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TUUUUUUUUUUBES

@siraranispleased / siraranispleased.tumblr.com

TUUUUUUUUUUBES (34 yr old Canadian, Asexual, He/Him/She/Her) Icon by Cal, iovitus.tumblr.com

I should draw rouge the bat. But in what circumstance

I could recognize him by touch alone, by smell; I would know him blind, by the way his breaths came and his feet struck the earth. I would know him in death, at the end of the world.

-Madeline Miller, The Song of Achilles

Where else but tumblr can you see greater insights to your own nature completely detached from your self made by strangers that know you without knowing you and will only ever recall the phantom of an echo once farted into the abyss, never your name

And nobody will even tell me how to draw rouge the bat

Please draw her watching a telenovela and ordering doordash on her day off

absolutely

"Rationalism" is up there with "Objectivism" in terms of "definitionally funny things to call your own belief system".

"Yeah man I've been doing some thinking and philosophy and I've come up with a framework called Being Right"

I think Scarlet should have supports with Benny and Charlotte in a Revelation AU in which her death doesn't happen. They were border patrol stationed at Cheve so there's ripe potential for tension there.

With Benny, I'd imagine she would understand his situation rather fast and see his soft side + they would like decorating stuff together. With Charlotte, whose view on Scarlet's group can be described as "Ughh these noisy rebels are making me do my job :/" the friction would last... longer.

You know what? It’s fucking hard trying to get better. It’s exhausting managing doctors appointments, doing daily PT exercises, eating better, trying to exercise, trying to meditate, and doing ADL’s. I have had a bad crash per week trying to juggle and do all of the above.

It’s easier and less acutely painful to just coast and not actively work on ‘getting better’. Is the work worth it? I don’t know yet.

But to people who’ve tried and given up, to those who don’t even bother - you still deserve care and compassion.

This is actually part of why I think dignity of risk and informed consent absolutely needs to include what I like to call the right to give up.

I've spent the better part of my entire 20s trying as hard as I can to "get better" and you know what happened? I expanded my mobility a bit, I have slightly more energy, I feel calmer and happier because I enjoy what little exercise I can actually do. But I didn't "get better" in the way I needed to. I cannot go to school, I can't work, I have to choose between chores and errands most days, if I push myself too hard I crash sometimes for days at a time, and I'm never, NEVER lower than a 4 on the pain scale.

And like, I've met so many doctors who, when I explained that I needed more help with my condition because despite spending literally ALL OF MY FREE TIME on taking care of myself and working on "getting better" I legit cannot do anything fun or social or get a job or go to school due to my pain, fully acted like I have some sort of moral obligation to continue to focus all of my time and energy on "getting better" and so long as I'm doing that it doesn't actually matter that my life is nearly completely devoid of things that make it worth living. I would bring up mobility aids and they would balk, insisting it would make me "worse"(whatever the fuck that means at this point), and continue to push me to go to physical therapy 3 times a week and keep trying different meds and meditation and acupuncture and acupressure and mindfulness and just pushing myself harder and and a ton of other things that for various reasons don't work or would have too many downsides to be worth it to lower my pain. It didn't matter that I swore up and down I would keep going to PT and only use the wheelchair when I really needed it, the slight possibility of maybe having my mobility restricted just a bit more is enough for them to tell me I should not have a life outside of managing my illnesses.

What's even worse is that what's causing my pain, hEDS and fibromyalgia, are both life-long degenerative conditions that have no cure. I will never "get better". No amount of pain meds and PT is ever going to give me back the mobility I had before things got bad. But EVEN THEN, apparently managing my condition is all that matters, not getting to spend what time I have doing things that make me happy.

I did finally get approved for a wheelchair thanks to my new primary who used to work at an hEDS clinic and was fully sympathetic to me being allowed to live my fucking life, and after that I was talking to my mom who's been in a wheelchair since she was 13 and she said "You know, my range of motion and ability to walk did get a little worse after I got my chair, but what I could do in the chair was so much more than I could ever do without it, and that I think if you want to sacrifice a bit of mobility for being able to do things that make you happy, you should be trusted to make that choice." and she's fucking right!! I don't care if it's a little harder for me to walk around inside my house if I can finally go to school and hang out with my family and run errands and go on walks with my fiance!! Trying to "get better" is fucking exhausting and I truly, 100% believe that people who are disabled should be allowed to give up if we want, especially if it will make it easier for us to do things that are fun and fulfilling.

So yeah, tbh if "getting better" is too hard, if you're sacrificing all the things that make you happy for minuscule returns, if you're just fucking tired and want things to be a little easier, then you should have that option. I never should have had to wait this long for a wheelchair, doctor's should have fucking listened when I broke down sobbing in their offices about how I can't even go clothes shopping or get coffee with my mom and physical therapy isn't helping and I don't care about being healthy if it means I have to give up my entire life for the rest of my life for the slim chance of maybe getting like halfway there. I am a grown ass adult and I should be allowed to decide on my own when enough is fucking enough. (Also, it's kinda hard to want to get better when you like. Don't get to see your family or do fun things. Kinda inhumane to withhold basic human needs like community and entertainment until someone "tries to get better" like fuck off with that.)

We deserve informed consent, dignity of risk, and the right to fucking give up when we decide the cost of "getting better" is too high. Health =/= morality, there is no nobility in suffering, if you're tired of toiling you're not lazy or ungrateful, you're just tired. And you should be allowed to rest, even if it means getting worse or needing more help.

So. I don't mean to offend anybody but Rachel Zegler is courageous and brave in a way that I'm not sure I would be at 23 years old with my career on the line. She tweeted 'Free Palestine' on her personal account and now she is being blamed/made the scapegoat for why the Snow White movie is not doing as well as Disney predicted.

For context: Gal Gadot (of "let's sing 'Imagine' to healthworkers-fame and 'I'm proud to have served in the 1DF' fame) plays the evil Queen.

Also for context: the producer, Marc Platt, flew across the country to reprimand a 23 year old for making said tweet. He asked her to delete it. She did not. Now Marc's son has taken to social media to "expose" Rachel's selfishness. They strongly believe her tweet is hurting the box office and jobs. The movie is done. There are no more jobs or employment. Producers get a cut from box office earnings. So all they really had to say was, "Rachel's tweet is costing my father and my family money! Take it down!"

Anyways. She didn't. And hasn't.

Good for her. The absolute balls of steel tbh.

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