Dementia care 2017

BMJ, 2008

Editorials represent the opinions of the authors and not necessarily those of the BMJ or BMA For the full versions of these articles see bmj.com BMJ | 2 feBruary 2008 | VoluMe 336 225 1 Xie J, Brayne C, Matthews FE. Survival times in people with dementia: analysis from population based cohort study with 14 year follow-up. BMJ 2008

Geriatric Nursing, 2014

2010

Additional area specific modules should be developed for further learning, possibly leading to accreditation. A structure to develop and facilitate local peer support to enable the continued development of person-centred dementia care. Management support and involvement in the programme is essential to allow access to education and facilitate the implementation of change.

Dementia is one of the major causes of dependency and disability among older people worldwide and the seventh leading cause of death among all diseases. According to a World Health Organization report on dementia, globally, around 55 million people have dementia and around 10 million new cases are reported every year. 1 In this paper, I will first explain the forms of dementia and the current state of dementia care, including the types of care available, the gaps and barriers in accessing quality care, and the challenges faced by both people with dementia and their caregivers. Then I will discuss some promising practices and innovations that aim to improve dementia care such as personcentered care, dementia-friendly communities, technology-based interventions, caregiver support programs, and research initiatives. Moreover, I will present some recommendations and action steps for policymakers, health professionals, researchers, and community stakeholders to address the challenges and seize opportunities for advancing dementia care.

The Journal of Practice Teaching and Learning, 2014

As the prevalence of dementia continues to rise, it is imperative to address the unmet needs of individuals living with this condition. Meeting the unique needs of person with dementia requires a comprehensive understanding of the challenges they face, including cognitive decline, behavioral changes, and limitations in their everyday functioning. This paper reviews the current literature on the unmet needs of individuals with dementia and explores potential strategies to address these needs, including person-centered care, tailored interventions, caregiver support, and community engagement. By attending to the unmet needs of persons with dementia, healthcare professionals and policymakers can enhance quality of life and promote positive outcomes for both individuals and their caregivers. References: 1. Alzheimer's Association. (2021). 2021 Alzheimer's Disease Facts and Figures. Available at: https://www.alz.org/media/Documents/alzheimers-facts-and-figures.pdf 2. Brooker, D., & Latham, I. (2016). Person-centered dementia care: Making services better with the VIPS framework. Jessica Kingsley Publishers. 3. Hynes, S. M., Rousseau, N., & McGuire, B. E. (2018). Current knowledge, attitudes and practices of Irish clinicians in relation to the assessment of pain in dementia: protocol of a nationwide survey. BMJ open, 8(7), e020628. 4. Kahn, M., Ettema, T. P., & Savaskan, E. (2018). Cognitive decline in Alzheimer's disease: Impact on caregiver outcomes. Geriatrics, 3(4), 81. 5. Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., & Moniz-Cook, E. (2012). The needs of people with dementia in care homes: the perspectives of users, staff and family caregivers. International Psychogeriatrics, 24(7), 1172-1189. 6. Prince, M., Wimo, A., Guerchet, M., Ali, G. C., Wu, Y. T., & Prina, M. (2015). World Alzheimer Report 2015: The Global Impact of Dementia: An Analysis of Prevalence, Incidence, Cost and Trends. Available at: https://www.alz.co.uk/research/WorldAlzheimerReport2015.pdf

Public Health Nursing

Almost 50 million people around the world are living with a dementia diagnosis and the number of new cases is increasing by about 7.7 million per year (World Health Organization, 2012). The condition affects mostly older people and has a long trajectory (Li et al., 2017; Verlinden et al., 2016). It starts off with the characteristic symptom of memory loss and ends with an inability to live daily life independently. Dementia has a huge impact on social, economic, and medical systems worldwide (World Health Organization, 2012). Many countries are attempting to address the challenge of dementia in their national strategies and action plans (Nakanishi et al., 2015; World Health Organization, 2012). Although the approaches within these national plans and strategies vary from country to country, reflecting different social structures and policy situations, the worldwide priority actions are agreed to be awareness raising and prevention; early diagnosis; commitment to good quality continuing care and services; caregiver support; workforce planning and effective training; research to better understand the disease and inform evidence-based care (World Health Organization, 2012). Dementia is recognized as a long-term life-limiting illness: as yet there is no cure or effective treatment (Koller et al., 2012; Lee & Chodosh, 2009). With such a lengthy deterioration, patients often develop comorbidities and at the same time, lose the

2021

Living through the COVID-19 crisis, Dementia care in Healthcare Crisis project highlights existing challenges faced by dementia patients in the long-term care system. Through this study, the field of study is explored using foresight methods to better understand future care provisions in the event of impending pandemics. The project empathizes with patients in the Ontario system of long-term care while being cognizant of the dilemmas that emerge as a result of healthcare crisis. It reviews current literature and emerging forces of change to understand how things can develop in the future. With scientists assuring the occurrence of future pandemics as a result of globalization and migration, it is assumed the next pandemic will disturb the global environment 15 years into the future, in the year 2035. This project aims to develop alternative future scenarios that discover potential ideas which need to be further worked upon to provide the best form of care for dementia patients

Canadian Geriatrics Journal, 2018

Background/Objectives: Comprehensive mapping of evidence-based interventions for the health and supportive service needs of individuals with dementia is an important first step in capacity planning. A scoping review was undertaken to generate potential candidates for simulation and scenario modelling. We achieved these aims by identifying the most promising interventions for improving outcomes for persons living with dementia, care partners and the health system. We investigated interventions representing eleven topics relating to the care and management of communitydwelling persons living with dementia. Primary outcomes of interest were: timing and rate of long-term care transition, hospitalization, economic evaluation, and quality of life and patient-centred measures. Scholarly articles were identified using electronic databases (e.g. MEDLINE and PsycINFO) and grey literature from relevant websites and expert consultation. Two reviewers independently screened results and abstracted data; a third adjudicated final inclusion. GRADE and Oxford Levels of Evidence were applied to assess strength of the evidence and evaluate recommendations for use. We screened 468 titles and abstracts and 152 full-text articles. Sixty-one studies published between 1985 and 2016, ranging from meta-analyses, systematic reviews, randomized clinical trials and cohort studies were included for synthesis. Four effective interventions were assigned a strong recommendation for use based on evidence of high-moderate quality and favourable effects in at least two or more outcomes relevant to our scoping review questions. Interventions achieved between 4.5 to 10 months of delayed time to admission to long-term care and approximately 20-40% reduced rate of transition. Positive benefits of interventions were consistently reported for mental health and quality of life of persons living with dementia and care partners, though their economic benefit and impact on hospitalization or emergency room department use were often mixed or unreported. Our review identified that among the eleven community-based intervention types, only four: adult day programs; caregiver or care partner education programs; comprehensive community-based care; and, dementia case management or care coordination reported sufficient evidence to consider including in scenario modelling for dementia capacity planning.