam
  • artificial hearts
  • sumatriptan
  • naproxen (Aleve)
  • tramodol
  • dialysis
  • ECT
  • ondansetron (Zofran)
  • chemotherapy
  • IVF
  • CPR
  • CT scans
  • transdermal patches
  • liposuction
  • intravascular stents
  • penicillin

In case you run into someone talking about how 'experimental' HRT is.

Uhm ☝️ what did celiacs do before. Just suffer?

We died.

The same as diabetics! We died!

There are so many things newer and more experimental than HRT. And mostly the answer to “what happened before” is simply “they fucking died”

We died, and it really fucking hurt the whole time we were dying.

When insulin was first developed, the first kids they gave it to were in the end stages of diabetic failure. People described it as like watching these children rise from the dead. Their blood was literally burning them. They were so weak they could barely raise their heads. Then, one shot of insulin, and they sat up, and their color came back.

Before the medical treatment, we simply died.

The Diamond Room of Tehran’s Marble Palace is a stunning showcase of Ayineh Kari, the Persian art of mirror mosaic. Thousands of meticulously cut silver mirrors cover the walls and ceiling, arranged in intricate geometric patterns that reflect and refract light, creating a dazzling, almost ethereal atmosphere.

This technique, perfected during the Safavid and Qajar eras, was more than just decorative—it symbolized divine illumination and was designed to make interiors feel vast and celestial. Originally built as a royal residence, the palace now serves as an art museum, preserving this breathtaking craftsmanship. Each mirrored fragment acts like a tiny diamond, turning the space into a luminous masterpiece of Persian architecture.

Photo by: Ali Alirezaei

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