I’m going to be a bitch for a second, but when I’m conversing with someone newly diagnosed with MCAS/POTS post covid and they complain about “the long wait” to get diagnosed and that “long wait” is 3-4 months my entire brain blue screens.
Like on the one hand, yes those 3-4 months must have been so, so scary and I am so unbelievably glad we’re in a place where doctors know enough to reconize it now. Like truly, I am so sincere I am so happy for them.
But I’m also just like... 30 years, man.
I spent 30 years being told from the age of eight I was manifesting my allergic reactions through anxiety by health care professionals.
Fuck, five years ago when I was starving to death from how severe my MCAS had gotten an allergist told me it was anxiety.
And you got diagnosed in three months.
MONTHS
I’m not mad at them. I’m not. I’m just sad for myself.
But also, hey, yeah. If you come into an MCAS forum and wonder why a bunch of the old timers get upset when you complain it took months for a doctor to listen to you, this is why.
It's not that you deserved to wait longer. It's that we didn’t either and and sometimes even good changes can unearth a world of hurt.