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Chronically Chill

@wearingmystripes / wearingmystripes.tumblr.com

member of the #spooniesquad 🥄
going through life with hEDS, POTS, GP,
NCS, MALS (7/28/21) and more!

Being too disabled to work is not a “rich person thing.” People who are not allowed to have more than 2k in their bank accounts are not rich lazy upper class people lol. And if you try to argue that “well if you aren’t rich how do you expect to survive without working” I’d like to remind you that lots of disabled people who can’t work don’t actually survive.

mental illness hasn’t been destigmatised but commercialised

Sooo true.

You can’t have serious conversations about your mental illness and you can’t even mention having one of the more stigmatized mental illnesses.

But you can endure a long line of ads recommending medications, self-care products, gym memberships, self-help books, online seminars, crystals, plants, sunlight lamps and other overpriced shit that’s supposed to be good for your mental health but is mainly just there to take advantage of people who are at a vulnerable place in life. Disgusting.

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antifamoshe

Marta Russel called this “handicapitlaism” and identified it as one of the traps of bourgeoisie/free market disability rights activism 

if you can't have kids for medical reasons, i love you. a lot of people emphasize the joy of children, talk about how they changed their life, etc., and that's just not possible for some of us.

so. shoutout to:

• people who can "technically" have children but can't risk the financial stress due to being already disabled/chronically ill

• people who can't get off their medication long enough to conceive

• people with uteruses who have endometriosis or PCOS

• people who can get pregnant, but have a connective tissue disorder which makes them unable to handle the progesterone during pregnancy since it causes flares (hi, it's me)

• intersex conditions that makes you infertile

• anyone who has a terminal illness

• people who've had medically necessary surgeries which caused infertility

• people with genetic conditions they don't want to pass on (me again)

• those who require IVF that's just not in the cards for whatever reason

• and many, many others

• feel free to add on

you're not broken, you have a reason for being like this. i know it's hard. i love you. it's going to be ok. 💙

A doctor saying "Good news! Your labs look great" is like if you were watching a cop show and the chief walked in like "Great news, everybody! The best news! The killer is still at large and we have no leads."

One time I was like pretty sure I had finally figured out that I had Symptoms Disease due to all the Symptoms and my doctor did some tests and she was like. Good news! You don't have Symptoms Disease!

And I started crying and she was like, is there something in your eye? And I said no I'm crying? And she was like, oh? Why? And I said, because we can't fix my Symptoms because we still don't know what's wrong with me? And she was like. Nothing's wrong with you! :)

Actually something similar had happened to me multiple times (and in some of those cases I did in fact get diagnosed with the relevant Symptoms Disease years later) but the one where the doctor asked if I had something in my eye because she couldn't comprehend that not having answers would be upsetting, that was definitely one of the most situations ever.

god this is so fucking relatable

not enough people understand that disability benefits are basically what it would look like if you turned "if you're too sick for school you're too sick for video games" into an official public policy

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